Annotated Bibliography of Respite and Crisis Care Services
ARCH prepared its first Annotated Bibliography of Respite and Crisis Care in 2002 and has periodically updated it since then. Two compilations are available -- the 2002 Second Edition annotating research published before 2002, and the 2020 5th Edition, which includes studies published between 2002 through 2020.
Annotated Bibliography of Respite and Crisis Care Studies, 6th Edition, 2022
Annotated Bibliography of Respite and Crisis Care Studies, 2nd Edition, 2002
Studies were included if they documented outcomes of respite care for family caregivers, care recipients, families or communities, including cost-benefit studies. Each annotation includes a complete citation; the study’s aim or purpose; a summary of methods; a summary of key results; key study limitations as cited by the authors; and a summary of the authors’ discussion and conclusions. Articles are grouped as follows: 1) respite targeted to children; 2) respite targeted to older adults; 3) respite targeted to adults with developmental disabilities; 4) respite targeted to multi-age groups; 5) caregiver support for Veterans and their caregivers; 6) literature reviews/meta-analyses of respite care studies; and 7) methodological issues in research on respite and caregiver interventions.
Bibliography Search
You can search here for individual study annotations.
Study Aim/Purpose: This article is a retrospective overview of research on caregiver interventions to highlight strengths and weaknesses and identify conceptual and methodological issues that could lead to better treatment outcomes. Summary of Methods: The author provided a critical review of the literature of caregiver interventions, drawing examples from studies…
Study Aim/Purpose: This study examined associations between perceived role overload and negative physical symptoms among caregivers who provide health-related assistance to older persons. It also examined the potential moderating effects of informal and formal support resources on these associations. Summary of Methods: The researchers analyzed data from surveys of 1,471…
Study Aim/Purpose: The purpose of the study was to identify how “specialist short break and community support services programs” administered by Action for Children in three United Kingdom cities were perceived to meet the needs of families whose children are disabled and have severely challenging behaviors. “Family support services from…
Study Aim/Purpose: This was a literature review to seeking to identify weaknesses in past research that could help improve future research on day programs for people with dementia to better inform policy and practice. Specifically, the review sought to identify prevailing assumptions about the purpose and structure of day programs…
Study Aim/Purpose: The study sought to investigate caregiver and patient satisfaction with respite provided by adult daycare centers in the Netherlands, and patient and caregiver factors related to caregiver well-being. Summary of Methods: This cross-sectional study conducted a one-time survey with a sample of 108 caregiver and patient dyads who…
Study Aim/Purpose: The authors’ review focused on respite care and short breaks for young adults aged 18-40 with complex medical needs, examining extant literature on the services provided, policies, service effectiveness and cost-effectiveness, and the experience of the target population. Summary of Methods: The authors searched 14 different electronic databases,…
Study Aim/Purpose: The aim of this paper was to review existing primary research studies examining the relationship between respite care and stress among caregivers of children with autism spectrum disorder (ASD). Summary of Methods: The review used an integrative review framework to identify English language studies published within the last…
Study Aim/Purpose: The study aims to describe the use of publicly funded respite care in Taiwan and caregivers’ satisfaction with those services. The study’s purpose was also to measure the effects of respite use on caregivers’ burden and factors that may contribute to positive effects of respite. Summary of Methods:…
Study Aim/Purpose: To review research literature on respite for people affected by severe mental illness and identify implications for nursing practice. Summary of Methods: An initial literature search was undertaken using the key words ‘respite’, ‘short-term care’, ‘shared care’ and ‘day care’ for literature published in English between 1967-2002 in…
Study Aim/Purpose: This study aimed to identify and summarize findings from qualitative research on parental perceptions and evaluation of respite care services for their children with complex needs. Summary of Methods: The authors conducted a systematic search of research conducted from 2010-2019, using six databases: Medline, Cumulative Index of Nursing…
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