Annotated Bibliography of Respite and Crisis Care Services

ARCH prepared its first Annotated Bibliography of Respite and Crisis Care in 2002 and has periodically updated it since then. Two compilations are available -- the 2002 Second Edition annotating research published before 2002, and the 2020 5th Edition, which includes studies published between 2002 through 2020.

Annotated Bibliography of Respite and Crisis Care Studies, 6th Edition, 2022

Annotated Bibliography of Respite and Crisis Care Studies, 2nd Edition, 2002

Studies were included if they documented outcomes of respite care for family caregivers, care recipients, families or communities, including cost-benefit studies. Each annotation includes a complete citation; the study’s aim or purpose; a summary of methods; a summary of key results; key study limitations as cited by the authors; and a summary of the authors’ discussion and conclusions. Articles are grouped as follows: 1) respite targeted to children; 2) respite targeted to older adults; 3) respite targeted to adults with developmental disabilities; 4) respite targeted to multi-age groups; 5) caregiver support for Veterans and their caregivers; 6) literature reviews/meta-analyses of respite care studies; and 7) methodological issues in research on respite and caregiver interventions.

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Evaluation of a weekend respite program for persons with Alzheimer Disease

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Study Aim/Purpose: This study explored family caregivers’ experience with a pilot weekend respite program in western Canada. The program provided respite care in a homelike environment for persons with Alzheimer’s disease.  Summary of Methods: The authors conducted a qualitative assessment using multiple data collection methods. The data presented in this…

Evaluation of the Home Help Service and its impact on the informal caregiver’s burden of dependent elders

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Study Aim/Purpose: This study had two aims. The first was descriptive, to describe the characteristics of users and services received from and satisfaction with the Home Help Service (HHS), a respite program serving elders in Comunidad Valenciana in Spain. The second study aim was to measure the impact of HHS…

Examination of a psychoeducational intervention and a respite grant in relieving psychosocial stressors associated with being an Alzheimer’s caregiver

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Study Aim/Purpose: The purpose of this study was to examine whether and how receipt of a psychoeducational training program called the Savvy Caregiver Program (SCP), receipt of a respite voucher-type grant, and receipt of a combination of both services impacted caregivers and their use of other support services beyond the…

Examining What Caregivers Do During Respite Time to Make Respite More Effective

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Study Aim/Purpose: The study described and analyzed consistency between family caregivers’ desired and actual use of their time while their relatives were receiving adult day services. The study then sought to examine the relationship between this level of consistency (or inconsistency) and caregivers satisfaction with respite time-use, their feeling of…

Exploring the benefits of respite services to family caregivers: methodological issues and current findings

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Study Aim/Purpose: This literature review focuses on methodological issues that have impeded reliable and valid research studies involving respite care. There is special emphasis on how these methodological issues affect conducting research and practice settings, and how these issues may limit, or in some cases should limit the research designs…

Family and Friends as Respite Providers

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Study Aim/Purpose: The purpose of this study was to compare the in-home respite experiences of caregivers using the direct pay mode of California’s Caregiver Resource Centers (CRCs) respite program (which is consumer-directed and gives caregivers vouchers to hire and manage their own respite workers) to pay family or friends to…

Gerontological social work student-delivered respite: A community-university partnership pilot program

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Study Aim/Purpose: This study analyzes satisfaction with a small short-term pilot home-based respite program intended to fill a service gap for dementia caregivers.  Summary of Methods: The authors used a qualitative research design, analyzing caregiver responses from pre- and post-intervention semi-structured caregiver interviews to assess satisfaction with the Houseguest program.…

Helping caregivers of persons with dementia: which interventions work and how large are their effects?

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Study Aim/Purpose: This meta-analysis sought to improve upon findings from extant evaluations of various interventions serving dementia caregivers by pooling the samples and analyses of intervention effects from studies that generally use small sample sizes and measuring more reliable mean effects.  Summary of Methods: Using a keyword search of electronic…

How effective are dementia caregiver interventions? An updated comprehensive meta-analysis

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Study Aim/Purpose: The purpose of this paper was to update a 2006 meta-analysis of interventions for caregivers of persons with dementia that was conducted by Pinquart and Sorensen. The analysis sought to determine the average effects of interventions for caregivers of individuals with dementia on caregivers and their care recipients,…

How is taking care of caregivers of children with disabilities related to academic achievement?

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Study Aim/Purpose: This article summarizes re 38: 91102. search conducted using longitudinal national survey data to examine the association between receipt of respite care and academic achievement of children with disabilities. Summary of Methods: The research was conducted using survey responses from three time points Special Education Elementary Longitudinal Study…