Nine Steps to Respite 

Nine Steps to Respite: Fact Sheets for Family Caregivers

These fact sheets are a guide for getting the respite care you deserve. By reading the one most relevant to your caregiving situation, you will have a better understanding of the resources that are available, what you can expect and how to select a high-quality service that best meets the needs of your family.

ARCH's consumer focused fact sheets share with family caregivers the importance of respite and how to access it. The fact sheets lay out nine simple steps to help you assess your own needs, identify the different types of respite, and provide information on how to find and pay for services. The fact sheets will also help you plan and make the most of your respite time, better prepare your loved one for respite, offer guidance on orienting respite providers, and provide a comprehensive list of resources specific to the needs of the person in your care. 

 

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More fact sheets in the series coming soon!


Nine Steps to Respite Care for Family Caregivers of Persons with Dementia, including Alzheimer's Disease

Caregivers of family members with dementia including Alzheimer’s disease (D/AD) may face special challenges. Sometimes, individuals with dementia or Alzheimer’s disease have unique physical, emotional and behavioral conditions that require specialized care. For example, memory, decisionmaking abilities, and behaviorassociated with D/AD change over time. This results in changing roles within the family and the need for more intensive levels of care. Providing care can be complicated and challenging and will require careful planning.

It is important for you to be aware of a resource called respite care. Respite services can provide you with a much needed break away from your caregiving responsibilities and this fact sheet can help you find and use respite.
Download Fact Sheet (pdf)

This version below can be best viewed in full screen mode.

 

 

 

 

Nine Steps to Respite Care for Family Caregivers of Children and Adults with Intellectual and Developmental Disabilities (I/DD)

Are you a parent or family member providing support to a child or adult with an intellectual or developmental disability? You may engage in multiple roles in supporting the independence and overall quality of life of your family member and sometimes that role includes being a caregiver.

Caregivers of children and adults with intellectual and developmental disabilities (I/DD) may face additional challenges. Sometimes, individuals with disabilities have unique physical, emotional and behavioral conditions that require specialized care. For example, recent research has shown a growing incidence of early onset Alzheimer’s for people with Down syndrome. In addition, individuals with I/DD may have complex medical conditions or behavioral issues that require someone with relevant experience or training to provide support.
It is important for you to be aware of a resource called respite care. Respite services can provide you with a much needed break away from your caregiving responsibilities and this fact sheet can help you find and use respite.
Download Fact Sheet (pdf)

The version below can be best viewed in full screen mode.

 

 

Nine Steps to Respite Care for Military and Veteran Caregivers

prepared for the Elizabeth Dole Foundation - Hidden Heroes and published here with their permission.

Military and Veteran Caregivers may face special challenges. Sometimes, Veterans have unique physical, emotional and behavioral conditions that require specialized care. For example, younger Veterans may have traumatic brain injury, spinal cord injuries, amputations and post-traumatic stress disorder. Aging Veterans also may be diagnosed with dementia, including Alzheimer’s disease. Providing care for these Veterans can be complicated and challenging.  It is important for you to be aware of a resource called respite care. Respite services can provide you with a much needed break away from your caregiving responsibilities and this fact sheet can help you find and use respite.
Download Fact Sheet

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Nine Steps to Respite for Grandfamilies   

    My Post 2

If you are a grandparent or other relative caring for your grandchildren, nieces, nephews or other related children, you may be considered a “grandfamily.” The relationship between grandparents and grandchildren is often a very special one. For a growing number of grandparents, grandparenting really means full-time parenting for a second family.

This factsheet is a guide for getting the respite care you deserve. By reading it, you will have a better understanding of the resources that are available, what you can expect, and how to select a high quality service that best meets the needs of your family.

Download Fact Sheet (pdf)

The version below can be best viewed in full screen mode.