Respite Care for Children with Complex Care Needs: A Literature Review.

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Study Aim/Purpose:  This study aimed to identify and summarize findings from qualitative research on parental perceptions and evaluation of respite care services for their children with complex needs. Summary of…

A group respite pilot project for children with special needs

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Study Aim/Purpose:  This paper describes feedback from caregivers and program staff on a pilot group out-of-home respite program for children with special needs, including those with physical, cognitive and/or developmental…

Uplifts, respite, stress, and marital quality of parents raising children with Downs Syndrome or Autism

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Study Aim/Purpose:  This study examined associations between perceived pleasant experiences (referred to as “uplifts”) and amount of respite care used on reported stress and marital quality among mothers and fathers…

Children with medical complexity: a scoping review of interventions to support caregiver stress

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Study Aim/Purpose: The authors conducted this review to identify and describe the full range of published studies on interventions for reducing the stress of caregivers of children with medical complexity…

The impacts of short break provision on families with a disabled child: an international literature review

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Study Aim/Purpose: This international literature review aims to assess the existing research evidence concerning the impacts of short breaks on families with disabled children.  Summary of Methods: The authors conducted…

A comparative cost-minimization analysis of providing pediatric palliative respite care before and after the opening of services at a pediatric hospice

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Study Aim/Purpose: This study sought to analyze changes in costs for the Children’s Hospital of Eastern Ontario (CHEO) ( a regional pediatric health care system in Canada) resulting from the…

Respite Care: Outcomes for Kinship and Non-Kinship Caregivers

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Study Aim/Purpose: This study, conducted “in a large urban area of a western state” sought to examine the outcomes associated with use of formal respite care services by kinship, foster,…

Dilemmas in the provision of own-home respite support for parents of young children with complex health care needs: evidence from an evaluation

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Study Aim/Purpose: To examine parent responses and effects of a nurse-led in-home respite support service for parents of young children with complex health care needs.  Summary of Methods: This is…

The influence of respite care on psychological distress in parents of children with developmental disabilities: a longitudinal study

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Study Aim/Purpose: The purpose of this study was to examine the benefits of inpatient respite services for children with developmental disabilities and their parents.  Summary of Methods: The study used…

Summer camps for chronically ill children: a source of respite care for mothers

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Study Aim/Purpose: The study’s purpose was to examine psychosocial benefits for mothers of a one-week overnight summer camp for chronically ill children. The authors note that “this study is the…