In 2015, the ARCH National Respite Network and Resource Center released recommendations for conducting focused research on respite care in its final report, Research Agenda for Respite Care: Deliberations of an Expert Panel of Researchers, Advocates and Funders.  Since then, ARCH has brought together researchers and funders in a Respite Research Consortium to help implement the Panel's research recommendations.

ARCH will convene a virtual Respite Research Summit for researchers in the ARCH Research Consortium, members of the Expert Panel on Respite Research, international and U.S. researchers, advocates and others who are interested in helping to build an evidence-base for respite. The Summit will explore the current state of respite research and the status of implementing the Expert Panel's recommendations to advance a respite research agenda. The Summit will also provide a forum for continued discussion on the future of respite research.

The Respite Research Summit will be held virtually on the afternoons of September 29 and 30, 2020. To ensure meaningful engagement of participants, advanced registration is required.  Check back often for more information.

ARCH wishes to thank The John A. Hartford Foundation and the Wareheim Foundation for their generous support. 

This project is supported, in part by grant number 90LT0002, from the U.S. Administration for Community Living, Department of Health and Human Services, Washington, D.C. 20201. Grantees undertaking projects with government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official Administration for Community Living policy.

Welcome

Jill Kagan, ARCH National Respite Network and Resource Center

Rani E Snyder, MPA, Vice President, Program, The John A. Hartford Foundation

Background on the ARCH Expert Panel on Respite Research and their Final Report, Research Agenda for Respite Care:  Deliberations of an Expert Panel of Researchers, Advocates and Funders

Ray Kirk, PhD, ARCH National Respite Network and Resource Center

Highlights of Research on Respite Outcomes and Access

Rebecca Utz, PhD, Associate Professor, Director of Graduate Studies, Department of Sociology, Director, Health Society & Policy program, Co-Director, Consortium for Families & Health Research, University of Utah

Joseph E. Gaugler, PhD, Robert L. Kane Endowed Chair in Long-Term Care (LTC) and Aging & Professor, Director, School of Public Health Center on Aging, Division of Health Policy and Management, University of Minnesota

Sarah A. Sobotka, MD MSCP, Assistant Professor of Pediatrics, Section of Developmental and Behavioral Pediatrics, Associate Program Director of Developmental and Behavioral Pediatrics Fellowship Training Program, Medical Director of Comer Outpatient Developmental and Behavioral Pediatric Programs, The University of Chicago

Research Aligning with the Expert Panel’s Recommendations

• Scoping review of the evidence base on short breaks in the United Kingdom

Emma Miller, PhD, Senior Research Fellow, School of Social Work and Social Policy, University of Strathclyde, Glasgow, Scotland

• Research Agenda of the National Adult Day Services Association

Bill Zagorski, Vice Chair and Research Committee Chair, National Adult Day Services Association

• Break Exchange

Kim Whitmore, PhD, RN, University of WI - Madison, School of Nursing and ISBA Confernce Chair

Practice Research and Evaluation

TBD, Office of Performance and Evaluation, Center for Policy and Evaluation, Administration for Community Living, U.S. Department of Health and Human Services 

Thomas V. Caprio, MD, Professor of Medicine/Geriatrics, Psychiatry, Dentistry, Clinical Nursing, and Public Health Sciences, University of Rochester Medical Center

Sarah Swanson, MPH, Assistant Professor, Community and Family Resource Specialist, Munroe-Meyer Institute, University of Nebraska Medical Center

Roundtable Discussions and Report Back

Facilitated by  Kim Whitmore, University of WI - Madison, School of Nursing; Casandra Firman,  Susan Janko Summers, PhD, and Ray Kirk, PhD, ARCH

Reactor Panel and Recommendations for Future Research

Joseph Caldwell, PhD, Senior Scientist and Director, Community Living Policy Center, Lurie Institute for Disability Policy, Brandeis University

Susan Peschin, MHS, President and CEO, Alliance for Aging Research

Cordelia Robinson Rosenberg, PhD, RN
Professor Pediatrics and Psychiatry
University of Colorado School of Medicine 

Wrap Up and Next Steps

Ray Kirk, PhD, ARCH