Annotated Bibliography of Respite and Crisis Care Services

ARCH prepared its first Annotated Bibliography of Respite and Crisis Care in 2002 and has periodically updated it since then. Two compilations are available -- the 2002 Second Edition annotating research published before 2002, and the 2020 5th Edition, which includes studies published between 2002 through 2020.

Annotated Bibliography of Respite and Crisis Care Studies, 6th Edition, 2022

Annotated Bibliography of Respite and Crisis Care Studies, 2nd Edition, 2002

Studies were included if they documented outcomes of respite care for family caregivers, care recipients, families or communities, including cost-benefit studies. Each annotation includes a complete citation; the studyā€™s aim or purpose; a summary of methods; a summary of key results; key study limitations as cited by the authors; and a summary of the authorsā€™ discussion and conclusions. Articles are grouped as follows: 1) respite targeted to children; 2) respite targeted to older adults; 3) respite targeted to adults with developmental disabilities; 4) respite targeted to multi-age groups; 5) caregiver support for Veterans and their caregivers; 6) literature reviews/meta-analyses of respite care studies; and 7) methodological issues in research on respite and caregiver interventions.

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Crisis nursery outcomes for caregivers served at multiple sites in Illinois

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Study Aim/Purpose: This study used aggregate administrative data from the Illinois Department of Human Services (IDHS) to assess the effects of crisis nursery services on individual caregiver service recipients. Summary of Methods: This study used a cross sectional design to analyze the response of caregivers regarding the effect of crisis…

Crisis nursery services and foster care prevention: An exploratory study

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Study Aim/Purpose: This study explored the relationship between receipt of short-term crisis nursery services, including case management and parenting education, and childrenā€™s subsequent foster care placement. Summary of Methods: This was a cross-sectional study examining administrative data on 186 families and their 322 children who received crisis nursery services in…

Daily sleep, well-being, and adult day services use among dementia care dyads

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Study Aim/Purpose:Ā  The study aimed to describe the daily sleep characteristics over several days among persons living with dementia (PLWD) and their caregivers, and how these characteristics differ before and after a day of adult day services (ADS) use compared to before and after a non-ADS use day. The study…

Daily Stressors and Adult Day Service Use by Family Caregivers: Effects on Depressive Symptoms, Positive Mood, and Dehydroepiandrosterone-Sulfate

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Study Aim/Purpose: This study examined the effects of adult day service (ADS) use on caregiver relatives living with individuals with dementia (IWD) on the caregiversā€™ level of a salivary biomarker of stress reactivity as well as the association of the biomarker levels with variability in reported symptoms of positive mood…

Dementia care costs and outcomes: a systematic review

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Study Aim/Purpose: The purpose of this article was to review available literature evaluating the cost effectiveness of dementia care prevention, care and treatment strategies.Ā  Summary of Methods: The authors conducted an electronic search for published articles from 2005 and a web search of articles from 2000 onward evaluating interventions for…

Dementia caregiver virtual supportāˆ’An implementation evaluation of two pragmatic models during COVID-19

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Study Aim/Purpose:Ā  This article describes the design and implementation of two support programs in Tennessee that began providing online sessions for caregivers of persons with Alzheimerā€™s and related dementias (ADRD) during the COVID-19 pandemic. The first was the Caregivers First program, which served caregivers of veterans, and the second was…

Depressive symptoms and use of home-based respite time in family caregivers

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Study Aim/Purpose: This study investigated the relationship between how family caregivers used in-home respite time and subsequent symptoms of depression. Specifically, the study sought to determine whether there were different effects of respite time used by caregivers for ā€œpleasant activitiesā€ versus respite times used to catch up on non-caregiving chores.Ā …

Dilemmas in the provision of own-home respite support for parents of young children with complex health care needs: evidence from an evaluation

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Study Aim/Purpose: To examine parent responses and effects of a nurse-led in-home respite support service for parents of young children with complex health care needs.Ā  Summary of Methods: This is a qualitative study involving interviews with 18 families. Parents were interviewed using semi-structured topic guides at three time points: immediately…

Distinct impacts of high intensity caregiving on caregiversā€™ mental health and continuation of caregiving

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Study Aim/Purpose: This study sought to measure the impacts of high intensity caregiving for older adults on informal caregiversā€™ mental health and continuation of caregiving as well as how those outcomes varied by level of caregiving intensity, certain caregiver characteristics, and receipt of respite.Ā  Summary of Methods: The author analyzed…

Does adult day service use improve well-being of Black caregivers of people living with dementia?

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Study Aim/Purpose:Ā  The purpose of this study was to examine the association between the use of adult day services (ADS) and depressive symptoms among Black caregivers of people living with dementia. Summary of Methods: The researchers conducted a cross-sectional study using data collected as part of baseline surveys of 135…