Annotated Bibliography of Respite and Crisis Care Services
ARCH prepared its first Annotated Bibliography of Respite and Crisis Care in 2002 and has periodically updated it since then. Two compilations are available -- the 2002 Second Edition annotating research published before 2002, and the 2020 5th Edition, which includes studies published between 2002 through 2020.
Annotated Bibliography of Respite and Crisis Care Studies, 6th Edition, 2022
Annotated Bibliography of Respite and Crisis Care Studies, 2nd Edition, 2002
Studies were included if they documented outcomes of respite care for family caregivers, care recipients, families or communities, including cost-benefit studies. Each annotation includes a complete citation; the study’s aim or purpose; a summary of methods; a summary of key results; key study limitations as cited by the authors; and a summary of the authors’ discussion and conclusions. Articles are grouped as follows: 1) respite targeted to children; 2) respite targeted to older adults; 3) respite targeted to adults with developmental disabilities; 4) respite targeted to multi-age groups; 5) caregiver support for Veterans and their caregivers; 6) literature reviews/meta-analyses of respite care studies; and 7) methodological issues in research on respite and caregiver interventions.
Bibliography Search
You can search here for individual study annotations.
Study Aim/Purpose: The author sought to identify the common findings of quantitative and qualitative studies of respite care for families of children with disabilities. Summary of Methods: A keyword search was conducted to identify studies conducted in the United States, Australia and the United Kingdom. The following electronic databases were…
Study Aim/Purpose: This study sought to measure how use of respite care was associated with depression levels among single mothers of children with autism spectrum disorders (ASD). Summary of Methods: This was a cross-sectional study with a sample of 122 single mothers who had at least one child with ASD.…
Study Aim/Purpose: The purpose of this study was to examine the relationship between receipt of respite care and quality of marriage for couples with a child with autism spectrum disorders (ASD), with wife and husband stress and daily uplifts as potential mediating variables Summary of Methods: Data were collected from…
Study Aim/Purpose: This study’s primary purpose was to examine the relationship between respite care use and wives’ and husbands’ perception of their marital quality. It also sought to assess wife and husband stress and uplifts (defined as positive experiences) as possible mediating variables of the relationship between respite care and…
Study Aim/Purpose: This study, conducted “in a large urban area of a western state” sought to examine the outcomes associated with use of formal respite care services by kinship, foster, and adoptive caregivers of children with special needs involved in the child welfare system. Summary of Methods: The study involved…
Study Aim/Purpose: The purpose of this paper was to consider the definitions and assumptions that underpin the term respite and its impact on the physical, psychological and social outcomes of carers in palliative care contexts. Summary of Methods: The literature review, which involved searching five electronic databases (Web of Science,…
Study Aim/Purpose: This study aimed to examine respite service use and its relationship to self-rated health of older family caregivers in the United State and how this relationship might differ by their age. Summary of Methods: Authors conducted a cross-sectional study using data from the nationally representative 13th National Survey…
Study Aim/Purpose: This report explored the benefits, limitations, factors affecting access to and recommendations for improvement to short breaks (also known as respite care) provided by formal services, family, and friends. Summary of Methods: Findings are based on the responses of 1210 caregivers to a country-wide survey distributed through carer…
Study Aim/Purpose: This study examines the effect of sleep duration on the cortisol awakening response (CAR) and whether use of adult day service respite can counteract that negative effect. Summary of Methods: The study followed 158 family caregivers who lived with individuals with dementia who were attending ADS at least…
Study Aim/Purpose: This study explored the perceptions and experiences of respite service managers and family members regarding six models of respite services recently funded in Ireland to promote greater social integration and normalization of people with intellectual disabilities (ID). These respite models were funded specifically to provide alternatives to overnight…
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