If you are looking for published research articles and other publications focused on respite research and evaluation, see also Findings and Updates and ARCH Annotated Bibliography.

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What You Need to Know About ME: A Child/Adolescent Guide for Families and Caregivers

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This notebook is adapted for children from material that was written for seniors by Susan R. Carlton, Executive Director, The South Carolina Respite Coalition Norma S. Sessions, Training/Development Director, The…

Respite for Individuals with Autism

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This issue brief provides a basic overview of useful information for respite providers who work with individuals and families affected by Autism. It is also meant to assist Lifespan Respite…

COVID-19 Case Study: St. Louis Arc’s Assistance with Residential Care in the Home Respite Care

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The St. Louis Arc’s ARCH (Assistance with Residential Care in the Home) Respite Care program is a consumer-directed respite service that helps a person with developmental disabilities live at home…

South Carolina Respite Coalition Caregiver Survey Findings

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SOUTH CAROLINA RESPITE COALITION CAREGIVER SURVEY  –  KEY FINDINGS In August 2020, the South Carolina Respite Coalition sent a survey to family caregivers and organizations serving family caregivers to get…

Self-Direction in Respite Voucher Programs: Path to Person and Family-Centered Care

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Virtual presentation for the Applied Self-Direction At Your Desk Conference, April 25, 2023 Respite care provides a break from caregiving for both the caregiver and the disabled individual and should…

Nebraska Medicaid Home and Community-Based Waivers


Managed Care 1915(b) and/or Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with…

Nebraska Lifespan Respite Network: Producing Positive Outcomes for Families, 2015-2017

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Final Evaluation Report from University of Nebraska Medical Center, Munroe-Meyer Institute (UNMC-MMI) and Nebraska Department of Health and Human Services The purpose of the evaluation of the Nebraska Lifespan Respite…

Program Evaluation Report – Advancing State Lifespan Respite Systems – New York

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Project Title: Building Long-Term Sustainability in State Lifespan Respite Programs (Lifespan Respite) – New York ACL Grant: # 90LRLI0012 Project Period: September 1, 2017 – August 31, 2020 (3 years)…

A Practical Guide to Respite for Your Family

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By Molly Dellinger-Wray and Monica Uhl with the Partnership for People with Disabilities (formerly the Virginia Institute for Developmental Disabilities), a university-affiliated program at Virginia Commonwealth University.

Increase in Caregiver Access to Respite

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Prepared by ARCH as a sample measurement tool for Lifespan Respite grantees/partners.  In an interview or focus group format, ask each key leader or stakeholder, “Have you documented an increase…

Creating Respite Where It Doesn’t Exist: A “Gap-Filling” Person-Centered Approach to Respite

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This presentation was part of the Lifespan Respite Track at the 2021 Virtual International Short Break Conference cohosted by ARCH Presenters Jamie Ahumada, Nevada Aging and Disability Services Division, NV…