Annotated Bibliography of Respite and Crisis Care Services
ARCH prepared its first Annotated Bibliography of Respite and Crisis Care in 2002 and has periodically updated it since then. Two compilations are available -- the 2002 Second Edition annotating research published before 2002, and the 2020 5th Edition, which includes studies published between 2002 through 2020.
Annotated Bibliography of Respite and Crisis Care Studies, 6th Edition, 2022
Annotated Bibliography of Respite and Crisis Care Studies, 2nd Edition, 2002
Studies were included if they documented outcomes of respite care for family caregivers, care recipients, families or communities, including cost-benefit studies. Each annotation includes a complete citation; the study’s aim or purpose; a summary of methods; a summary of key results; key study limitations as cited by the authors; and a summary of the authors’ discussion and conclusions. Articles are grouped as follows: 1) respite targeted to children; 2) respite targeted to older adults; 3) respite targeted to adults with developmental disabilities; 4) respite targeted to multi-age groups; 5) caregiver support for Veterans and their caregivers; 6) literature reviews/meta-analyses of respite care studies; and 7) methodological issues in research on respite and caregiver interventions.
Bibliography Search
You can search here for individual study annotations.
Study Aim/Purpose: This study, part of a broader evaluation of 14 adult day programs in Alberta, Canada, sought to measure the impact of the programs on the caregivers of elderly relatives and the degree of caregiver satisfaction with the program. Summary of Methods: A time series research design was used…
Study Aim/Purpose: This study explored the utilization of formal and informal respite services by foster, adoptive and kinship parents, as well as the association between each of these kinds of respite on family experiences, ability to care for their children, and stress levels. Summary of Methods: Using a cross sectional…
Study Aim/Purpose: The aim of this study was to examine the impact of residential care on disruptive behavior displayed by older adults, particularly those with dementia. Summary of Methods: The study used a quasi-experimental, longitudinal, single group design. Over a 12-month period 100 older adults (mean age of 81.8 years),…
Study Aim/Purpose: The purpose of this study was to explore the experiences of persons with amyotrophic lateral sclerosis (ALS) and their care partners with caregiving and respite care, as well as the perceived effects of in-home respite care. Summary of Methods: Thirty-one dyads of people with ALS and their partners…
Study Aim/Purpose: The three main study research questions were: (1) What was the determining factor in the transition to the role of family caregiver?; (2) In what ways do awareness of respite programming and actual utilization of respite impact resilience outcomes?; and (3) If the use of respite programming has…
Study Aim/Purpose: This study seeks to describe how parents viewed the strengths and limitations of the respite component of a children’s hospice program (Canuck Place, Vancouver, British Columbia) during its first 30 months of operation. Summary of Methods: This was a qualitative study involving in-person interviews with 18 parents and…
Study Aim/Purpose: This international literature review aims to assess the existing research evidence concerning the impacts of short breaks on families with disabled children. Summary of Methods: The authors conducted electronic literature searches using ASSIA, PsycInfo, CINAHL, and Web of Science, and also sent requests for information to select email…
Study Aim/Purpose: The aim of the study was to summarize and analyze existing research on the influence of adult day care centers (DCCs) for people with dementia on family caregivers. Summary of Methods: The review used an integrative review framework to summarize findings of peer-reviewed published qualitative and quantitative studies…
Study Aim/Purpose: The purpose of this study was to examine the benefits of inpatient respite services for children with developmental disabilities and their parents. Summary of Methods: The study used a quasi-experimental pre-post design comparing survey responses for families who applied for and received 3-7 day inpatient services at a…
Study Aim/Purpose: The study’s aim was to examine whether increasing outpatient respite and therapeutic services resulted in reduced use of psychiatric hospitalizations among children with autism spectrum disorders (ASDs) Summary of Methods: The authors used a retrospective cohort study to examine the association of respite and therapeutic outpatient service use…
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