The Mission of the ARCH National Respite Coalition is to secure quality, accessible, planned and crisis respite services for all families and caregivers in need of such services in order to strengthen and stabilize families, and enhance child and adult safety.
The Coalition works to achieve these goals by preserving and promoting respite in policy and programs at the national, state, and local levels.
When you join the National Respite Network you are automatically a member of the National Respite Coalition, the Policy Division of the ARCH National Respite Network, and can receive the latest updates on Congressional legislative activity important to respite and the families you serve, as well as information from the states about program implementation. The National Respite Network is a program of the Chapel Hill Training-Outreach Project.
FACTS and Talking Points for Respite and Caregiving
Valuing the Invaluable: 2015 Update Undeniable Progress, but Big Gaps Remain Susan C. Reinhard, Lynn Friss Feinberg, Rita Choula, and Ari Houser AARP Public Policy Institute
In 2013, about 40 million family caregivers in the United States provided an estimated 37 billion hours of care to an adult with limitations in daily activities. The estimated economic value of their unpaid contributions was approximately $470 billion in 2013, up from an estimated $450 billion in 2009.
State-by-State Table on the Number of Caregivers and the Economic Value of Caregiving, 2013, click here. Source: Valuing the Invaluable, 2015 Update.
2015 Caregiving in the U.S. 2015
The National Alliance for Caregiving and AARP released the 2015 Caregiver Survey results in June 2015. The survey revealed that an estimated 43.5 million adults in the United States have provided unpaid care to an adult or a child in the prior 12 months. They found that while there is a profile of a typical caregiver, caregivers on the whole are becoming as diverse as the American population and include more men and younger "millennial" caregivers. Still, 85% of family caregivers are not receiving respite. New methodologies were used so comparisons with previous surveys are not possible. While caregivers of children were included in prevalence numbers, these caregivers were not included in any further analyses.
CAREGIVERS IN AMERICA: Growing Contributions with Little Support
Infographic from National Alliance for Caregiving and NASUAD
National Caregiver Fact
A RAND Corporation study estimates the value of informal caregiving in the US by friends and relatives of the aging at $522 billion a year. Replacing that care with unskilled paid care at minimum wage would cost $221 billion, while replacing it with skilled nursing care would cost $642 billion annually.
The study improves on earlier estimates about the value of informal caregiving by making use of the 2011 and 2012 American Time Use Survey, a new and unique database, to provide up-to-date cost estimates on informal caregiving.
Source: The Opportunity Costs of Informal Elder-Care in the United States: New Estimates from the American Time Use Surveyby A.V. Chari, John Engberg, Kristin Ray, Ateev Mehrotra, Health Services Research, 2014 Abstract
National Caregiver Fact
Four in ten adults in the U.S. are caring for an adult or child with significant health issues, up from 30% in 2010.
Caring for a loved one is an activity that cuts across most demographic groups, but is especially prevalent among adults ages 30 to 64, a group traditionally still in the workforce. Caregivers are highly engaged in the pursuit of health information, support, care, and advice, both online and offline, and do many health-related activities at higher levels than non-caregivers. 39% of U.S. adults are caregivers and many navigate health care with the help of technology.
Researchers at the University of Pennsylvania studied the records of over 28,000 children with autism ages 5 to 21 who were enrolled in Medicaid in 2004. They concluded that for every $1,000 states spent on respite services in the previous 60 days, there was an 8 percent drop in the odds of hospitalization.
Source: David S. Mandell, ScD; Ming Xie, MS; Knashawn H. Morales, ScD; Lindsay Lawer, MA; Megan McCarthy, MA; Steven C. Marcus, PhD. The Interplay of Outpatient Services and Psychiatric Hospitalization Among Medicaid-Enrolled Children With Autism Spectrum Disorders. Arch Pediatr Adolesc Med. 2012; 166(1):68-73. doi:10.1001/archpediatrics.2011.714
When it comes to their own situation, family caregivers are most concerned about taking care of their own personal health (84%), not having enough respite care (83%), and meeting monthly financial needs (77%).