State Respite Coalitions

State Respite Coalitions

About State Respite Coalitions and State Lifespan Respite
Programs

State Lifespan Respite Contacts

State Respite Coalition Fact Sheets, updated 2011 (for more current contact information, see below)

Workbook: Building a Statewide Respite Coalition: Where Do We Begin?

What are State Respite Coalitions and how do they differ from State Lifespan Respite Programs?

Most State Respite Coalitions are grassroots membership organizations composed of state and local, public and private organizations, which represent individuals with disabilities or chronic conditions of all ages; family caregivers; community and faith-based organizations; and respite, social service and health care providers. Most often their activities are focused on advocacy, networking, and public education. Some coalitions also provide training and respite vouchers. They may be run by volunteers or paid staff. Most exist as informal structures, while others are formalized within or as 501(c)(3) nonprofit entities.

State Lifespan Respite Programs are run by a designated state government lead agency, which works in collaboration with a state respite coalition and an Aging and Disability Resource Center. Their purpose is to implement statewide systems of coordinated, community-based respite for family caregivers caring for individuals with special needs of all ages. State Lifespan Respite grantees may assign some Lifespan Respite activities to State Respite Coalitions for purposes of the grant or the State Respite Coalition may act in an advisory or advocacy capacity for the grantee.

State Respite Coalitions:

Alabama Alabama Lifespan Respite Resource Network Linda Lamberth, Project Manager 1521 East 9th St. Anniston , Alabama 36207 (256) 237-3683 Fax (256) 237-5151 Toll Free:(866) 737-8252 Alabamarespite(at)aol.com www.alabamarespite.org AL Respite Coalition Fact Sheet	Nevada Nevada Respite Coalition Stephanie Kuewa Vice President (702) 388-7070 Fax: (702) 388-2525 Cell: (702) 274-8170 steph(at)dynamichomehealthcare.com Cory Lutz Corresponding Secretary Helping Hands of Vegas Valley (702) 633-7264 ext.26 Fax: (702) 649-6438 Cell: (702) 743-4178 nvrespite(at)gmail.com NV Respite Coalition Fact Sheet
Arizona Arizona Caregiver Coalition Bonnie Danowski 5401 E. Sweetwater Ave. Scottsdale, AZ 85254 (602) 996-6635 bonniedanowski(at)gmail.com Linda Martin Foundation for Senior Learning 1201 E. Thomas Rd. Phoenix. AZ 85014 (602) 285-1800 x 122 lmartin(at)fsl.org www.azrespite.org and www.azcaregiver.org AZ Respite Coalition Fact Sheet	New Hampshire New Hampshire Coalition Sharon Kaiser, RN, BS NH Lifespan Respite Care Project Coordinator Special Medical Services Thayer Building 129 Pleasant St. Concord, NH 03301 603-271-4498 skaiser(at)dhhs.state.nh.us NH Respite Coalition Fact Sheet
California California Respite Association Mike Huckins, President michael.huckins(at)yahoo.com http://www.calrespite.org Maureen Wright Co-Vice President, N CA c/o The Respite Inn 906 Lee Lane Concord, CA 94518 925-686-5758 Therespiteinn(at)att.net Michelle Perkins Co-VP, Southern CA c/o YMCA Child Care Resource Services 333 Camino Del Rio South, Ste.400 San Diego, CA 92108 619-474-4707 x1404 mperkins(at)ymcacrs.org CA Respite Coalition Fact Sheet	New Jersey New Jersey Lifespan Respite Coalition Eric Joice, Executive Director Epilepsy Foundation of NJ 429 River View Plaza Trenton, NJ 08611 Toll Free : (800) 376-2345 732-262-8020 ejoice(at)familyresourcenetwork.org Jacqueline A. Moskowitz Executive Director Family Support Center of New Jersey Route 35 North Manasquan, NJ 08736 (800)372-6510 Phone (732)528-8080 jacqui.moskowitz(at)fscnj.org Jessica Goldsmith Barzilay 609-392-4900 jbarzilay(at)familyresourcenetwork.org NJ Lifespan Respite Coalition Fact Sheet
Colorado Colorado Respite Coalition Val Saiz, LCSW, Co-chair Health Care Program for Children with Special Health Care Needs 9965 S. Williams Denver, CO 80209 (303) 619-1437 val(at)coloradorespitecoalition.orgn www.coloradorespitecoalition.org Janis De Baca, Co-chair Regional Family Coordinator Health Care Program for Children with Special Needs 866 S. Joplin Circle Aurora, CO 80017 (720) 231-5268 janis(at)coloradorespitecoalition.org">janis(at)coloradorespitecoalition.org CO Respite Coalition Fact Sheet	New York New York State Caregiving and Respite Coalition Maureen K. Murphy Lifespan of Greater Rochester Rochester, NY 14618 (585) 645-9217 (585) 244-8400 Fax: (585) 244-9114 mmurphy(at)lifespan-roch.org http://www.nyscrc.org/ NY Respite Coalition Fact Sheet
Connecticut Connecticut Lifespan Respite Coalition, Inc. Peaches Quinn CLRC Project Administrator 860-247-2572 peaches(at)ctrespite.org Joy Liebeskind, Coordinator 2138 Silas Deane Hwy. Rocky Hill, CT, 06067 (860) 513-0172 (877) 737-1966 FAX:(860) 563-3961 CTrespite(at)cox.net">CTrespite(at)cox.net www.CTRESPITE.org CT Respite Coalition Fact Sheet	North Carolina North Carolina Respite Care Coalition www.northcarolina respitecarecoalition.org Cindy Miles, CLYL, CLYT, CLL President, NCRCC Board Family Caregiver Resource Coordinator Southwestern Commission Area Agency on Aging 125 Bonnie Lane Sylva, NC 28779 828-586-1962, ext. 218 cindy(at)regiona.org NC Coalition Fact Sheet
Delaware Delaware Lifespan Respite Care Information Network and DE Caregiver Coalition Nancy Ranalli Easter Seals Delaware & Maryland 's Eastern Shore 61 Corporate Circle New Castle DE 19720 302-324-4444 x. 2051 nranalli(at)esdel.org www.delrespite.org DE Respite Coalition Fact Sheet	Ohio Ohio Respite Coalition Pat Luchkowsky, Coalition President Director of Public Affairs Easter Seals of Ohio 440-967-4103 p.luchkowsky(at)esohio.org Ohio Respite Coalition Fact Sheet
District of Columbia DC Lifespan Caregivers and Respite Coalition Aging and Disabilities Resource Center Washington, DC (202) 535-1444 DC Respite Coalition Fact Sheet	Oklahoma Oklahoma Respite Resource Network Rose Ann Percival Chair, ORRN Community Partnerships Coordinator Center for Learning and Leadership/UCEDD Oklahoma City, OK 405-271-4500 ext. 41038 Fax 271-1459 Cell: 405-255-6533 roseann-percival(at)ouhsc.edu or Percival1(at)cox.net OK Respite Coalition Fact Sheet
Georgia Georgia Lifespan Respite Coalition Whitney Fuchs Georgia Community Support and Solutions 1945 Cliff Valley Way, Suite 220 Atlanta, Georgia 30329 (404) 634-4222 Ext. 242 Fax (404) 634-1324 whitney.fuchs(at)gacommunity.org	Pennsylvania Pennsylvania Respite Coalition MaryJo Alimena Caruso Carebreak Coordinator Watson Institute 301 Camp Meeting Road Sewickley, PA 15143 (412) 749-2863 Fax (412) 749-2891 maryjoa(at)thewatsoninstitute.org">maryjoa(at)thewatsoninstitute.org PA Respite Coalition Fact Sheet
Illinois Illinois Respite Coalition Kate Duback Illinois Lifespan Respite Coordinator (630) 529-2871 X3242 cduback(at)marklund.org http://www.illinoisrespite.org Crisis Nursery Network: Stephanie Record, Ed.M., MSW Executive Director Crisis Nursery 1309 W. Hill Street Urbana, IL 61801-1405 (217) 337-2730 www.crisisnursery.net IL Respite Coalition Fact Sheet	Rhode Island Caregiver Alliance of Rhode Island Lisa Conlan Parent Support Network of RI 1395 Atwood Avenue, Ste 114 Johnston, RI 02919 401-467-6855 lisaconlan2(at)aol.com www.newhopetimeexchange.org/projects /caregiver-alliance/ RI Respite Coalition Fact Sheet
Indiana Indiana Respite Coalition Bertie Lehman Co-Chair C/o Agape Respite Care P.O. Box 84 Berne, IN 46711 (260) 589-3351 agaperespitecare(at)embarqmail.com">agaperespitecare(at)embarqmail.com IN Respite Coalition Fact Sheet	South Carolina South Carolina Respite Coalition Susan Robinson, Executive Director PO Box 493 Columbia, S.C. 29202 Toll free: (866) 345-6786 (803) 935-5027 Fax: (803) 935-5250 screspitecoalition(at)yahoo.com www.screspitecoalition.org SC Respite Coalition Fact Sheet
Iowa Iowa Respite and Crisis Care Coalition Lou Ann Mowrey, Family Resource Center (Carroll County) 502 West 7 St Carroll, IA 51401 (712) 792-6440 lamowrey(at)carrollfrc.org IA Respite Coalition Fact Sheet	Tennessee Tennessee Respite Coalition Jennifer Abernathy, Executive Director Nashville, TN 37209 19 Music Square West, Ste J, Nashville, TN 37203 (888) 579-3754 or (615) 269-8687 Fax: (615) 469-7791 Jennifer.Abernathy(at)tnrespite.org http://www.tnrespite.org *TN Respite Coalition Fact Sheet*
Kansas Kansas Lifespan Respite Coalition Gina Ervay Coalition Founder and Co-Chair Executive Director Respite Outreach Care for Kansans Organization, Inc. (ROCKO) 1603 N. Chapel Road, Ste. 300 Wichita, KS 67206 (316) 687-5700 gervay(at)rockoinc.org www.ksrespite.com KS Respite Coalition Fact Sheet	Texas Texas Respite Coalition Melanie L. Harrison, MPAff Aging Program Coordinator Texas Association of Regional Councils 701 Brazos St., Ste. 780 Austin, TX 78701 (512) 478-4715 Fax: (512) 275-9910 mharrison(at)txregionalcouncil.org">*mharrison(at)txregionalcouncil.org* *TX Respite Coalition Fact Sheet*
Louisiana Louisiana Respite Coalition Kelly Hutson Viator, MPA Executive Director The ALS Association Louisiana - Mississippi Chapter P.O. Box 66825 Baton Rouge, LA 70896-6825 (225) 343-9880; Fax: (225) 381-0087 Toll Free: (800) 891-3746 kelly.viator(at)alsalams.org LA Respite Coalition Fact Sheet	Utah Utah Caregiver Coalition Sonnie Yudell, Program Manager Utah Caregiver Support Program Phone: 801-538-3926 syudell(at)utah.gov State Point of Contact: Utah Assn of Family Support Centers Crisis Nurseries Child and Family Support Center 380 West 1400 North Logan, Utah 84341 (435) 752-8880 fsc(at)xmission.com">fsc@xmission.com
Maine State Point of Contact Bobbi Yeager United Cerebral Palsy 700 Mount Hope Ave.Suite 320 Bangor, Maine 04401 (207) 941-2952 FAX (207) 941-2955 Bobbi.Yeager(at)ucpofmaine.org www.ucpofmaine.org	Virginia Virginia Caregiver Coalition Mary Ann Johnson, MA Program Director Alzheimer's Association, Greater Richmond Chapter 4600 Cox Road Ste 130 Glen Allen, VA 23060 804-967-2582 Fax: 804-967-2588 mjohnson(at)alz.org Monica Uhl Virginia Respite Resource Project Partnership for People with Disabilities Virginia Commonwealth University P.O. Box 843020 Richmond, Virginia 23284-3020 (804) 828-8587 Fax: (804) 828-0042 muhl(at)vcu.edu Virginia Respite Coalition Fact Sheet
Maryland Maryland Respite Care Coalition (240) 453-9585 www.respitecoalition.org Elizabeth Weglein CEO, Elizabeth Cooney Care Network Treasurer, Maryland Respite Care Coalition Chair, Governorâ€™s Maryland Caregivers Coordinating Support Council Direct 410.608.7966 ew(at)elizabethcooneyagency.com Dorinda Adams Program Specialist MD Dept. of Human Resources 311 West Saratoga Street Baltimore, Maryland 21201-3521 (410) 767-7323 Fax: (410) 333-0256 dadams(at)dhrs.state.md.us MD Respite Coalition Fact Sheet	Washington Respite and Crisis Care Coalition of Washington State Linda J. Porter Lifespan Respite Project Coordinator 206-829-7030 lporter(at)arcofkingcounty.org WA Respite Coalition Fact Sheet West Virginia State Point of Contact Robin Straight MSW R & N Medical Equipment WV CCAN National Family Caregivers Embracing Family Caregivers Rt. 1 Box 121 Fairmont,WV 26554 (304) 534-4667 *robinssmsw.lcsw(at)mindspring.com*
Massachusetts Massachusetts Respite Coalition Joan Rafferty Lifespan Respite Grant Project Coor. c/o National Multiple Sclerosis Society Greater New England Chapter 781-693-5156 macaregivers(at)yahoo.com http://www.massrespite.org/ Amy Nazaire Director of Family Support MA Department of Developmental Services Northeast Region (978) 774-5000 x386 amy.nazaire(at)state.ma.us MA Respite Coalition Fact Sheet	Wisconsin Respite Care Association of Wisconsin Jim Schroeder, Executive Director 6320 Monona Street --Suite 407 Monona, WI 53716 (608) 222-2033 or (608) 222-2034 jschroeder(at)respitecarewi.org jschroeder(at)respitecarewi.org"> www.respitecarewi.org jschroeder(at)respitecarewi.org"> Respite Care Association of WI Fact Sheet
Minnesota Minnesota Lifespan Respite Leadership Group Emily Farah-Miller Metropolitan Area Agency on Aging 651-245-2927 Emily(at)tcaging.org MN Respite Coalition Fact Sheet
Missouri Missouri Lifespan Respite Coalition Rebecca Cosgrove 606 N. Wright Ave Braymer, MO 64624 660-973-6408 hopeful0882(at)yahoo.com Missouri Respite Coalition Fact Sheet	* A Point of Contact is an ARCH member who has agreed to be the liaison between the ARCH-NRC and individuals and agencies in the state, but does not represent an organized coalition or association. Updated Dec 5, 2011. For more information or to make corrections, please contact Jill Kagan.
Montana Montana Respite Coalition Vicki Clear Developmental Educational Assistance Program 2200 Box Elder Miles City, Montana 59301 1-800-224-6034 (406) 232-6034 vclear(at)deapmt.org Montana Respite Coalition Fact Sheet
Nebraska Nebraska Respite Coalition Chris Stewart chris.bellstewart(at)yahoo.com Jinx Hackler, Cochair Hastings Respite Care PO Box 1217 Hastings, NE 68901 (402) 463-8124 jjjhackler(at)yahoo.com">jjjhackler(at)yahoo.com NE Respite Coalition Fact Sheet Marcia.Alber(at)nebraska.gov">