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Webinar: Lifespan Respite 101 and Lifespan Respite Toolkit
Lifespan Respite 101 from CHTOP, Inc. on Vimeo.
Lifespan Respite 101
This Webinar provides an introduction to Lifespan Respite, including Lifespan Respite legislation, the US Administration’s (AoA) role in implementation, best practices in State Lifespan Respite Programs, and information to help you plan for a Lifespan Respite System in your state. For more information about this webinar, the presenters, the agenda and other information, click here.
You can access the Webinar Power Point slides by clicking here.
Please give us your feedback for this webinar by clicking here.
Toolkit: "Lifespan Respite 101"
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FY12 AoA Program Announcements (RFP)
On March 15, 2012, the Administration on Aging released program announcements making FY 2012 funds available to states for Lifespan Respite Grants. Eligible state entities include State agencies that administer the Older Americans Act, state agencies that administer Medicaid, or a state agency designated by the Governor. State agencies must work in partnership with Aging and Disability Resource Centers and in mandated collaboration with a State Respite Coalition or other organization. With these funds, states must implement state and local Lifespan Respite programs, which are defined in the law as “Coordinated systems of accessible, community-based respite care services for family caregivers of children or adults with special needs”. Grants are available to states which have never received Lifespan Respite awards in the past as well as to the FY 2009 Lifespan Respite grantees. Expansion grants are also available to FY 2010 and FY 2011 state grantees. To see all of AoA's Lifespan Respite program announcements, visit the AoA Funding Opportunity site.
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Lifespan Respite: Who, What, When, Where and How? PPT Slide Presentation These PPT slides provide answers to the questions: what is respite, why is it important, how big is the problem of respite access, what is Lifespan Respite and why do we need it? Most importantly, the presentation lays out who needs to be involved, the state requirements for preparing for and implementing a state Lifespan Respite Program in collaboration with all the neccessary stakeholders and partners, and where to find examples of innovation and best practices. Feel free to download these slides and adapt them for your own use -- with ARCH acknowledgment, of course!
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Updated! AoA Lifespan Respite Fact Sheet, click here. The US Administration on Aging updated this fact sheet in 2011 to provide background on the implemented Lifespan Respite Program and to provide AoA’s vision for the program.
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Comparative Table of State Lifespan Respite Programs, click here.
The Lifespan Respite Care Act was modeled on state Lifespan Respite programs in OK. WI, NE and OR that were already up and running. Each program focuses on a coordinated method for respite service delivery and funding, yet each program has unique characteristics. This comparative table provides an easy look at the differences and similarities between these model state programs and allows other states to choose which characteristics they might want to incorporate into their own state Lifespan Respite Program as best practice.
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Application as a Collaborative Tool, click here. For States to receive a federal grant to implement a Lifespan Respite Program, they must compete for funds by completing an application to be submitted to the US Administration on Aging (see AoA Program Announcement). The Lifespan Respite law requires very specific information be included in the application. Compiling this information for the application will require research, documentation, and planning, which presents opportunities for state respite coalition, Aging and Disability Resource Center, and state agency collaboration early in the implementation process. This fact sheet provides details on what is required by law for the application as well as suggestions for how each partner could be most helpful with any or all of the application requirements. |
Updated 2012! Building Blocks for Respite: Federal Funding Opportunities, click here.
| This issue brief summarizes federal funding information from previous ARCH products including Funding for Adult Respite, and updates it to provide brief descriptions of federal funding resources available, or potentially available, to states to support respite services for all ages and disabilities. This information is useful to state agencies and state respite coalitions trying to identify potential partners/respite resources at the state level, as well as important information for respite providers and others seeking funding for their own programs or for the family caregivers they serve. List is not all-inclusive. |
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Aging and Disability Resource Centers Along with State Respite Coalitions, Aging and Disability Resource Centers (ADRCS) play a key role in Lifespan Respite program implementation. The Lifespan Respite law requires their involvement and includes a definition for ADRCs. ADRCs are designed to streamline a broad array of long-term supports and services to assist older adults and people with disabilities of all ages in accessing these services.
The US Administration on Aging (AoA) and the Centers for Medicaid and Medicare Services (CMS) originally funded 43 states and territories to develop ADRC programs between 2003-2005. In September 2009, $11 million in grants were awarded to 49 states and territories to implement or expand the Aging and Disability Resource Center Program. To learn more about the 2009 grantees, please visit the ADRC Page on the AoA website For state specific information on ADRCs, click here. |
Model State Lifespan Respite Programs, click here. This fact sheet provides a summary of the original ARCH study, Statewide Lifespan Respite Programs: A Study of Four State Programs with updated information on the current status of and contact information for the original four Lifespan Respite states.
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Updated! Lifespan Respite Care Program 2009 and 2010 State Grantees Project Objectives and Planned Activities, click here for 2009 grantee table and click here for 2010 grantees. These tables summarize the project objectives and planned activities of each of the 2009 and 2010 Lifespan Respite Grantees and partners adapted from the GAO Report on Lifespan Respite 2010. The table also includes descriptions of the role of the State Respite Coalition and the role of the Aging and Disability Resource Center (ADRC) in the implementation of each state grant. |
Lifespan Respite Legislative History
Public Law PL109-442, Lifespan Respite Act of 2006, click here.
Section-by-Section Summary of the Act, click here.
Congressional Record of House and Senate Floor Statements on Passage of Lifespan Respite Care Act (December 2006), click here. This document provides the actual transcribed Congressional Floor Statements of key Senators and House Members as they debated final passage of the Lifespan Respite Care Act in 2006. These floor statements, which carry the weight of law, provide critical information on Congressional intent for how the federal government, as well as states, are expected to implement Lifespan Respite programs.
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House Energy and Commerce Committee Report on Lifespan Respite Care Act (September 2006), click here. The House Committee report is the only Congressional Report in the legislative history of the Lifespan Respite Care Act. It carries the force of law and elaborates on Congressional intent, especially related to who is to be served by state lifespan respite programs and how the program is to be administered at the state and federal levels.
For additional legislative history, visit the National Respite Coalition.
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Building Statewide Respite Coalitions
Building a Statewide Respite Coalition: Where Do We Begin? Click here.
This guide is intended to assist those states or groups that are considering forming coalitions by providing the tools necessary to begin building a state respite coalition. Although the focus is on respite coalitions in particular, the material can be used for building any coalition. The workbook was updated in 2009 to include additional references, more state examples, and the latest information on the Lifespan Respite Care Act and implications for State Respite Coalitions.
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Updated! Compendium of Fact Sheets related to State Coalitions, 2011, click here
This compendium of fact sheets, updated in October 2011, provides a state-by-state look at state respite coalitions that are affiliated with the ARCH Network (See State Respite Coalitions). Each fact sheet contains the following information on each state respite coalition: Start-Up Process and Coalition History; Structure; Staff; Funding; Membership; Meetings and Communication; Major Activities; Available Documents (Bylaws, Strategic Plans, Surveys, Brochures, etc.); and State Contact Information.
The compendium should be useful for state respite coalitions to educate their members and prospective members, family caregivers, funders, legislators and other policy makers about the resources they have available to provide assistance within their own states (each fact sheet has been formatted to stand alone as a separate document). The compendium provides meaningful guidance for new state respite coalitions or State Lifespan Respite Programs just getting started or to family caregivers , providers, state agencies or community-based organizations thinking about starting a new state respite coalition or looking for assistance. |
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Registration Now Open for 8th International Respite Conference
October 10-12, 2012 Toronto, Ontario, Canada
To Register, Click Here
Early Bird Deadline is June 1, 2012
Conference is Sponsored by the International Short Break Association (ISBA) with support from ISBA Founding Member -- ARCH
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| 2011 Conference Highlights Now Available. Click Here. |
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ARCH and the Family Caregiver Alliance are collaborating to provide Caregiver and Lifespan Respite T/TA. Click here for more information. |
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