Applied Self-Direction - COVID-19 Resources for Self-Direction      

• Why States Should Expand Self-Direction in Response to COVID-19

• “Essential Worker” Identification Badge and Letter

• Measures And Strategies for Self-Direction in Response To COVID-19

National Caregiving Organization Resources

• Rosalyn Carter Institute for Caregiving - Caregiving During COVID-19 

• Family Caregiver Alliance - Coronavirus (COVID-19) Resources and Articles for Family Caregivers 

• National Alliance for Caregiving - Tips for Sandwich Generation Caregivers in the Era of COVID-19

• Elizabeth Dole Foundation – Hidden Heroes 10 Things You Need to Know About Coronavirus and  COVID-19 – Tips for Military and Veteran Caregivers 

• Caregiver Action Network – Caregiver Help Desk - Call 855-227-3640 or visit caregiveraction.org and Tips for Family Caregivers and COVID-19 

• National Alliance for Direct Support Professionals (NADSP) - COVID-19 Toolkit For DSPs: Resources to help DSPs take care of themselves during the crisis

Medicaid Policy Changes that Affect Caregivers

• State Medicaid Strategies to Maintain Access to Care for Children with Special Health Care Needs during the Pandemic by Kate Honsberger and Karen VanLandeghem, National Academy for State Health Policy, April 6, 2020

• States Modify Medicaid Home- and Community-Based Waivers to Respond to COVID-19 by Wendy Fox Grage, March 31, 2020, National Academy for State Health Policy

• COVID-19 Frequently Asked Questions (FAQs) for State Medicaid and Children’s Health Insurance Program (CHIP) Agencies -- Centers for Medicare and Medicaid Services.  See in particular, questions related to flexibilities for home- and community-based services, family caregivers, and home health and nursing facility providers and Q2. How can Appendix K support a state’s response to COVID-19 for 1915(c) Home and Community-Based Services (HCBS) Waivers?

• Emergency Preparedness and Response for Home and Community Based (HCBS) 1915(c) Waivers - CMS approved Appendix K documents by state

• HMA Review of State Appendix K Waivers in Response to Covid-19, Health Management Associates, April 1, 2020

• Centers for Medicare and Medicaid Services - Index of Coronavirus Emergency Resources

Government Resources

• ADvancing States:

• Federal Guidance on COVID-19 

• State Health Departments and Agencies - Materials on COVID-19

•  National Alzheimer's Project Act - Resources on Covid-19 For Caregivers and Older Adults

• Administration for Community Living (ACL) – COVID 19 - What do Older Adults and People with Disabilities Need to Know? 

• Centers for Disease Control (CDC) -  Manage Anxiety & Stress 

• CDC - Preventing the Spread of Coronavirus Disease 2019 in Homes and Residential Communities 

• CDC - Frequently Asked Questions and Answers on topic such as Coronavirus Disease 2019 (COVID-19) and Children 

• Department of Veterans Affairs, Caregiver Support Program,  Fact Sheet - Information for Caregivers During COVID-19

• Department of Veterans Affairs – Building Better Caregivers Online Course  and Caregiver Support Line at 855-260-3274

National Disability and Aging Organization Resources

• ADvancing States - Addressing Social Isolation for Older Adults During the COVID-19 Crisis

• The BREAK Exchange at the University of WI, School of Nursing - Archived Webinar Supporting Caregivers during the COVID-19 Pandemic  

• AARP - Weekly Live Q&A Event and Teletown Hall: The Coronavirus 

• AARP - Caregivers and Coronavirus: Dealing With Forced Isolation

• AARP -  Practical Tips for Caregivers Concerned About Coronavirus

• The Arc of the US - COVID-19 Resources for People With Disabilities, Families, and Service Providers

• Autism Society – Weekly Updates on COVID-19 Information Series  

• Family Voices – Coronavirus Resources from Trusted Sources

• Generations United -  COVID-19 Fact Sheet for Grandfamilies and Multigenerational Families

Lifespan Respite Network and State Coalition Resources

• State Respite Coalitions or State Lifespan Respite Programs

• Colorado Respite Coalition/Easterseals CO - spreadsheet of resources for family caregivers

• Respite Care Association of Wisconsin - Finding Your New Normal during COVID-19, Resources, Tips and Tricks - online training for caregivers and providers. 

• New York State Caregiving and Respite Coalition - Coronavirus Caregiving Resources 

• New York - Loneliness Scale tool was added to the NY State Office for the Aging (NYSOFA) Statewide Client Data System on April 3, 2020 as part of the comprehensive assessment and in the NY Connects and NY Connects Independent Living Centers (ADRC) workflow paths as additional screening.

• New York State Office for the Aging and PeerPlace - COVID-19 Form

• New Mexico Caregivers Coalition  (NMCC)  is participating in the  National Domestic Workers Alliance (NDWA) Coronavirus Care Fund.  NMCC is pre-qualifying its members for individual financial GRANTS  Immediate financial aid ($400 grant) is available to a home care worker, nanny, housecleaner or other frontline healthcare worker who is member of the Coalition. Caregivers--home care workers, personal care attendants, home health aides, nursing attendants, community health workers/representatives (CHWs and CHRs) or family caregivers who have previously attended a formal training of NMCC are eligible to apply.

Virginia Navigator

• COVID-19 Resources for People with Disabilities  

• Important COVID-19 Information for Older Adults, Caregivers, People with Disabilities, and Families 

• How Tech Tools Can Help Caregivers During COVID-19 and Social Distancing

Exploring Respite Opportunities and Options  from ARCH

Please find in the ARCH document below, resources that include informal community, relationship or technology supports that might provide respite opportunities or respite enhancements outside the formal respite services system.  While many of the suggestions are for respite in the community, there are also resources, such as links to online support groups and e-learning, virtual museum trips, technology supports, mindfulness, stress reduction and relaxation apps, and more that family caregivers can access from home to get a much needed break.  If you think of more ideas, send them to ARCH and we will add them to the list!