2019 Services

Exemplary Logo

The ARCH National Respite Network and Resource Center is proud to announce respite services selected as innovative and exemplary for 2019.

The following programs will be supported to attend the 2019 National Lifespan Respite Conference at the Buffalo Grand Hotel in Buffalo, NY, on May 2, 2019, for recognition of their respite services:

AGAPE SIGN Agape Respite Care, Inc., Berne, Indiana, provides in-home, community-based, and 24/7 out of home respite care from 2 hours up to 10 consecutive day stays, located in a residential setting enabling families to maintain their loved ones in their community. Trained Direct Support Professionals care for persons with intellectual and/or physical disabilities from birth and throughout the lifespan. Now in its 27th year of operation, Agape Respite Care has long partnerships with families of children who began respite as preschoolers and continued into adulthood. Their summer baseball program serves school age children through high school, and any individual receiving services from Agape Respite Care. Those wishing to keep playing after high school graduation continue to be welcomed, and some players are in their 15th season. Like their long relationships with families, Agape Respite Care has long relationships with staff members––some who have been with their organization for almost two decades. AGAPE HOUSE 2018
 NJ 2019 high res logo blue w words Caregiver Volunteers of Central Jersey/Alzheimer’s Respite Care Program, located in Toms River, New Jersey, has provided weekly, in-home respite care for persons with Alzheimer’s disease and dementia since 2002.  A careful process matches respite volunteers with caregivers, including matches with bilingual volunteers and a program matching Veteran volunteers to Veterans with dementia, or Veteran caregivers. The matching process, along with ongoing support and training for volunteers, results in quality services, improved quality of life among caregivers, and strong relationships between volunteers and families lasting years.  Some volunteers have been with the Alzheimer’s Respite Care Program since its inception. Through all their services, the program strives to keep older individuals in their homes and communities, and promote joy and connection to decrease social isolation and loneliness. Caregiver Volunteers of Central Jersey/Alzheimer’s Respite Care Program is currently developing a total program replication guide to support the growth of high quality, in-home respite care services for elders with dementia or Alzheimer’s disease.  Website Yvonne and mom px 2 really cute ARcP movie

George Mark logo with tagline

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George Mark Children's House, in San Leandro, California, provides individualized, residential medical care and caring attention to children birth to 22 years with complex physical and medical needs, offering parents and families respite from ongoing physical and emotional caregiving responsibilities. Opened in 2004 as the first facility of its kind in the U.S, services are offered 24 hours, 365 days a year. Individualized case management and service coordination are conducted by an interdisciplinary team providing therapeutic guidance and recommendations from medical, psychological, social, cultural and spiritual perspectives to develop a personalized care plan for every child and family in alignment with their goals and cultural values. George Mark recruits, trains and supports more than 200 volunteers who provide more than 8,500 hours of support. George Mark Children’s House is a model for and leader of the national movement to expand pediatric palliative care houses offering respite care through their work with the Like House Coalition.  Website  IMG 0474

 

 The following programs from across the country were also recognized as providing exemplary and innovative respite services:

 Rosie Place Logo Slogan 4C 2 A Rosie Place for Children in South Bend, IN, the first (and only) specialty hospital in Indiana, serving all 92 counties, exclusively supporting medically fragile children and their families by providing highly equipped hospital care for the most complex pediatric conditions in a home-away-from-home environment. During its 14-year history, A Rosie Place for Children has actively encouraged self-care for families beyond just “taking a break” and focuses on living and quality of life for children who are medically fragile. The number of families served at A Rosie Place for Children grows each year and 184 “sleepovers” ranging from one to ten nights were hosted last year! Families that are served by the respite program return again and again knowing their child is loved and receives exceptional skilled nursing care. A Rosie Place also offers quarterly events called HAVEN (Here and Visible––Educational Networking), bringing families together for the purpose of “engaging and empowering the community of families caring for children who are medically fragile,” by supporting parent-to-parent relationships and informal support systems. Website
 DoAD Black Logo Anne Arundel County Department of Aging and Disabilities Respite Care Referral Program in Glen Burnie, Maryland, operating since 1986, provides a lower-cost alternative to out-of-home care that allows frail older adults, and adults with disabilities, to remain in their homes. The Respite Care Referral Program maintains a registry of self-employed caregivers who have been screened and have received training through the Department of Aging and Disabilities.?After a telephone consultation and intake, clients and their families looking for assistance with meal preparation, shopping, transportation to doctors’ appointments, bathing, and other daily activities are provided with names and phone numbers of registry members who will provide personal and supportive in-home services, and who assume responsibility for the health, safety, and mental well-being of their clients and are alert to changes in the client’s status that may require further intervention of health professionals. Seventy-five percent of the respite care workers using the Respite Care Referral Program renew enrollment each year.  Website
 Official Arc logo color Assistance with Residential Care in the Home (ARCH) Respite Care, St. Louis Arc, St. Louis, MO is a consumer-directed respite service that helps a person with developmental disabilities live at home by providing intermittent, short-term relief to primary caregivers. It is one of the largest and longest running programs of this type in the United States. The program is open to any age person in St. Louis County and to people 3 years of age and older in St. Louis City who have been diagnosed with an intellectual or developmental disability, autism, cerebral palsy, epilepsy and more. Children and adults with medical or behavioral issues are also served. Each year, more than 1,400 families in St. Louis County, and 200 families in St. Louis City are served. The model is one of family-driven supports, implemented through a family reimbursement model paired with St. Louis Arc’s comprehensive family supports, information and resources and planning tools. Families are engaged in planning that includes not just how to successfully access and use respite care, but also what are the goals they want to accomplish through respite. Website 
cca america logo rgb1 Child Care Aware® of America Exceptional Family Member Program (EFMP) Respite Care in Arlington, VA has been serving military families across the country who have children birth to 17-years with special needs for ten years with high-quality, in-home childcare. Finding and paying for high-quality childcare for children with special needs presents significant challenges for military parents who are often away from their families’ support. Through EFMP Respite Care, eligible parents are helped to interview with and select from a pool of appropriately trained and screened providers who are matched to meet the special needs of the family. Care providers receive continuous training and mentoring geared to the special circumstances of the children in their care, and provided by local agencies near military. The local agencies work with families to find the providers who best match the special needs of the children.  Website 
Precious Time Claude Moore Precious Time in Harrisonburg, VA works with the James Madison University College of Health and Behavioral Studies to match nursing and health and human service students as respite care providers to children with special needs. Claude Moore Precious Time is a pediatric respite care program that works to create mutually beneficial relationships between caregivers and students in order to promote healthy outcomes for families of children by providing relief from daily responsibilities and demands, through individualized, trust-based respite care. The program also focuses on reaching underserved populations in rural parts of Virginia. The training provided to student respite care providers focuses on graduating confident, knowledgeable, and experienced health care professionals with a more comprehensive understanding of children with special needs and their families. Some students maintain strong relationships, celebrating birthdays and holidays, with children and families after student training has been completed.  Website 
Gios Grass RespiteTherapyFamily 2 1 Gio’s Garden, in Middleton, WI, is a therapeutic respite care program for children seven years and younger who have significant developmental or physical delays. In its eighth year of operation, Gio’s Garden fills service gaps by reaching children awaiting diagnoses or on waiting lists for other services. Gio’s Garden staff of recreation, art and occupational therapists and student interns provide more than 5,000 hours of service each year including Therapeutic Respite, pairing staff, interns, and volunteers with children to work on individualized child goals in an enriched environment. Respite 2 Go brings this enriched respite experience to underserved families across the county through partner agencies, and Date Night offers inclusive respite care to eligible children and their siblings allowing parents to spend time together without caregiving responsibilities. Fostering the health and wellbeing of families Family Resources include parent information sessions and support groups, family outings, social media, a Community Resource Database, and Family Events.  Website
 Masterpiece Ministry logo Masterpiece R&R Respite Care Program, Lincoln, NE, is a faith-based volunteer respite program where parents drop off their child(ren) with special needs of any age, along with siblings through age 13 for an evening, while background-checked volunteers care for them. There is no charge for the service. Children who are medically fragile or have behavior issues are welcome. Volunteer medical professionals are on site to care for any specific needs that might arise. The program also offers a buddy program for children, teens, and adults with special needs so that families can attend church on Sundays. See video of First Free Church Respite Events.  Website
 Providence House Logo Providence House in Cleveland, OH, established 37 years ago by Sister Hope Greener, maintains 30 beds to serve 350 children and 150 families with center-based crisis care. Between 200 and 300 families receive community-based family support each year. Services for children include: emergency shelter, direct care services, and medical care and monitoring. Services for parents include: case management/aftercare; parent support and education; family trauma services; family medical skills training. Providence House recently began offering an after care program of in-person case management for 6-12 months following a crisis, and a trauma informed group led by a social worker and peers as part of a discharge plan. Providence House participated in long-term outcomes study with Case Western Reserve University. In response to the multiple requests for information they receive each year, Providence House has developed a consulting menu and are in the process of developing a consulting/replication framework using a digital platform to allow ease in connecting and learning.  Website 
 Respite Care Inc Respite Care, Inc. in Fort Collins, CO, provides short-term respite care to 75 children with developmental disabilities from infancy to age 21, and up to six children in an overnight program. Working closely with families, Respite Care, Inc. plans activities that enhance child development, and provide children with opportunities to socialize, make friends, be creative, play, exercise, and participate in integrated community outings. Enhancement activities including music therapy, an annual teen prom, a 10-week summer day camp, a weeklong wilderness camp, ice cream socials, Respitalities (monthly events for Respite Care children and their siblings), and human-animal bonding experiences are designed to provide children with unique experiences, to promote their development, and to encourage them to move toward greater independence. As a member of Directors of Volunteers in Agencies, Respite Care, Inc. collaborates with other volunteer managers to research and discuss best practices in volunteer management.  Website 
 VBCN RGB LG Vanessa Behan Crisis Nursery in Spokane, WA, in operation more than 31 years, is designed to support parents and primary caregivers in a way that prevents the potential for abuse or neglect. Staff providing care seek to capitalize on opportunities to promote healthy brain development, build resiliency and provide children with an experience of safety, love and wonder. Services are voluntary, free of charge and available 24 hours a day, 7 days a week, 365 days a year so that whenever a parent is faced with challenging circumstances or a lack of a safe care alternative, they have a place to turn. Vanessa Behan Crisis Nursery serves an average 550 children from birth through age six, and will begin serving older children, and triple the number of children they serve, in 2020 when their new specially designed facility is completed. Website

 

 To read more about the selection process, click here