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Meeting the Respite Needs of the Nation’s Family Caregivers

Lifespan Respite Technical Assistance Center

Lifespan Respite is defined in the Lifespan Respite Care Act as "coordinated systems of community-based respite for family caregivers of children or adults regardless of special need."

 


Overview of the T/TA Network for Lifespan Respite

In September 2009, the ARCH National Respite Network was awarded a three-year cooperative agreement with the US Administration on Aging to provide training and technical assistance to the growing Lifespan Respite Network, its stakeholders and partners, and state respite coalitions. The cooperative agreement was awarded in partnership with the highly regarded Family Caregiver Alliance in San Francisco, which provides training and technical assistance primarily to the Aging Network on broader caregiving issues. Together they formed the Technical Assistance Centers for Caregiver Programs & Lifespan Respite.  This project ended on August 31, 2012.

In September 2012, ARCH was awarded a three-year cooperative agreement directly with the Administration for Community Living/AoA to form the new Lifespan Respite Technical Assistance Center.  Through the new TA Center, ARCH will continue to provide training and technical assistance to the Lifespan Respite Network with a focus on performance measurement and research. As of August 2012, AoA has funded thirty states and the District of Columbia to establish or enhance Statewide Lifespan Respite Systems and ARCH provides training and technical assistance to them as well. For more information on this initiative, please click here.

ARCH training and technical assistance activities include:
  • State site visits to assist with State Lifespan Summits to help states build or strengthen coalitions and prepare state agencies to apply for federal Lifespan Respite grants in the future;
  • Updating ARCH respite fact sheets that have proven most useful over the years and developing new fact sheets as needed on topics across age and disability categories;
  • New documents and guidebooks, and webinars on topics such as "Lifespan Respite 101," Respite in the Faith Community," and "Tools for Collaboration." Future topics may include Federal Respite Funding Opportunities,  Evaluation, Marketing and Public Awareness, Volunteer and Rural Respite, respite for special populations, and more;
  • New consumer content on the ARCH web pages, especially the National Respite Locator Service;
  • A repository for respite training curricula and links to specific state resources; 
  • An  ongoing needs assessment of ARCH and State Lifespan Networks to assess new training and TA needs;
  • Phone and email consultation as needed or to help family caregivers find respite.


Lifespan Respite Program History

Archived Lifespan Respite Federal Funding Opportunity Announcements from Previous Years
  • FY 2009, click here.  
  • FY 2010, click here.
  • FY 2011, New Grants, click here.
  • FY 2011, Expansion Grants, click here.
  • FY 2012, Integration and Sustainability Grants, click here.
  • FY 2012, Expansion Grants, click here.
  • FY 2013, New Grants, click here and Pre-Application Teleconference Transcript
  • FY 2013, Integration and Sustainability Grants, click here and Pre-Application Teleconference Transcript.

Lifespan Respite State Grant Updates:



In 2009, AoA funded the first twelve states to establish Lifespan Respite systems.  ARCH periodically provided updates on the successes and challenges faced by the pioneering grantees that were published in the newsletter of the FCA/ARCH Technical Assistance Ceters on Caregiver Programs and Lifespan Respite.  They are reprinted here for your convenience.

Additional state updates were also published regularly in the FCA-ARCH Newsletter. For archived volumes of the newsletter, click here. For current Lifespan Respite News, see archived ARCH Quick News Updates.

Subscribe to ARCH Quick News.

Lifespan Respite Care Program: State Grantees Project Objectives and Planned Activities, click here
Updated March 2013
This table summarizes the project objectives and planned activities of each of the 2009 - 2012 Lifespan Respite Grantees and partners, including activities implemented with original infrastructure building grants, as well as Expansion Grants and Integration and Sustainability Grants. The table also includes descriptions of the role of the State Respite Coalition and the role of the Aging and Disability Resource Center (ADRC) in the implementation of each state grant.

Summary of 2009 Grantees' Final Reports: For information culled from select states' final reports, see the presentation of Greg Link, ACL/AoA, and Jill Kagan at the American Society on Aging Meeting in Chicago on March 14, 2013.  The title of the presentation was Why Lifespan Respite? Meeting the Respite Needs of the Nation's Family Caregivers.  Click here.


GAO Lifespan Respite Report, 2010

On October 22, 2010 the Government Accounting Office released a report to Congress on the Lifespan Respite Care Program mandated by the Lifespan Respite Care Act of 2006. Since the program is relatively new, GAO could not carry out the cost benefit analysis required by the legislation, but they did prepare a descriptive summary of current state Lifespan Respite grantee activities. To conduct its required audit, GAO interviewed officials from AOA and reviewed related documentation including grant applications, notice of awards, grantee work plans, and semi-annual progress reports. The ARCH program director was also interviewed to obtain background information on respite care and information about the National Resource Center on Lifespan Respite Care. The report includes a supportive statement from the Administration on Aging. For the full report, Respite Care: Grants and Cooperative Agreements Awarded to Implement the Lifespan Respite Care Act. GAO-11-28R, October 22, 2010, click here.

Contact Us:

alt Jill Kagan, MPH
Program Director

ARCH National Respite Network and Resource Center
4016 Oxford St.
Annandale, VA 22003
703.256.2084
703.256.0541 FAX
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alt Maggie Edgar, RN, MSW
Senior Consultant
ARCH National Respite Network and Resource Center
807 N. 50th Street
Seattle, WA 98103
206.632.5208
206.547.1905 FAX
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Casandra FirmanNov 11

Casandra Firman

ARCH Evaluation Specialist
360.769.7167
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Logo-and-Info-for-Column
Nashville Marriott at Vanderbilt University Nashville, TN

Lifespan Respite Grantee and Partner Meeting, October 10
More information coming soon!
If you are a State Lifespan Respite Grantee or Stakeholder, Visit Your Own Networking Page.

NewACL
AoA Logo j
States with AoA Lifespan Respite Funding 

Contact information

2009 Grantees

Alabama

Arizona
Connecticut
District of Columbia
Illinois
Nevada
New Hampshire
North Carolina
Rhode Island
South Carolina
Tennessee
Texas 
2010 Grantees

Delaware

Kansas
Louisiana
Massachusetts
Minnesota
Nebraska
New York
Oklahoma
Pennsylvania
Utah
Washington State
Wisconsin
2011 Grantees

Colorado 
Hawaii

Montana
New Jersey
Ohio
Virginia
2012 Grantees 

Iowa (New State)

Integration and Sustainability Grantees
Alabama

Arizona
Nevada
North Carolina

Rhode Island
South Carolina

Texas

Expansion Grantees
Massachusetts
Virginia

2013 Grantees
(Proposal abstracts not available)

New State Grantee
Idaho

Integration and Sustainability Grantees
Delaware
District of Columbia
Massachusetts
Oklahoma
South Carolina
Texas
Washington
Wisconsin