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ARCH Initiative to Advance a Respite Research Agenda

A current focus of ARCH is to collect, synthesize, disseminate and stimulate research to improve respite practice and sustainability. The Expert Panel on Respite Research, convened by ARCH in collaboration with the Administration for Community Living, was key to helping advance this mission by engaging experts in the field in informed discussions of current respite research and possibilities for future investigation. A final report, including a respite research agenda, was released in October 2015.

ARCH built a Respite Research Consortium to link interested researchers and funders to engage in respite research that follows the research framework developed by the Expert Panel, and to help implement the Expert Panel's research recommendations. A  virtual Respite Research Summit will be held on September 29 and 30, 2020, to evaluate the status of progress made to datei and to identify next steps. 

ARCH Is pleased to announce the formation of the ARCH Committee for Advancement of Respite Research (CARR) that will be charged with leading the next phase of this effort and identifying additional goals. The next phase of ARCH’s work in the research arena will include: examination of how to improve access to and quality of respite services; identification of aspects of respite services and models that make them exemplary; encouragement of evaluation and replication of promising services; and translation of research findings into practice. Given the current effects of COVID-19 on respite service delivery, another focus of the Committee will be to identify methods for evaluating the impact of alternative respite options that are being developed to support family caregivers during the pandemic. 

ARCH will also be collaborating with the University of Wisconsin-Madison School of Nursing's BREAK (Building Respite Evidence and Knowledge) Exchange, which is an international group of researchers, respite providers, agencies, and individuals who are committed to building a culture of evidence-based respite care. With this collaboration, ARCH will be linking respite services we identify as Innovative and Exemplary through a rigorous national application and selection process to interested researchers worldwide. 

Respite Research Summit, September 29 and 30, 2020.  For Agenda, Presenter Presentations, read more.  

 


Expert Panel Final Report, Research Agenda for Respite Care: Deliberations of an Expert Panel of Researchers, Advocates and Funders, click here.

Expert Panel Respite Research Recommendations - Six Key Areas

ARCH Annotated Bibliography, updated 2020

National and International Respite Research Findings

Research Consortium Updates

Subscribe to the Research Consortium Mailing List

BREAK Exchange

Committee for Advancement of Respite Research



Implementing the Panel's Recommendations

ARCH issued a Respite Research Prospectus to build a Respite Research Consortium to implement the Panel's Recommendations. We were assisted in publicizing this effort through a blog posted by the John A Harford Foundation, which also shared information about ARCH's efforts to implement the Panel's recommendations in a webinar for Grantmakers in Aging, "Conversations with GIA" - Family Caregiving: New Horizons for Caring Across America."

 

Respite Research Consortium Updates and Funding Opportunities

January 2020

September 2019 

  • ARCH Comments in Response to Notice Number: NOT-AG-19-016, Invitation for Input on the 2020 National Research Summit on Care, Services, & Supports for Persons with Dementia and their Caregivers, National Institute on Aging

January 2019 

October 2018 

If you are a researcher or funder and would like more information on how you can participate in the Respite Research Consortium, please contact This email address is being protected from spambots. You need JavaScript enabled to view it..

Please subscribe to  the ARCH Respite Research Consortium mailing list for timely Updates.  

 

National and International Research Findings on the Benefits of Respite (see also ARCH's Annotated Bibliography)

Senior Companion Caregiver Study

The Corportation for National and Community Service conducted the Senior Companion caregiver study to establish the impact of respite services on caregivers of Senior Companion clients. The study surveyed caregivers prior to the start of respite care and at a one-year follow-up point. Caregivers were grouped into critical, essential, and moderate categories based on personal and family needs. Those in the critical-needs group were the ones with the highest needs.

  • Nearly 76% of caregivers in the critical-needs group reported Senior Companion respite services helped them “a lot” with both personal time and household management.

  • Approximately 60% of caregivers with critical needs reported that Senior Companion services helped them “a lot” or a “great deal” and allowed them to be more involved in social activities and enjoy time with their friends or relatives.

  • Approximately 40% of caregivers who rated their health as fair or poor before respite support, now rate their health as good.

Source: Corporation for National and Community Service. Health Benefits of Senior Corps. Read the brief.


Outcome Evaluation of the National Family Caregiver Support Program (NFCSP)

Survey response data were collected from a nationally representative sample of NFCSP client caregivers, a comparison group of caregivers who do not receive NFCSP services, and a sample of care recipients (CRs) of caregivers in the two groups. This was the first national longitudinal survey of caregivers designed for the purpose of evaluating the NFCSP. The five caregiver outcome measures that were focused on in this evaluation were: mental health, physical health, caregiver burden, caregiver satisfaction, and caregiver confidence. The two-part NFCSP evaluation also includes a previously released process evaluation report.

Key Respite Findings

Key among the evaluation’s findings are important insights into the value of respite in reducing caregiver burden and that education and training services can lead to greater caregiver confidence over time. One key finding regarding respite was that, on average, NFCSP caregivers who received 4 or more hours of respite care per week had a decrease in self-reported burden over time, while the comparison caregivers experienced an increase in self-reported burden. In addition, among caregivers who used NFCSP respite care, as the respite hours per week increased, so did the probability of a more favorable response regarding caregivers' perception that services helped them continue caregiving. Additional data were collected on caregivers’ use and perceived helpfulness of NFCSP respite care.

Source: Administration for Community LIving (2018). Outcome Evaluation of the National Family Caregiver Support Program


Short Breaks for Carers: A scoping review, September 2019

A research report commissioned by Shared Care Scotland explores existing evidence about the vital role played by short breaks and respite care in families where there are significant caring responsibilities. The literature review was undertaken by Diane Seddon and Louise Prendergast of the Wales Centre for Ageing and Dementia Research at Bangor University and tells us what the evidence says about outcomes for carers.  Read the Scoping Review.