Research Recommendations included in the RAISE Family Caregiving and the Supporting Grandparents Raising Grandchildren (SGRG) Advisory Councils’ Reports to Congress

Ehc Senior Couple

ARCH Provides Feedback on AHRQ’s Technical Brief Protocol for the Evidence Map on Home and Community Based Services (HCBS) project.

Select members of the ARCH Committee for Advancement of Respite Research joined ARCH in submitting recommendations to the Agency for Healthcare Research and Quality (AHRQ) on their Technical Brief Protocol…

Young Man In A Wheelchair Outside

ARCH Urges the National Institute on Disability, Independent Living and Rehabilitation Research to include research on respite and caregiving in Long-Range Plan

On October 13, 2023, the ARCH National Respite Network and Resource Center provided recommendations to the National Institute on Disability, Independent Living and Rehabilitation Research (NIDILRR) to include research on…

Mini Grant Awards 1

ARCH Awards Evaluation Mini-grants to four outstanding Innovative and Exemplary Respite Services

Each year since 2019, ARCH has been seeking and selecting respite services that meet a stringent set of criteria for innovation and excellence. The purpose of the ARCH Innovative and Exemplary…

happy asian malay autism down syndrome female  bonding  with her father in city street

Impact: Engaging Communities Underrepresented in Disability Research

ICI’s Research and Training Center on Community Living (RTC-CL), University of Minnesota, Spring 2023 This special issue of Impact highlights critical disability research questions derived from a State of the Science meeting…

Assisted living

The Senior Companion Program Plus (SCP Plus): Examining the Preliminary Effectiveness of a Lay Provider Program to Support African American Alzheimer’s Disease and Related Dementias (ADRD) Caregivers.

Xu, L.; Fields, N.L.; Williams, I.C.; Gaugler, J.E.; Kunz-Lomelin, A.; Cipher, D.J.; Feinhals, G. Int. J. Environ. Res. Public Health 2023, 20, 5380. A culturally informed, peer-led, lay provider model, the Senior…

Happy elder Asian man using walker while walking for exercise around the garden with his son taking care of him at the retirement age with copy space

Supporting social connection for people living with dementia: lessons from the findings of the TRIO study

Prendergast, L.M., Toms, G., Seddon, D., Jones, C., Anthony, B.F. and Edwards, R.T. (2023). Working with Older People, Vol. No. ahead-of-print. The purpose of this paper is to share the learning…

1676144874242

The United States Should Recognize and Support Caregiving Youth

Emma Armstrong-Carter, Catherine Johnson, Julia Belkowitz, Connie Siskowski, Elizabeth Olson, Social Policy Report, First published: 12 July 2021 Vol.34, Issue 2, p. 1-24 Over 5.4 million U.S. children and adolescents…

Atlanta, GA, USA March 1 Prospective students and their parents take a college tour of the campus of the Georgia Institute of Technology in Atlanta

A University-Wide Survey of Caregiving Students in the US: Individual Differences and Associations with Emotional and Academic Adjustment

The United States does not track or support students in higher education who are caregivers. This study presents results from one of the first university-wide surveys of caregiving undergraduate and…

Dementia and Occupational Therapy - Home caregiver and senior adult woman

Cost-effectiveness of an in-home respite care program to support informal caregivers of persons with dementia: A model-based analysis

A previous comparative analysis of a respite intervention, in which caregivers were given a break from caregiving for at least five days while a trained professional cared for the person…

Grandmother And Granddaughter Baking Cookies

Research Recommendations included in the RAISE Family Caregiving and the Supporting Grandparents Raising Grandchildren (SGRG) Advisory Councils’ Reports to Congress

The RAISE Act Family Caregiving Advisory Council recently released its recommendations in an initial report to Congress. The report includes family caregiving policy opportunities, diverse family caregiving stories from across the…

Caregiver Respite: An Essential Component of Home-and Community-Based Long-Term Care

During the pandemic, flexibilities in formal respite services and creative informal strategies emerged to ensure meaningful breaks for family caregivers. In this letter, Dr. Utz, who is a member of…

Taking a Break: Daily Respite Effects of Adult Day Services as Objective and Subjective Time Away From Caregiving

This study investigated how objective and subjective breaks from caregiving were associated with caregivers’ daily emotional health. Caregivers reported an average of 7.12 respite hours on Adult Days Services (ADS)…

Daily sleep, well-being, and adult day services use among dementia care dyads

The purpose of this study was to examine the effects of Adult Day Services (ADS) use on sleep quality for people with dementia and their caregivers. The authors found that…

Community-Based Long-Term Services and Supports: Are the Needs of Older Adults and Their Caregivers Being Met?

The goal of this study was to assess the adverse consequences of unmet long-term services and supports (LTSS) needs, to identify if and how caregiving characteristics are associated with adverse consequences, and…

Implications of the COVID-19 Pandemic on Adult Day Services and the Families They Serve

To assess the impact of the pandemic on Adult Day Services (ADS), a twenty-item survey was used to examine services provided, staffing, finances, and plans to reopen. Twenty-two sites participating…

Does Adult Day Service Use Improve Well-Being of Black Caregivers of People Living With Dementia?

This study examined the association between the use of ADS and depressive symptoms among Black dementia caregivers. The authors found that Black dementia caregivers who utilized ADS had lower depressive…

Caregiver Quality of Life: How to Measure It and Why

The authors review the concept of caregiver quality of life (QOL) and offer recommendations for choosing and implementing a screening workflow. They suggest that “further research is needed to guide development…

Reducing the Impact of Dementia in America: A Decadal Survey of the Behavioral and Social Sciences

The National Institute on Aging of the U.S. Department of Health and Human Services requested that the National Academies of Sciences, Engineering, and Medicine conduct a consensus study to produce…

A Group Respite Pilot Project for Children with Special Needs

Being a caregiver for a family member or loved one with special needs is difficult. This pilot project documents the enthusiasm expressed by parents of children for accessible respite care…

Time for Living and Caring (TLC): A Virtual Coach to Maximize the Benefit of Respite Time Use

Prior research demonstrated that caregivers who used respite to do what they had most desired, needed, or had planned to do had the highest satisfaction with their time-use and reported…