Annotated Bibliography of Respite and Crisis Care Services

ARCH prepared its first Annotated Bibliography of Respite and Crisis Care in 2002 and has periodically updated it since then. Two compilations are available -- the 2002 Second Edition annotating research published before 2002, and the 2020 5th Edition, which includes studies published between 2002 through 2020.

Annotated Bibliography of Respite and Crisis Care Studies, 6th Edition, 2022

Annotated Bibliography of Respite and Crisis Care Studies, 2nd Edition, 2002

Studies were included if they documented outcomes of respite care for family caregivers, care recipients, families or communities, including cost-benefit studies. Each annotation includes a complete citation; the study’s aim or purpose; a summary of methods; a summary of key results; key study limitations as cited by the authors; and a summary of the authors’ discussion and conclusions. Articles are grouped as follows: 1) respite targeted to children; 2) respite targeted to older adults; 3) respite targeted to adults with developmental disabilities; 4) respite targeted to multi-age groups; 5) caregiver support for Veterans and their caregivers; 6) literature reviews/meta-analyses of respite care studies; and 7) methodological issues in research on respite and caregiver interventions.

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The relationship between respite care and child abuse potential in parents of children with developmental disabilities: A preliminary report.

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Study Aim/Purpose: The study’s aim was to examine the longitudinal impact of short-term inpatient respite care services on child abuse potential and family relationships among parents of children with developmental disabilities. Summary of Methods: Researchers employed a quasi-experimental pre-post design comparing outcomes among a sample of 14 parents or primary…

The types and functions of social supports used by parents caring for a child with autism spectrum disorder

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Study Aim/Purpose: The purpose of this study was to document the kinds of social support used by parents caring for children with autism spectrum disorder (ASD) and to understand how they characterize the benefits and effectiveness of these supports for them as caregivers.  Summary of Methods: The study design was…

Time for Living and Caring: An intervention to make respite more effective for caregivers.

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Study Aim/Purpose: This pilot study presents the rationale for a description of a promising intervention to enhance the effectiveness of respite services for family caregivers. The intervention pilot tested, Time for Living ad Caring (TLC), is founded on the understanding that respite, to be effective, should allow caregivers to tend…

Two different primary care approaches for caring for people with dementia and their families

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Study Aim/Purpose:  The authors compare the experience and perspectives of primary care providers using the widely disseminated New Zealand Framework for Dementia Care to that of primary care providers in Vermont working in a statewide, value-based all-payer accountable-care system. Summary of Methods: The authors conducted semi-structured interviews with five general…

Uplifts, respite, stress, and marital quality of parents raising children with Downs Syndrome or Autism

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Study Aim/Purpose:  This study examined associations between perceived pleasant experiences (referred to as “uplifts”) and amount of respite care used on reported stress and marital quality among mothers and fathers of children with autism spectrum disorder (ASD) and Down Syndrome (DS). Summary of Methods:  This cross-sectional study collected information using…

What are the consequences of caring for older people and what interventions are effective for supporting unpaid carers? A rapid review of systematic reviews.

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Study Aim/Purpose:  The authors conducted a review and synthesis of published systematic literature reviews on available findings and gaps in the literature on the impact of caring for older adults on unpaid caregivers and interventions that aim to improve their health and well-being. Summary of Methods:  The authors conducted “a…