Recommended Common Data Elements for Respite Research
Recommended Common Data Elements for Respite Research
A white paper by the ARCH Committee for Advancement of Respite Research (CARR)
Purpose
The purpose of this white paper is to provide recommendations for the use of common data elements for respite research that align with the Value of Respite Model, developed by the ARCH Committee for Advancement of Respite Research (CARR). This paper is a companion document to the white paper Measuring the Value of Respite developed by the CARR.
Key Points
- There is an urgent need to identify, develop, and expand evidence-based and evidence-informed respite programs that improve caregiver outcomes.
- Current research and evaluation methods do not allow for meaningful comparison of data across and between studies, between respite models, between study populations across age, disability, culture, and caregiving circumstances, or over time.
- The use of common data elements that align with the Value of Respite Model is essential to advancing respite research.
Recommendations
The White Paper includes a set of key recommendations from the CARR related to Common Data Elements for Respite Research.
Recommended Common Data Elements are located in Appendix A of the white paper.
CDE Research Tools
Caregiver Experience with Respite Tool
Respite Model Description Tool
Data Elements Respite Research Worksheet
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