Nine Steps to Respite Care for Family Caregivers of Children and Adults with Intellectual and Developmental Disabilities (I/DD)

Are you a parent or family member providing support to a child or adult with an intellectual or developmental disability? You may engage in multiple roles in supporting the independence and overall quality of life of your family member and sometimes that role includes being a caregiver.

Caregivers of children and adults with intellectual and developmental disabilities (I/DD) may face additional challenges. Sometimes, individuals with disabilities have unique physical, emotional and behavioral conditions that require specialized care. For example, recent research has shown a growing incidence of early onset Alzheimer’s for people with Down syndrome. In addition, individuals with I/DD may have complex medical conditions or behavioral issues that require someone with relevant experience or training to provide support.

It is important for you to be aware of a resource called respite care. Respite services can provide you with a much needed break away from your caregiving responsibilities and this fact sheet can help you find and use respite.

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