Respite Research Summit Presentations
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Respite Research Summit Presentations
View and download the PowerPoint presentations of speakers
at the 2024 ARCH Respite Research Summit.
Welcome and Background
ARCH Intro Slides
Jill Kagan, MPH
Director
ARCH National Respite Network and Resource Center
Presentation of Committee for Advancement of Respite Research (CARR) Work
Measuring the Value of Respite White Paper and Framework and Recommended Common Data Elements for Respite Research White Paper
Kim Whitmore, PhD, RN
ARCH Consultant
Assistant Professor
College of Nursing
Marquette University
Sarah Swanson, MPH
Assistant Professor & Family Support Coordinator
Munroe-Meyer Institute
University of Nebraska Medical Center
National Initiatives that Align with the CARR’s Value of Respite Framework and Recommendations for Common Data Elements
Guiding an Improved Dementia Experience (GUIDE) Model Evaluation: Respite Care
Lynn Miescier, PhD, MHA
Center for Medicare & Medicaid Innovation
Centers for Medicare & Medicaid Services
Adult Day Services Outcomes and Data Collection – The Path Forward
William Zagorski
Board and Research Chair
National Adult Day Services Association (NADSA)
Creating and Advancing Caregiving Research and Evidence (CARE) Network
George Kueppers, PhD
Senior Research Manager
National Alliance for Caregiving
National Core Indicators
Laura Vegas
Director of Quality Initiativesand Supporting Families
National Association of State Directors of
Developmental Disabilities Services (NASDDDS)
Lindsay DuBois, PhD, MPH
Research Associate
Human Services Research Institute (HSRI)
Developing Research-Ready Respite Services - Featuring ARCH Innovative and Exemplary Respite Services Evaluation Grantees
Susan Janko Summers, PhD
Panel Moderator
ARCH National Respite Network and Resource Center
Elaine Whitford
Executive Director
Center for Volunteer Caregiving
Cary, NC
Hyuntae Kim, MSW
Program Director
James Madison University (JMU)
Claude Moore Precious Time
Harrisonburg, VA
JoLynne Bartley, MPA
Associate Director of Children & Youth Services
JMU IIHHS
Harrisonburg, VA
Julianne Secrist, MSN, RN
Academic Director
Assistant Professor
JMU School of Nursing
Harrisonburg, VA
Amy Knapton Vega, MSW
Executive Director
Vanessa Behan
Spokane, WA
Innovative and Exemplary Respite Services Evaluation Data Briefs:
Emerging National, State, and Local Respite Services Evaluations
Center for Dementia Respite Innovation: Overview and Evaluation Plan
Rebecca Utz, PhD
Associate Dean of Research and Graduate Education and Professor
Department of Sociology
College of Social and Behavioral Science
University of Utah
Joseph Gaugler, PhD
Director
Center for Health Aging & Innovation
Division of Health Policy and Management
School of Public Health
University of Minnesota
Massachusetts Respite Innovation Grants Evaluation
Sarah Harrigan, MPA, PMP
Senior Consultant
Aging and Disability Services
Public Consulting Group
Amy Nazaire, MA
Regional Self Direction Manager
Massachusetts Department of Developmental Services
Evaluation of Exhale - The Family Caregiver Initiative
Linda Weiss, PhD
Senior Researcher
Center for Evaluation and Applied Research
The New York Academy of Medicine
Focus on Diversity, Equity, Inclusion, and Accessibility in Respite Research
Kim Whitmore, PhD, RN
Assistant Professor
College of Nursing
Marquette University
Philanthropy’s Role in Advancing a Respite Research Agenda that Addresses the Diverse Needs of Family Caregivers
Rani Snyder, MPA
Vice President
Program
The John A. Hartford Foundation
Ken Genewick, MBA
Vice President of Programs
Health Foundation for Western and Central New York
Culturally and Linguistically Competent Respite Research
Cultural and Contextual Adaptations of Adult Day Services: Enhancing Inclusivity and Relevance in Respite Care
Lauren J. Parker, PhD, MPH
Associate Scientist
Department of Health, Behavior and Society
Johns Hopkins Bloomberg School of Public Health
Understanding the Respite Care Experience of Latinx Families of Children with Special Health Care Needs (CSHCN)
Kim Whitmore, PhD, RN
Assistant Professor
College of Nursing
Marquette University
Community-Engaged Research
Kadijha Marquardt-Davis, MSW
ECCHO Program Director/Director of Advocacy & Civic Health
ECCHO - Engaging Communities to Change Health Outcomes
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