A Group Respite Pilot Project for Children with Special Needs
Research Recommendations included in the RAISE Family Caregiving and the Supporting Grandparents Raising Grandchildren (SGRG) Advisory Councils’ Reports to Congress
The RAISE Act Family Caregiving Advisory Council recently released its recommendations in an initial report to Congress. The report includes family caregiving policy opportunities, diverse family caregiving stories from across the…
Caregiver Respite: An Essential Component of Home-and Community-Based Long-Term Care
During the pandemic, flexibilities in formal respite services and creative informal strategies emerged to ensure meaningful breaks for family caregivers. In this letter, Dr. Utz, who is a member of…
Taking a Break: Daily Respite Effects of Adult Day Services as Objective and Subjective Time Away From Caregiving
This study investigated how objective and subjective breaks from caregiving were associated with caregivers’ daily emotional health. Caregivers reported an average of 7.12 respite hours on Adult Days Services (ADS)…
Daily sleep, well-being, and adult day services use among dementia care dyads
The purpose of this study was to examine the effects of Adult Day Services (ADS) use on sleep quality for people with dementia and their caregivers. The authors found that…
Community-Based Long-Term Services and Supports: Are the Needs of Older Adults and Their Caregivers Being Met?
The goal of this study was to assess the adverse consequences of unmet long-term services and supports (LTSS) needs, to identify if and how caregiving characteristics are associated with adverse consequences, and…
Implications of the COVID-19 Pandemic on Adult Day Services and the Families They Serve
To assess the impact of the pandemic on Adult Day Services (ADS), a twenty-item survey was used to examine services provided, staffing, finances, and plans to reopen. Twenty-two sites participating…
Does Adult Day Service Use Improve Well-Being of Black Caregivers of People Living With Dementia?
This study examined the association between the use of ADS and depressive symptoms among Black dementia caregivers. The authors found that Black dementia caregivers who utilized ADS had lower depressive…
Caregiver Quality of Life: How to Measure It and Why
The authors review the concept of caregiver quality of life (QOL) and offer recommendations for choosing and implementing a screening workflow. They suggest that “further research is needed to guide development…
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Respite for ME Grants First Year Evaluation Report
Kimberly Snow and Jayne Foley, Catherine Cutler Institute, December 2023 The 2021 Maine Jobs & Recovery Plan proposed by Governor Mills and approved by the State Legislature, established the Respite…
ARCH Provides Feedback on AHRQ’s Technical Brief Protocol for the Evidence Map on Home and Community Based Services (HCBS) project.
Select members of the ARCH Committee for Advancement of Respite Research joined ARCH in submitting recommendations to the Agency for Healthcare Research and Quality (AHRQ) on their Technical Brief Protocol…
ARCH Urges the National Institute on Disability, Independent Living and Rehabilitation Research to include research on respite and caregiving in Long-Range Plan
On October 13, 2023, the ARCH National Respite Network and Resource Center provided recommendations to the National Institute on Disability, Independent Living and Rehabilitation Research (NIDILRR) to include research on…
ARCH Awards Evaluation Mini-grants to four outstanding Innovative and Exemplary Respite Services
Each year since 2019, ARCH has been seeking and selecting respite services that meet a stringent set of criteria for innovation and excellence. The purpose of the ARCH Innovative and Exemplary…
Impact: Engaging Communities Underrepresented in Disability Research
ICI’s Research and Training Center on Community Living (RTC-CL), University of Minnesota, Spring 2023 This special issue of Impact highlights critical disability research questions derived from a State of the Science meeting…
The Senior Companion Program Plus (SCP Plus): Examining the Preliminary Effectiveness of a Lay Provider Program to Support African American Alzheimer’s Disease and Related Dementias (ADRD) Caregivers.
Xu, L.; Fields, N.L.; Williams, I.C.; Gaugler, J.E.; Kunz-Lomelin, A.; Cipher, D.J.; Feinhals, G. Int. J. Environ. Res. Public Health 2023, 20, 5380. A culturally informed, peer-led, lay provider model, the Senior…
Supporting social connection for people living with dementia: lessons from the findings of the TRIO study
Prendergast, L.M., Toms, G., Seddon, D., Jones, C., Anthony, B.F. and Edwards, R.T. (2023). Working with Older People, Vol. No. ahead-of-print. The purpose of this paper is to share the learning…
The United States Should Recognize and Support Caregiving Youth
Emma Armstrong-Carter, Catherine Johnson, Julia Belkowitz, Connie Siskowski, Elizabeth Olson, Social Policy Report, First published: 12 July 2021 Vol.34, Issue 2, p. 1-24 Over 5.4 million U.S. children and adolescents…
A University-Wide Survey of Caregiving Students in the US: Individual Differences and Associations with Emotional and Academic Adjustment
The United States does not track or support students in higher education who are caregivers. This study presents results from one of the first university-wide surveys of caregiving undergraduate and…
Cost-effectiveness of an in-home respite care program to support informal caregivers of persons with dementia: A model-based analysis
A previous comparative analysis of a respite intervention, in which caregivers were given a break from caregiving for at least five days while a trained professional cared for the person…
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