Annotated Bibliography of Respite and Crisis Care Services
ARCH prepared its first Annotated Bibliography of Respite and Crisis Care in 2002 and has periodically updated it since then. Two compilations are available -- the 2002 Second Edition annotating research published before 2002, and the 2020 5th Edition, which includes studies published between 2002 through 2020.
Annotated Bibliography of Respite and Crisis Care Studies, 6th Edition, 2022
Annotated Bibliography of Respite and Crisis Care Studies, 2nd Edition, 2002
Studies were included if they documented outcomes of respite care for family caregivers, care recipients, families or communities, including cost-benefit studies. Each annotation includes a complete citation; the study’s aim or purpose; a summary of methods; a summary of key results; key study limitations as cited by the authors; and a summary of the authors’ discussion and conclusions. Articles are grouped as follows: 1) respite targeted to children; 2) respite targeted to older adults; 3) respite targeted to adults with developmental disabilities; 4) respite targeted to multi-age groups; 5) caregiver support for Veterans and their caregivers; 6) literature reviews/meta-analyses of respite care studies; and 7) methodological issues in research on respite and caregiver interventions.
Bibliography Search
You can search here for individual study annotations.
Study Aim/Purpose: The authors state that the primary aim of the study was to investigate whether day care programs in Sweden positively impacted caregivers of relatives with dementia, with specific regard to feelings of worry, burden, overload and depression, physical difficulties, and psychological wellbeing. Summary of Methods: The study design…
Study Aim/Purpose: This study sought to evaluate the impact of two weeks of institutional respite care provided in four community hospital units in East Midlands, United Kingdom on sleep patterns of patients with dementia who normally live at home. Summary of Methods: The authors describe their study design as “prospective…
Study Aim/Purpose: The aim of this study was to assess the effectiveness of a 24-hour in-home respite care program in supporting informal caregivers of persons with dementia residing in the community. Summary of Methods: This study used a pre/post prospective quasi-experimental design to compare differences in caregiver outcomes between caregivers…
Study Aim/Purpose: The purpose of this paper was to summarize literature on the strategies used in day care for supporting family caregivers of people with dementia, as well as their effects on family caregiver burden, coping strategies, and quality of life. Summary of Methods: The authors conducted a systematic review…
Study Aim/Purpose: This study was designed as a systematic review of studies on the impact of respite care for caregivers of persons with dementia. Summary of Methods: The authors conducted a systematic search of articles published since 2000 on the effect of respite care on caregivers, care recipients or health…
Study Aim/Purpose: Conducted in Japan between July 2015 and February 2017, this study analyzed the effects of “short-stay services” (i.e., one or more nights of overnight respite care) on the sleep of family caregivers living with an older person with dementia or with nocturnal awakening. Summary of Methods: A total…
Study Aim/Purpose: The objective of this study was to examine the effects of adult day service (ADS) programming in New Jersey on exposure to and emotional response to stressors for family caregivers of individuals with dementia. Summary of Methods: This study used a “within-person withdrawal design” using 24-hour daily diaries…
Study Aim/Purpose: This study sought to examine the effects of respite care on parental stress and the relationships between levels of respite service use, parental stress, and other parental characteristics on their children’s foster care placement and maltreatment rates. Summary of Methods: Eighty-seven (87) parents completed the Parenting Stress Index…
Study Aim/Purpose: This article presents the results from a large nationwide evaluation of the Respite Education and Support Tools (REST) respite provider training program. Summary of Methods: The first component of the study was a pre/post design including 895 trainees who participated in 126 different REST training workshops between June…
Study Aim/Purpose: The study’s purpose was to examine the short and long-term effects of the Adult Day Service Plus (ADS Plus) program, which integrates care management within adult day center services with the goal of “helping family caregivers develop problem-solving and coping skills, improve social and instrumental support, and enhance…
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