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Legislative Alerts   NewNRC (3)(edited)

February 27, 2015

Rep. Langevin circulates Dear Colleague to support $5 million for Lifespan Respite in FY 2016

Rep. Jim Langevin (D-RI) has circulated a Dear Colleague asking Members of Congress to join him by signing a letter to House appropriators asking for $5 million for LIfespan Respite in the FY 2016 Labor, HHS and Education Appropriations bill. Please reach out to your Congressional Represenative and urge them to sign onto this letter. The deadline for Members to sign the letter is March 20, 2015. A quick call to the Member's office is the most effective way for your request to be heard. Call the Capitol Hill Switchboard at 202-225-3121.  For additional contact information for your Member of Congress, go to

For alert and talking points, click here.

Dear Colleague Letter

February 2, 2015

President's FY 16 Budget Proposes Increases for Lifespan Respite and Caregiver Support

The President's Fiscal Year 2016 Budget was released today. The plan reverses sequestration cuts and focuses on the needs of the middle class. Increases were proposed for the Lifespan Respite Care Program ($5 million), the National Family Caregiver Support Program ($150 million), and Aging and Disability Resource Centers $20 million). The President also proposes a new Family Support initiatve funded at $15 million to serve all ages. The National Respite Coalition will join forces with national, state and local partners to work toward achieving these increases for the next fiscal year.

Fiscal Year 2016 Administration for Community Living
Justification of Estimates for Appropriations Committees

See especially pp. 94 - 132 for descriptions of proposed increases to programs for Caregiver and Family Support services and a detailed description of the new proposed Family Support Program.

President's FY 2016 HHS Budget

January 28, 2015

Senate Committee Approves Older American Act Reauthorization

The National Respite Coalition applauds the Senate Health, Education, Labor and Pensions (HELP) Committee for making the reauthorization of the Older Americans Act an immediate priority for the 114th Congress. Today the Committee took quick action and unanimously approved S. 192, the bipartisan legislation recently introduced by U.S. Senate health committee Chairman Lamar Alexander (R-Tenn.) and Ranking Member Patty Murray (D-Wash.) with Senators Richard Burr (R-N.C.) and Bernie Sanders (I-Vt.) to extend authorization of the Older Americans Act. This legislation includes reauthorization of Title III-E, the National Family Caregiver Support Program, with a new provision extending eligibility to older parents of adult children with disabilities for family caregiver support services, including respite.

The National Respite Coalition joins other national, state and local organizations in calling for swift action in the Senate followed by timely consideration in the House.

To show your support, contact both your Senators and your Representative in the House and urge them to pass the bill quickly. For contact information, visit and

Press Release

Bill S. 192

December 17, 2014

Final FY15 Federal Funding for Key Respite and Caregiver Support Programs

The President signed the FY15 Consolidated and Further Continuing Appropriations Act (HR 83) into law on December 17, 2015.  Most programs that support respite and family caregiver programs were level funded for the current fiscal year.  

Funding Chart of Key Programs



April 19, 2014

National Respite Coalition Submits Testimony to House and Senate Subcommittee in Support of Lifespan Respite Funding  

In April, the National Respite Coalition submitted outside written testimony to the House and Senate Subcommittees on Labor, HHS and Education Appropriations requesting funding ($2.5 million) for the Lifespan Respite Program in the FY 15 Labor, HHS, Education Appropriations bill.  This is the same level of funding awarded in FY 12 prior to sequestration and slightly more than requested by the President. To view or download the Senate testimony, click here.  Similar testimony was submitted to the House Appropriations Subcommittee.

April 17, 2014
43 National Organizations Sign Letter in Support of FY 15 Funding for Lifespan Respite, National Family Caregiver Support and Family Support 

On April 17, 2014, 43 national organizations signed a letter to House and Senate Appropriators in support of FY 15 funding for the Lifespan Respite Program ($2.5 million), the National Family Caregiver Support Program ($154 million), and Family Support in the Developmental Disabilities Act. The House and Senate letters are now available.

House Letter
Senate Letter

April 12, 2014
24 House Members Send Letter in Support of Lifespan Respite Funding

On April 12, 2014, 24 members of the US House of Representatives sent a letter to the Chairman and Ranking Member of the House Subcommittee on Labor, HHS, Education Appropriations requesting funding for Lifespan Respite Program in FY 2015. To view or download the letter, click here.

Advocacy Tips and Guidance on Contacting the US Congress 

Visits to Legislators' Offices: For Guidance on How to Arrange and Conduct a Personal Visit with a Legislator, see Advocacy Tip Sheet for Face-to-Face Meetings  

Calling Your Representative or Senator:  Making a personal visit or call is the most effective way to get your message across. Do not underestimate the value of legislative staff.  Talking with them may be just as effective as talking with the Member directly.
  1. If you don't know who your Representative and Senators are, visit and enter your zip code.
  2. Call the Capitol Switchboard at 202-224-3121 and ask to be connected to your Representative's or Senator's office.  When connected, ask to speak to the person who works on health or disability issues, usually the Health Legislative Assistant (LA). Leave a voice mail message if you cannot get through directly.
  3. Identify yourself as a constituent. Explain the importance of respite to you personally and make your request.  Follow the directions on the NRC Legislative Alert for Action and Messages or use these talking points to make your case. (Prepare yourself in advance and practice the message).
  4. Ask the staff member if his/her boss will support your request.  If they do not commit, please ask them to get back to you.
  5. Say thank you.






Contact Congress 
To contact your US House membervisit here.

To contact your US Senator, visit here.

Legislative Action Center

NewNRC (3)(edited)


FY 2016 Dear Colleague Funding Alert for Lifespan Respite, click here

FY 2016 Dear Colleague Letter for Members' sign ons from Rep. Langevin, click here.
46 National Organizations Send Letter of Support for Lifespan Respite Reauthorization, click here.
NRC/Lifespan Respite Task Force position statement on Lifespan Respite Reauthorization, click here.
National Respite Coalition delivers two official statements to Senate HELP Committee Staff on OAA and Lifespan Respite Reauthorization (signed by 35 national organizations)