ARCH Fact Sheets


Fact Sheets are available from ARCH at no charge as downloadable pdf documents. For best document viewing in Calameo magazine format, if available, view in full screen mode.

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Respite for Special Populations


Respite for Families Caring for Children Who Are Medically Fragile

Medically complex or medically fragile infants and children have numerous medical needs resulting from multiple chronic conditions, technology dependence, and/or complex medication treatments. This fact sheet is intended to provide a basic overview of useful information for respite providers who work with individuals and families with children who are medically fragile. It is also meant to assist Lifespan Respite grantees and their collaborators by increasing their understanding of the unique needs of this population and their family caregivers. Printable pdf button 


Siblings of Children with Special Health and Developmental Needs

Discussion of the typical concerns of sisters and brothers and how to create programs that address their specific needs. Provides a checklist for organizations to assess their inclusion of sisters and brothers. Written by Donald Meyer, Director, Sibling Support Project. Printable pdf_button


Respite for Foster Parents

Discusses value of respite services for maintaining and enhancing foster family placements. Offers unique program considerations, foster parent concerns, and tips for respite provider recruitment, screening, training, and retention. Printable pdf_button 


Respite for Caregivers of Children with Serious Emotional Disturbance

Finding respite services for a child with challenging behavioral issues can be difficult for families. This fact sheet discusses the definition and characteristics of emotional disturbance, issues for families, program considerations including the referral process, the matching of respite providers and families, training, and evaluation, as well as the need for state involvement in program planning. Written by Susan Dougherty, ARCH Consultant and reviewed by Louise Barnes, Ph.D., Mental Health Program Planner, Office of Children and Youth, Division of Mental Health Services, TN Department of Mental Health and Substance Abuse Services, and Terry Butler, Inclusive Child Care Program, Oregon Council on Developmental Disabilities.  Printable PDF pdf button   List of Statewide Family Networks for Children's Mental Health


Respite for Adults with Mental Health Disorders 

Because of the unique nature of their respite needs, this fact sheet focuses on respite for family caregivers of individuals with mental health issues who are between the ages of 18 and 60. It is meant to assist state agencies, Lifespan Respite grantees and their collaborators, and respite providers by increasing their understanding of the unique needs of this population and their family caregivers.  Printable pdf_button


Respite for Rural Family Caregivers: Overcoming the Challenges

Family caregivers living in rural and frontier areas face unique challenges to accessing supports, including respite, regardless of the age or condition of the care recipient. Family caregiving can be stressful, but when faced with fewer job opportunities and financial resources, limited access to health and social services, transportation barriers and the geographic isolation that predominate in many rural areas, family caregivers may experience added stressors. The purpose of this fact sheet is to present a clear picture of care recipients and their caregivers who live in rural and frontier areas and to offer suggestions to assist family caregivers, respite providers and administrators, and Lifespan Respite grantees in finding or developing respite resources. Printable  pdf button


Respite for Adoptive Families

Respite, a short break for caregivers and their families, is an important support service for parents who have adopted a child. It is particularly important for families who adopt a child with developmental, health related, or emotional needs, or one who has experienced abuse or neglect. This fact sheet provides strategies to help respite providers and administrators, and Lifespan Respite grantees and their partners, address the needs of adoptive families using respite services. Families of adopted children should find useful resources as well.  Printable pdf_button



Respite Services to Support Grandfamilies

Many of the challenges facing grandfamilies who have become the primary caregivers for relative children are unique. This fact sheet, written by staff of the Generations United, covers these unique considerations and offers suggestions for support, funding opportunities, and examples of respite programs that provide appropriate options for grandfamilies. Written by Ana Beltran, Special Advisor to Generations United's National Center on Grandfamilies, and Jaia Peterson Lent, Deputy Executive Director at Generations United in Washington, DC.  Printable PDF pdf button

See also Nine Steps to Respite for Grandfamilies


Respite for Individuals with Neurological Conditions

Millions of adults in the United States live with various neurological conditions, including epilepsy, Alzheimer's disease and other dementias, cerebrovascular disease including stroke and headache, Amyotrophic Lateral Sclerosis (ALS), Multiple Sclerosis (MS), Parkinson's Disease, brain tumors, and acquired (ABI) or traumatic brain injury (TBI). Many, depending on the severity or progression of their condition, rely on family members, friends, or other volunteers to help them throughout the day.  However, respite for this group of individuals is difficult for family caregivers to find and to access due to limited respite options and funding sources. This fact sheet provides an overview of the population of adults with neurological conditions, and discusses considerations that families, respite providers, other program administrators and state Lifespan Respite grantees should take into account in relation to accessing or providing respite to family caregivers of these individuals. Printable pdf button 


Respite for Family Caregivers of Persons with Dementia, including Alzheimer's Disease

Dementia, including Alzheimer's disease, affects millions of people in the U.S. and their families. This disease affects a person's ability to communicate and perform everyday activities. Consequently, a diagnosis can result in tremendous physical, psychological, and financial stress in the family. This fact sheet provides background for respite providers and will also help Lifespan Respite grantees create strategies to improve respite access and quality for this population.  Family caregivers may also find useful resources here. Printablepdf button    See also Nine Steps to Respite for Family Caregivers of Persons with Dementia, including Alzheimer's



Respite for Family Caregivers of Children and Adults with Intellectual and Developmental Disabilities (I/DD)

This fact sheet provides a basic overview of useful information for respite providers who work with individuals and families caring for someone with I/DD. It is also meant to assist Lifespan Respite grantees and their collaborators by increasing their understanding of the unique needs of this population and their family caregivers. Useful information is also provided for family caregivers.   Printable PDFpdf button  See also Nine Steps to Respite for Family Caregivers of Children and Adults with Intellectual and Developmental Disabilities (I/DD)


Respite for Individuals with Autism 

This fact sheet provides a basic overview of useful information for respite providers who work with individuals and families affected by Autism Spectrum Disorders. It is also meant to assist Lifespan Respite grantees and their collaborators by increasing their understanding of the unique needs of this population and their family caregivers. Such insight and direction will help State Lifespan Respite programs and others develop strategies to increase respite quality, access, and capacity for this population through partnerships with community-based services and enhanced provider recruitment and training efforts. It is also intended to offer resources for family caregivers seeking to expand respite opportunities for themselves and others.  Printable PDFpdf_button 


Respite for Caregivers of Veterans

Respite for caregivers of Veterans from all eras is a recognized, but often unmet need. Special considerations for the development and implementation of respite care for caregivers of younger Veterans with disabilities, and new ways to improve access to services, may be required. This fact sheet provides a basic review of respite issues for providers who work with Veterans and their caregivers. It will also help Lifespan Respite grantees better understand the unique needs of Veterans. Such insights will help State Lifespan Respite programs and others be better positioned to create strategies that address these needs and thereby increase access, quality of services and provider training to serve this population. Family caregivers may also find useful resources here.  Printable PDFpdf button  See also Nine Steps to Respite for Military Caregivers


Types of Respite


Crisis Nursery Care: Respite for Children at Risk of Abuse and/or Neglect

Crisis nurseries, also known as crisis or emergency care, provide temporary respite for families experiencing challenging life circumstances that place their children at risk for abuse and/or neglect. Created to provide immediate stress relief for parents and caregivers in times of crisis, the care provided by most nurseries can be accessed any time of the day or night and is offered free-of charge.  This fact sheet includes a definition of crisis nursery services, information about program models and how families can access services, research on the benefits of crisis care, and listing of resources and references for further information.     Printable pdf pdf_button   

See also  List of Crisis Nurseries.



Emergency Respite: Help for Family Caregivers in Critical Times of Need

This fact sheet highlights a variety of situations where respite may be needed in the event of a family or personal emergency and is designed to help state agencies, community and faith-based respite providers, Lifespan Respite grantees and their collaborators understand the unique needs of this population of caregivers. Examples of state-funded or community-based emergency respite initiatives and possible funding sources are also provided. The fact sheet includes special considerations for family caregivers, respite providers and administrators, and Lifespan Respite grantees and their partners when using, planning for or implementing emergency respite services. Printable PDFpdf button 


Volunteer Respite: Valuable Resources

How-to's of screening, selecting, placing, and training volunteers. Outlines various ways that volunteers can be utilized and provides tips for retaining volunteers over time. Highlights national and local volunteer respite programs.   Printable PDFpdf button


Respite and the Faith Community

The purpose of this fact sheet is to identify and provide information on how faith communities can provide or support respite services as well as offer guidance to respite programs on ways to partner with faith communities to expand the reach of their services. Resources and information include the benefits of respite-faith community partnerships, examples of respite and faith community initiatives, and innovative and exemplary faith-based respite models. Printable PDFpdf button


Adult Day Services and Respite

Adult Day Services (ADS) provide a break (respite) to the caregiver while providing health related and therapeutic services and social activities for adults with a wide variety of care needs, including those with Alzheimer’s disease and related dementias, developmental, intellectual, physical and/or other cognitive disabilities and other conditions that increase their care needs. This fact sheet is a primer on Adult Day Services, providing background on who uses adult day services, the benefits of ADS, and the types of ADS and the services provided.  It explores innovative models of ADS and provides information for family caregivers and those who assist them on how to find and choose quality ADS, and how to pay for it.  Printable pdf_button 


Program Administration


Transportation Access and Respite Care: Critical Information for Family Caregivers, Care Recipients, and Respite Providers

This fact sheet, prepared by ARCH and Easter Seals with Easterseals Transportation Group and Everline Consulting, LLC, provides strategies for identifying transportation options and eliminating transportation barriers related to the provision and receipt of respite care. It addresses the importance of transportation and how to help family caregivers, providers and Lifespan Respite programs identify community transportation resources; determine the best transportation options; include transportation in the respite planning process;and create transportation options that meet the needs of family caregivers, care recipients, and respite workers and volunteers.   Printable PDF pdf button 


Cultural Responsiveness in Family Services

To fully achieve the goals of respite and crisis care and other family support services, it is essential that all aspects of program operations, staff development and training incorporate and support cultural responsiveness. The shift to cultural responsiveness and multicultural programming will require change, risk-taking, training, courage, and coordinating a variety of new and different resources. Written by Shirley Pinder Cook, M.Ed., a private consultant with more than twenty years of experience providing educational and social services to diverse populations in a variety of work settings across the country.  Printable pdf_button 


Risk Management

Details the liability risk to programs and provides five steps for managing those risks. Points out the value of sound agency structure as a risk management tool, the need for a risk management policy statement, and ways to address parental concerns and confidentiality. Written by Becky Montgomery, planner, consultant, and trainer in child abuse and neglect issues.  Printable pdf_button


Advisory Boards and Boards of Directors

Distinguishes between the roles and responsibilities of advisory boards and boards of directors. Offers tips on the recruitment, training, and retention of board members. Written by Sue McKinney-Cull, ARCH Regional Coordinator and Nancy Smith, Associate Director of ARCH.   Printable pdf_button 


How Fundraising Flows From Strategic Planning

Explanation of the interrelationship between strategic planning, marketing, and fundraising. Includes a step-by-step strategic planning process. Printable PDFpdf_button 


Some General Principles of Charitable Nonprofit Fundraising

Examination of funding basics and the role of boards; long range and strategic market plans; different funding strategies; and funding goals.   Printable PDFpdf_button


Sticky Figures: Using a Needs Assessment

A thorough examination of the process of developing, implementing, and documenting a needs assessment. Various data collecting methods are examined in detail. Written by David B. Langmeyer, evaluation consultant.   Printable pdf_button

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