Annotated Bibliography of Respite and Crisis Care Services
ARCH prepared its first Annotated Bibliography of Respite and Crisis Care in 2002 and has periodically updated it since then. Two compilations are available -- the 2002 Second Edition annotating research published before 2002, and the 2020 5th Edition, which includes studies published between 2002 through 2020.
Annotated Bibliography of Respite and Crisis Care Studies, 6th Edition, 2022
Annotated Bibliography of Respite and Crisis Care Studies, 2nd Edition, 2002
Studies were included if they documented outcomes of respite care for family caregivers, care recipients, families or communities, including cost-benefit studies. Each annotation includes a complete citation; the study’s aim or purpose; a summary of methods; a summary of key results; key study limitations as cited by the authors; and a summary of the authors’ discussion and conclusions. Articles are grouped as follows: 1) respite targeted to children; 2) respite targeted to older adults; 3) respite targeted to adults with developmental disabilities; 4) respite targeted to multi-age groups; 5) caregiver support for Veterans and their caregivers; 6) literature reviews/meta-analyses of respite care studies; and 7) methodological issues in research on respite and caregiver interventions.
Bibliography Search
You can search here for individual study annotations.
Study Aim/Purpose: This study investigates whether and how use of Adult Day Services (ADS) is associated with improved regulation of cortisol for caregivers. Summary of Methods: The study followed 158 family caregivers who lived with individuals with dementia who were attending ADS at least two days a week. After an…
Study Aim/Purpose: This study investigated the association between caregivers’ subjective well-being and the health status of their care-receiver, hours of informal caregiving they provide, and the reported burden of caregiving. The study also examined how supports—both formal and informal—used by caregivers mediate or buffer against diminished caregiver well-being. Summary of…
Study Aim/Purpose: This is a summary of caregiver interventions and their effectiveness for the following major types of interventions: (1) information and education, (2) psychoeducation, (3) respite care, (4) counseling, (5) peer support, (6) the use of technology, and (7) multicomponent interventions. Summary of Methods: The paper summarizes information from…
Study Aim/Purpose: The authors conducted this review to identify and describe the full range of published studies on interventions for reducing the stress of caregivers of children with medical complexity (CMC). Summary of Methods: The authors conducted a broad systematic “scoping” review of the Cumulative Index to Nursing and Allied…
Study Aim/Purpose: This study examined the self-efficacy impacts of an intervention targeted to caregivers of individuals with Alzheimer’s diseases, with a specific focus on differences in effects on African American versus Caucasian caregivers. Summary of Methods: This study evaluated the Resources for Enhancing Alzheimer’s Caregiver Health (REACH II) intervention, using…
Study Aim/Purpose: This study examined trends in the use of VA-purchased long-term services and supports (LTSS) to determine whether there is an association between participation in the Veterans’ Administration (VA)’s Program of Comprehensive Assistance for Family Caregivers (PCAFC)1 and Veteran use of home and community based services (HCBS) and institutional…
Study Aim/Purpose: This study examines the early impact of a Veterans Administration program called the Program of Comprehensive Assistance for Family Caregivers (PCAFC).1 Summary of Methods: This study used a quasi-experimental pre/post retrospective cohort design, comparing veteran health care utilization and costs at six month intervals for up to 36…
Study Aim/Purpose: This study sought to determine the cost-effectiveness of an in-home respite care program administered by a nonprofit organization in Belgium. Summary of Methods: To determine cost-effectiveness, the study compared costs of care and quality of life years (QALYs) for an in-home respite care program plus standard community-based dementia…
Study Aim/Purpose: This study sought to describe the program participants and services and begin to e the impact of crisis nurseries for children and families in Illinois. Summary of Methods: This cross sectional study analyzed administrative data reported by five crisis nurseries to the Illinois Department of Human Services for…
Study Aim/Purupse: This study investigated the effect of crisis nursery services on the length of stay infants and young children in foster care and other differences in placement outcomes when child welfare services were terminated. Summary of Methods: of Using Illinois state program data, the study authors compared foster care…
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