Short breaks for carers: a scoping review
Caregiver Quality of Life: How to Measure It and Why
The authors review the concept of caregiver quality of life (QOL) and offer recommendations for choosing and implementing a screening workflow. They suggest that “further research is needed to guide development…
Reducing the Impact of Dementia in America: A Decadal Survey of the Behavioral and Social Sciences
The National Institute on Aging of the U.S. Department of Health and Human Services requested that the National Academies of Sciences, Engineering, and Medicine conduct a consensus study to produce…
A Group Respite Pilot Project for Children with Special Needs
Being a caregiver for a family member or loved one with special needs is difficult. This pilot project documents the enthusiasm expressed by parents of children for accessible respite care…
Time for Living and Caring (TLC): A Virtual Coach to Maximize the Benefit of Respite Time Use
Prior research demonstrated that caregivers who used respite to do what they had most desired, needed, or had planned to do had the highest satisfaction with their time-use and reported…
Is Dementia-Specific Caregiving Compared With Non-Dementia Caregiving Associated With Physical Difficulty Among Caregivers for Community-Dwelling Adults?
The purpose of this study was to identify whether dementia caregiving is associated with physical difficulty among informal caregivers. Authors recommended that “Future studies should identify strategies to mitigate the…
Identifying Research Priorities in Adult Day Centers to Support Evidence-Based Care of Vulnerable Older Adults
The National Adult Day Services Association (NADSA) created a multistakeholder work group to identify priority areas for research to enhance the quality of services offered in Adult Day Centers (ADCs)…
Advancing Respite Research – Findings from the Respite Research Summit
On September 29 and 30, 2020, ARCH convened the virtual Respite Research Summit with more than 130 national and international participants. The Summit was a capstone event to an initiative by the…
$2.1 Million to Study Extended Family Caregivers of People with Dementia
The National Institute on Aging awarded a grant to two faculty members, Karen Roberto and Tina Savla, at Virginia Tech’s Center for Gerontology to examine the role of extended family…
Building the Research Pipeline: Home and Community-Based Services and the Dual-Eligible Population
In mid-January, hundreds of researchers convened to discuss how to bolster the quantity and quality of research around dual-eligible individuals and home-and community-based services. With dual-eligible individuals among the hardest…
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Caregiving in the U.S. 2025: Caring Across States
National Alliance for Caregiving and AARP, October 2025 Released just in time for National Family Caregivers Month, a new companion report to Caregiving in the U.S. 2025—Caring Across States—offers valuable insights…
The State Of Family Caregiving
Research conducted by the Columbia University Mailman School of Public Health and sponsored by Otsuka America Pharmaceutical, Inc. Nearly half of America’s states are on the brink of a caregiving…
America’s Unseen Workforce
Research conducted by the Columbia University Mailman School of Public Health and sponsored by Otsuka America Pharmaceutical. Approximately 45 million family caregivers in the United States are providing an estimated…
Respite for ME Grants First Year Evaluation Report
Kimberly Snow and Jayne Foley, Catherine Cutler Institute, December 2023 The 2021 Maine Jobs & Recovery Plan proposed by Governor Mills and approved by the State Legislature, established the Respite…
ARCH Provides Feedback on AHRQ’s Technical Brief Protocol for the Evidence Map on Home and Community Based Services (HCBS) project.
Select members of the ARCH Committee for Advancement of Respite Research joined ARCH in submitting recommendations to the Agency for Healthcare Research and Quality (AHRQ) on their Technical Brief Protocol…
ARCH Urges the National Institute on Disability, Independent Living and Rehabilitation Research to include research on respite and caregiving in Long-Range Plan
On October 13, 2023, the ARCH National Respite Network and Resource Center provided recommendations to the National Institute on Disability, Independent Living and Rehabilitation Research (NIDILRR) to include research on…
ARCH Awards Evaluation Mini-grants to four outstanding Innovative and Exemplary Respite Services
Each year since 2019, ARCH has been seeking and selecting respite services that meet a stringent set of criteria for innovation and excellence. The purpose of the ARCH Innovative and Exemplary…
Impact: Engaging Communities Underrepresented in Disability Research
ICI’s Research and Training Center on Community Living (RTC-CL), University of Minnesota, Spring 2023 This special issue of Impact highlights critical disability research questions derived from a State of the Science meeting…
The Senior Companion Program Plus (SCP Plus): Examining the Preliminary Effectiveness of a Lay Provider Program to Support African American Alzheimer’s Disease and Related Dementias (ADRD) Caregivers.
Xu, L.; Fields, N.L.; Williams, I.C.; Gaugler, J.E.; Kunz-Lomelin, A.; Cipher, D.J.; Feinhals, G. Int. J. Environ. Res. Public Health 2023, 20, 5380. A culturally informed, peer-led, lay provider model, the Senior…
Supporting social connection for people living with dementia: lessons from the findings of the TRIO study
Prendergast, L.M., Toms, G., Seddon, D., Jones, C., Anthony, B.F. and Edwards, R.T. (2023). Working with Older People, Vol. No. ahead-of-print. The purpose of this paper is to share the learning…
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