If you are looking for published research articles and other publications focused on respite research and evaluation, see also Findings and Updates and ARCH Annotated Bibliography.

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Connecticut Medicaid Home and Community-Based Waivers


Home and Community-Based 1915(c) Waivers and Concurrent 1915(b) Managed Care Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and…

COVID-19 Case Study: Lifespan Respite Washington Respite Voucher Program

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Lifespan Respite Washington (LRW) offers caregiver support through vouchers or mini grants for unpaid caregivers supporting a family member, friend, or neighbor who has a special need or condition. Recognizing…

North Dakota Family Caregiver Supports and Services Study, 2016

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This study was solicited and funded by the North Dakota Legislative Management. As provided in Section 1 of 2015 House Bill No. 1279, the study was to develop a resource directory of…

Kansas Respite Provider Training Initiative

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The Kansas Respite Coalition worked to build a career pathway for direct care workers through the Community College System using Lifespan Respite Care Grant funds. While progress was made in…


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Self-administered survey To identify problem solving and behavioral strategies used by families when faced with problems or crises. Can be used to as a pre-post test to measure change over…

Evaluating Organizational Collaborations: Suggested Entry Points and Strategies

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Abstract: Collaboration is a widely utilized strategy for addressing complex social issues and for facilitating organizational innovation and performance. Evaluators are uniquely positioned to empirically examine the development and effects…

Senior Companion Volunteer Position Descriptions

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Senior Companions serve adults with physical, emotional, or mental health limitations, especially older persons, in an effort to achieve and maintain their highest level of independent living. Senior Companion volunteers…

Respite for Caregivers of Children with Serious Emotional Disturbance

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Finding respite services for a child with challenging behavioral issues can be difficult for families. This fact sheet discusses the definition and characteristics of emotional disturbance, issues for families, program…

Virginia Family Caregiver Stakeholder Workgroup: Recommendations for Improving Family Caregiver Support in Virginia 2018

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The Virginia Department for Aging and Rehabilitative Services (DARS) convened the Virginia Family Caregiver Stakeholder Workgroup beginning in July 2017 in response to requests from legislators and advocates to study…

National/State Partnership to Launch a New Respite Provider Recruitment and Training Initiative

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Video Presentation at the Home and Community-Based Services Conference, August 2022 With support from the Administration for Community Living, the National Academy for State Health Policy joined forces with the…

Application as a Collaborative Tool

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For States to receive a federal grant to implement a Lifespan Respite Program, they must compete for funds by completing an application to be submitted to the Administration for Community…

How to Find Respite for Caregivers

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Jill Kagan was interviewed on ECareDiary to share information on how to find respite care for family caregivers.