Innovative and Exemplary:
Ryan House in Phoenix, Arizona, has been providing pediatric respite, life-enhancing therapeutic activities, and pediatric palliative and hospice care to help families navigate their children’s life limiting and end-of-life conditions. In existence for ten years, Ryan House serves 200 children and families each year through a continuity of care model in partnership with families and multiple medical and therapy providers. Children may stay up to 28 nights each year, with schedules varying according to family needs and preferences. On-line support is available to families 24/7, and volunteers are available to help families meet more global needs, such as grocery shopping. Families are supported in planning their children’s visit as well as their own use of respite time. Ryan House regularly collects process and outcome data, as well as cost data, and they intentionally diversify funding sources to support sustainability. Relationships with families are sustainable as well, as is evidenced by their beautiful Memorial Garden. To learn more about Ryan House or to take a virtual tour, visit their website.
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