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National Respite Coalition

The Policy Division of the ARCH National Respite Network
national respite coalition

Mission of the National Respite Coalition

The Mission of the ARCH National Respite Coalition is to secure quality, accessible, planned and crisis respite services for all families and caregivers in need of such services in order to strengthen and stabilize families, and enhance child and adult safety.

The Coalition works to achieve these goals by preserving and promoting respite in policy and programs at the national, state, and local levels.

When you join the National Respite Network you are automatically a member of the National Respite Coalition, the Policy Division of the ARCH National Respite Network, and can receive the latest updates on Congressional legislative activity important to respite and the families you serve, as well as information from the states about program implementation. The National Respite Network is a program of the Chapel Hill Training-Outreach Project.

FACTS and Talking Points for Respite and Caregiving

Valuing the Invaluable: 2015 Update
Undeniable Progress, but Big Gaps Remain
Susan C. Reinhard, Lynn Friss Feinberg, Rita Choula, and Ari Houser
AARP Public Policy Institute

In 2013, about 40 million family caregivers in the United States provided an estimated 37 billion hours of care to an adult with limitations in daily activities. The estimated economic value of their unpaid contributions was approximately $470 billion in 2013, up from an estimated $450 billion in 2009. 

Read report.  

State-by-State Table on the Number of Caregivers and the Economic Value of Caregiving, 2013, click here.  Source: Valuing the Invaluable, 2015 Update.


2015 Caregiving in the U.S. 2015

The National Alliance for Caregiving and AARP released the 2015 Caregiver Survey results in June 2015. The survey revealed that an estimated 43.5 million adults in the United States have provided unpaid care to an adult or a child in the prior 12 months. They found that while there is a profile of a typical caregiver, caregivers on the whole are becoming as diverse as the American population and include more men and younger "millennial" caregivers. Still, 85% of family caregivers are not receiving respite. New methodologies were used so comparisons with previous surveys are not possible. While caregivers of children were included in prevalence numbers, these caregivers were not included in any further analyses.

Read the report.

National Caregiver Fact

A new RAND Corporation study estimates the value of informal caregiving in the US by friends and relatives of the aging at $522 billion a year. Replacing that care with unskilled paid care at minimum wage would cost $221 billion, while replacing it with skilled nursing care would cost $642 billion annually.

The study improves on earlier estimates about the value of informal caregiving by making use of the 2011 and 2012 American Time Use Survey, a new and unique database, to provide up-to-date cost estimates on informal caregiving.

Source: The Opportunity Costs of Informal Elder-Care in the United States: New Estimates from the American Time Use Survey by A.V. Chari, John Engberg, Kristin Ray, Ateev Mehrotra, Health Services Research, 2014


National Caregiver Fact

Four in ten adults in the U.S. are caring for an adult or child with significant health issues, up from 30% in 2010.

Caring for a loved one is an activity that cuts across most demographic groups, but is especially prevalent among adults ages 30 to 64, a group traditionally still in the workforce. Caregivers are highly engaged in the pursuit of health information, support, care, and advice, both online and offline, and do many health-related activities at higher levels than non-caregivers.  39% of U.S. adults are caregivers and many navigate health care with the help of technology.

Source: PEW Research Center, June 20, 2013

Full Report

Respite Cost Savings Fact

Researchers at the University of Pennsylvania studied the records
of over 28,000 children with autism ages 5 to 21 who were enrolled in Medicaid in 2004.  They concluded that for every $1,000 states spent on respite services in the previous 60 days, there was an 8 percent drop in the odds of hospitalization.

David S. Mandell, ScD; Ming Xie, MS; Knashawn H. Morales, ScD; Lindsay Lawer, MA; Megan McCarthy, MA; Steven C. Marcus, PhD.  The Interplay of Outpatient Services and Psychiatric Hospitalization Among Medicaid-Enrolled Children With Autism Spectrum Disorders.
Arch Pediatr Adolesc Med. 2012; 166(1):68-73. doi:10.1001/archpediatrics.2011.714 

Full Article

2011 National Family Caregiver Association Survey

When it comes to their own situation, family caregivers are most concerned about taking care of their own personal health (84%), not having enough respite care (83%), and meeting monthly financial needs (77%).

To see more survey results, see the NFCA/Allsup Family Caregiver Survey, 2011. 




National Respite Coalition Fact Sheets

  • Respite and Caregiving Fact Sheet, 2012, Click here.
  • Cost-Savings and Benefits Due to Respite Fact Sheet 2012, Click here.
  • Respite for Children, 2012, Click here.


Contact Congress


To contact your US House member,
visit here

To contact your US Senator,
visit here

NRC Legislative 
Alerts and Updates

Legislative Alert Seeking Cosponsors for the Lifespan Respite Reauthorization Act of 2015.

Twenty members of the US House sign letter to appropriators requesting $5 million for Lifespan Respite in FY 2016.

Congressional Letter

NRC Legislative Alert for FY 16 Lifespan Respite Funding, click here.

Forty national organizations endorse Lifespan Respite Program Reauthorization in 113th Congress.

Letter of Support

NRC's written testimony to Senate Labor / HHS / Education Appropriations Subcommittee in support of FY 2016 Lifespan Respite Funding. Click here. Similar testimony submitted to the House Subommittee. 

National Organization Letters in Support of Lifespan Respite, National Family Caregiver Support Program, and Family Support funding in FY 2016.

Senate Letter
House Letter

National Respite Coalition delivers two official statements to Senate HELP Committee Staff on OAA and Lifespan Respite Reauthorization (signed by 35 national organizations)

FRIENDS Fact Sheet #14
Respite and Crisis Care
Click Here.  

Fact Sheet: Benefits and Cost-Savings of Respite. Click here.

NRC Testifies before the House Veteran's Affairs Health Subcommittee on Meeting the Needs of Family Caregivers of Veterans. (June 4, 2009). Click here.