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Caregiver Quality of Life: How to Measure It and Why

September 1, 2021
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The authors review the concept of caregiver quality of life (QOL) and offer recommendations for choosing and implementing a screening workflow. They suggest that “further research is needed to guide development…

Reducing the Impact of Dementia in America: A Decadal Survey of the Behavioral and Social Sciences

September 1, 2021
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The National Institute on Aging of the U.S. Department of Health and Human Services requested that the National Academies of Sciences, Engineering, and Medicine conduct a consensus study to produce…

A Group Respite Pilot Project for Children with Special Needs

August 13, 2021
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Being a caregiver for a family member or loved one with special needs is difficult. This pilot project documents the enthusiasm expressed by parents of children for accessible respite care…

Lifespan Respite Funding

August 2, 2021
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On July 29th, the House passed H.R. 4502, the “minibus” FY 2022 appropriation package to fund the Departments of Labor, Health and Human Services, Education, Agriculture, Energy, Interior, Veterans Affairs, Transportation,…

Advancing Home and Community-Based Services Through Budget Reconciliation

August 2, 2021
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Congress is finalizing budget top level numbers that will give Congressional committees direction on creating the final budget reconciliation package. Budget reconciliation requires a simple majority in the Senate for…

House Committee Approves FY 2022 Funding Bill with $14.2 million for the Lifespan Respite Care Program and increases for NFCSP 

July 15, 2021
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Today, July 15, the House Labor-HHS-Education Appropriations Committee approved the FY 2022 appropriations bill for programs in its jurisdiction. The bill includes $14.2 million for the Lifespan Respite Care Program,…

Fiscal Year 2022 Appropriations Update

June 21, 2021
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On June 21, the National Respite Coalition sent a letter from 52 national organizations to House and Senate Appropriations Committee requesting $14. 2 million for the Lifespan Respite Care Program in FY…

Time for Living and Caring (TLC): A Virtual Coach to Maximize the Benefit of Respite Time Use

June 1, 2021
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Prior research demonstrated that caregivers who used respite to do what they had most desired, needed, or had planned to do had the highest satisfaction with their time-use and reported…

15 House Members Send Congressional Letter Urging a Doubling in Funding for Lifespan Respite in FY 22

May 10, 2021
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On April 28, 15 Members of the House of Representatives from both parties sent a letter to the Labor-HHS-Education Appropriations Committee requesting $14.2 million for the Lifespan Respite Care Program…