Annotated Bibliography of Respite and Crisis Care Services
ARCH prepared its first Annotated Bibliography of Respite and Crisis Care in 2002 and has periodically updated it since then. Two compilations are available -- the 2002 Second Edition annotating research published before 2002, and the 2020 5th Edition, which includes studies published between 2002 through 2020.
Annotated Bibliography of Respite and Crisis Care Studies, 6th Edition, 2022
Annotated Bibliography of Respite and Crisis Care Studies, 2nd Edition, 2002
Studies were included if they documented outcomes of respite care for family caregivers, care recipients, families or communities, including cost-benefit studies. Each annotation includes a complete citation; the study’s aim or purpose; a summary of methods; a summary of key results; key study limitations as cited by the authors; and a summary of the authors’ discussion and conclusions. Articles are grouped as follows: 1) respite targeted to children; 2) respite targeted to older adults; 3) respite targeted to adults with developmental disabilities; 4) respite targeted to multi-age groups; 5) caregiver support for Veterans and their caregivers; 6) literature reviews/meta-analyses of respite care studies; and 7) methodological issues in research on respite and caregiver interventions.
Bibliography Search
You can search here for individual study annotations.
Study Aim/Purpose: The authors examined the immediate and lagged daily pain outcomes associated with daily levels of stress and adult day service (ADS) use among family caregivers of persons with dementia. Summary of Methods: This longitudinal study involved daily telephone interviews with 173 family caregivers of persons with dementia who…
Study Aim/Purpose: The aim of this study was to evaluate the impact of a multi-component support program for caregivers of adults with aging Veterans with disabilities, implemented through a Veterans Administration site in Tampa Florida. The program included 24-hr in-home respite care, caregiver group support, and education/skills training. Caregivers had…
Study Aim/Purpose: The study examined the short-term (2 month) effects of adult day services (ADS) participation by individuals with dementia on their behavioral and psychological symptoms of dementia (BPSD) immediately after ADS use and on days when not using ADS. Summary of Methods: A quasi-experimental design was used, comparing reports…
Study Aim/Purpose: This study examined the effect of use of home and community-based services for the elderly on their admission to a hospital or residential care facility. Summary of Methods: This study used a retrospective cohort design and analyzed linked health insurance and long-term care insurance (LTCI) claims data for…
Study Aim/Purpose: The review summarizes research findings on factors affecting respite use and outcomes for carers of people with dementia living in the community. Summary of Methods: The authors conducted a search of English language articles from Australasia, the United States, Canada, United Kingdom, and Europe primarily using EBSCOhost via…
Study Aim/Purpose: The study had two main objectives. First, it sought to explore associations between the amount of family control in the management of paid respite/personal assistance services for families of individuals with developmental disabilities (DD) and five outcomes: caregiving burden, caregiving satisfaction, caregiving self-efficacy, satisfaction with the service, hours…
Study Aim/Purpose: The aim of this study is to examine the mediating effects of informal social support on the relationship between caregiver burden and quality of life for parents who care for only one adult child with Autism Spectrum Disorder (ASD) (noncompound caregivers) and those who provide care to multiple…
Study Aim/Purpose: This study examined associations between the timing of adult day service (ADS) use and the trajectory of daily cortisol levels as a biomarker for stress among caregivers of individuals with dementia who experience chronic stress. Summary of Methods: The study involved 165 family caregivers who live in the…
Study Aim/Purpose: To describe the Older Carers Program in Western Australia administered by the Australian Red Cross and whether it met its stated objectives and carried out its intended activities. This 22-month old program at the time of the research was designed to provide help for older carers of adults…
Study Aim/Purpose: This study examined the impacts of the Relief Nursery program, established in the mid-1970s in the Eugene-Springfield community of Oregon. The program is designed to provide a comprehensive array of family support services to low-income families at risk of child abuse and neglect, including home visiting, parent education…
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