Committee for Advancement of Respite Research Publications
The purpose of the Committee for Advancement of Respite Research (CARR) is to advise ARCH on the execution of its respite research initiative and help advance a respite research agenda that supports activities and innovations to develop an evidence base for respite care and related services. The CARR is comprised of research scholars and evaluators, advocates, and foundation representatives. The Committee prioritized three areas in which to identify and undertake tasks to advance a respite research agenda:
- Define and measure the value (cost-effectiveness) of respite
- Recommend common data elements (CDE) for respite-related research to allow for meaningful comparison of data across and
between studies, between respite models, between study populations across age, disability, culture, and caregiving circumstances, or over time. - Expand culturally and linguistically competent research with diverse populations by providing the necessary information and tools to the research community.
During the tenure of the Committee, the following publications were produced to address these important topics.
Measuring the Value of Respite
A White Paper by the ARCH Committee for Advancement of Respite Research (CARR)
Purpose
The purpose of this white paper is to provide an in-depth description of the current challenges related to measuring the economic value of respite and to offer a new framework for research and evaluation.
Key Points
- There is an urgent need to identify, expand, and develop evidence-based and evidence-informed respite that improves caregiver outcomes.
- Current research and evaluation methods do not adequately measure the economic value of respite.
- Caregivers need respite and accrue beneficial effects from respite, even if providing respite does not save money.
Recommendations
The White Paper includes a set of key recommendations from the CARR related to measuring the value of respite care.
Recommended Common Data Elements for Respite Research
A white paper by the ARCH Committee for Advancement of Respite Research (CARR)
Purpose
The purpose of this white paper is to provide recommendations for the use of common data elements for respite research that align with the Value of Respite Model, developed by the ARCH Committee for Advancement of Respite Research (CARR). This paper is a companion document to the white paper Measuring the Value of Respite developed by the CARR.
Key Points
- There is an urgent need to identify, develop, and expand evidence-based and evidence-informed respite programs that improve caregiver outcomes.
- Current research and evaluation methods do not allow for meaningful comparison of data across and between studies, between respite models, between study populations across age, disability, culture, and caregiving circumstances, or over time.
- The use of common data elements that align with the Value of Respite Model is essential to advancing respite research.
Recommendations
The White Paper includes a set of key recommendations from the CARR related to Common Data Elements for Respite Research.
Recommended Common Data Elements
Recommended Common Data Elements are located in Appendix A of the white paper.
Research Tools
The Research Tools found in Appendices B, C and D are also available as downloadable pdfs.
Cultural and Linguistic Competence in Respite Research
Prepared by Dr. Kim Whitmore, Marquette University College of Nursing, with the ARCH Committee for Advancement of Respite Research
An environmental scan was conducted by the ARCH Committee for Advancement of Respite Research (CARR) to identify resources to help expand culturally and linguistically competent and responsive research with diverse populations. The scan includes a list of resources, individuals and organizations, articles, and webinars that were identified to help researchers who are interested in learning more about how to engage in culturally appropriate research with diverse, marginalized and under-resourced groups.
We will continue to update this list as new resources are identified. If you are aware of any additional resources that should be considered, please let ARCH know.
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