Research Findings & Updates
Research Recommendations included in the RAISE Family Caregiving and the Supporting Grandparents Raising Grandchildren (SGRG) Advisory Councils’ Reports to Congress
The RAISE Act Family Caregiving Advisory Council recently released its recommendations in an initial report to Congress. The report includes family caregiving policy opportunities, diverse family caregiving stories from across the…
Caregiver Respite: An Essential Component of Home-and Community-Based Long-Term Care
During the pandemic, flexibilities in formal respite services and creative informal strategies emerged to ensure meaningful breaks for family caregivers. In this letter, Dr. Utz, who is a member of…
Taking a Break: Daily Respite Effects of Adult Day Services as Objective and Subjective Time Away From Caregiving
This study investigated how objective and subjective breaks from caregiving were associated with caregivers’ daily emotional health. Caregivers reported an average of 7.12 respite hours on Adult Days Services (ADS)…
Daily sleep, well-being, and adult day services use among dementia care dyads
The purpose of this study was to examine the effects of Adult Day Services (ADS) use on sleep quality for people with dementia and their caregivers. The authors found that…
Community-Based Long-Term Services and Supports: Are the Needs of Older Adults and Their Caregivers Being Met?
The goal of this study was to assess the adverse consequences of unmet long-term services and supports (LTSS) needs, to identify if and how caregiving characteristics are associated with adverse consequences, and…
Implications of the COVID-19 Pandemic on Adult Day Services and the Families They Serve
To assess the impact of the pandemic on Adult Day Services (ADS), a twenty-item survey was used to examine services provided, staffing, finances, and plans to reopen. Twenty-two sites participating…
Does Adult Day Service Use Improve Well-Being of Black Caregivers of People Living With Dementia?
This study examined the association between the use of ADS and depressive symptoms among Black dementia caregivers. The authors found that Black dementia caregivers who utilized ADS had lower depressive…
Caregiver Quality of Life: How to Measure It and Why
The authors review the concept of caregiver quality of life (QOL) and offer recommendations for choosing and implementing a screening workflow. They suggest that “further research is needed to guide development…
Reducing the Impact of Dementia in America: A Decadal Survey of the Behavioral and Social Sciences
The National Institute on Aging of the U.S. Department of Health and Human Services requested that the National Academies of Sciences, Engineering, and Medicine conduct a consensus study to produce…
A Group Respite Pilot Project for Children with Special Needs
Being a caregiver for a family member or loved one with special needs is difficult. This pilot project documents the enthusiasm expressed by parents of children for accessible respite care…
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