Daily sleep, well-being, and adult day services use among dementia care dyads
Impact: Engaging Communities Underrepresented in Disability Research
ICI’s Research and Training Center on Community Living (RTC-CL), University of Minnesota, Spring 2023 This special issue of Impact highlights critical disability research questions derived from a State of the Science meeting…
The Senior Companion Program Plus (SCP Plus): Examining the Preliminary Effectiveness of a Lay Provider Program to Support African American Alzheimer’s Disease and Related Dementias (ADRD) Caregivers.
Xu, L.; Fields, N.L.; Williams, I.C.; Gaugler, J.E.; Kunz-Lomelin, A.; Cipher, D.J.; Feinhals, G. Int. J. Environ. Res. Public Health 2023, 20, 5380. A culturally informed, peer-led, lay provider model, the Senior…
Supporting social connection for people living with dementia: lessons from the findings of the TRIO study
Prendergast, L.M., Toms, G., Seddon, D., Jones, C., Anthony, B.F. and Edwards, R.T. (2023). Working with Older People, Vol. No. ahead-of-print. The purpose of this paper is to share the learning…
The United States Should Recognize and Support Caregiving Youth
Emma Armstrong-Carter, Catherine Johnson, Julia Belkowitz, Connie Siskowski, Elizabeth Olson, Social Policy Report, First published: 12 July 2021 Vol.34, Issue 2, p. 1-24 Over 5.4 million U.S. children and adolescents…
A University-Wide Survey of Caregiving Students in the US: Individual Differences and Associations with Emotional and Academic Adjustment
The United States does not track or support students in higher education who are caregivers. This study presents results from one of the first university-wide surveys of caregiving undergraduate and…
Cost-effectiveness of an in-home respite care program to support informal caregivers of persons with dementia: A model-based analysis
A previous comparative analysis of a respite intervention, in which caregivers were given a break from caregiving for at least five days while a trained professional cared for the person…
Research Recommendations included in the RAISE Family Caregiving and the Supporting Grandparents Raising Grandchildren (SGRG) Advisory Councils’ Reports to Congress
The RAISE Act Family Caregiving Advisory Council recently released its recommendations in an initial report to Congress. The report includes family caregiving policy opportunities, diverse family caregiving stories from across the…
Caregiver Respite: An Essential Component of Home-and Community-Based Long-Term Care
During the pandemic, flexibilities in formal respite services and creative informal strategies emerged to ensure meaningful breaks for family caregivers. In this letter, Dr. Utz, who is a member of…
Taking a Break: Daily Respite Effects of Adult Day Services as Objective and Subjective Time Away From Caregiving
This study investigated how objective and subjective breaks from caregiving were associated with caregivers’ daily emotional health. Caregivers reported an average of 7.12 respite hours on Adult Days Services (ADS)…
Community-Based Long-Term Services and Supports: Are the Needs of Older Adults and Their Caregivers Being Met?
The goal of this study was to assess the adverse consequences of unmet long-term services and supports (LTSS) needs, to identify if and how caregiving characteristics are associated with adverse consequences, and…
Implications of the COVID-19 Pandemic on Adult Day Services and the Families They Serve
To assess the impact of the pandemic on Adult Day Services (ADS), a twenty-item survey was used to examine services provided, staffing, finances, and plans to reopen. Twenty-two sites participating…
Does Adult Day Service Use Improve Well-Being of Black Caregivers of People Living With Dementia?
This study examined the association between the use of ADS and depressive symptoms among Black dementia caregivers. The authors found that Black dementia caregivers who utilized ADS had lower depressive…
Caregiver Quality of Life: How to Measure It and Why
The authors review the concept of caregiver quality of life (QOL) and offer recommendations for choosing and implementing a screening workflow. They suggest that “further research is needed to guide development…
Reducing the Impact of Dementia in America: A Decadal Survey of the Behavioral and Social Sciences
The National Institute on Aging of the U.S. Department of Health and Human Services requested that the National Academies of Sciences, Engineering, and Medicine conduct a consensus study to produce…
A Group Respite Pilot Project for Children with Special Needs
Being a caregiver for a family member or loved one with special needs is difficult. This pilot project documents the enthusiasm expressed by parents of children for accessible respite care…
Time for Living and Caring (TLC): A Virtual Coach to Maximize the Benefit of Respite Time Use
Prior research demonstrated that caregivers who used respite to do what they had most desired, needed, or had planned to do had the highest satisfaction with their time-use and reported…
Is Dementia-Specific Caregiving Compared With Non-Dementia Caregiving Associated With Physical Difficulty Among Caregivers for Community-Dwelling Adults?
The purpose of this study was to identify whether dementia caregiving is associated with physical difficulty among informal caregivers. Authors recommended that “Future studies should identify strategies to mitigate the…
Identifying Research Priorities in Adult Day Centers to Support Evidence-Based Care of Vulnerable Older Adults
The National Adult Day Services Association (NADSA) created a multistakeholder work group to identify priority areas for research to enhance the quality of services offered in Adult Day Centers (ADCs)…
Advancing Respite Research – Findings from the Respite Research Summit
On September 29 and 30, 2020, ARCH convened the virtual Respite Research Summit with more than 130 national and international participants. The Summit was a capstone event to an initiative by the…
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