
Back to Respite Research
ARCH Respite Research Summit
September 29 and 30, 2020. 1:00 PM - 5:00 PM EDT
Video Recordings of 2-Day Respite Research Summit
Participant Packet
Roundtable Discussion Guides
Summary Report - Advancing Respite Research - Findings from the Respite Research Summit
Welcome Letter
Program Agenda, Speakers' PowerPoint Presentations and Presenter Handouts
Presenter Bios
Committee for the Advancement of Respite Research
Participant Discussion Guides |
Overview
In 2015, the ARCH National Respite Network and Resource Center released recommendations for conducting focused research on respite care in a final report from the ARCH Expert Panel on Respite Research, Research Agenda for Respite Care: Deliberations of an Expert Panel of Researchers, Advocates and Funders.Since then, ARCH has brought together researchers and funders in a Respite Research Consortium to help implement the Panel's research recommendations to strengthen the evidence base for respite. Building upon their work, ARCH is convening a virtual Respite Research Summit for researchers in the ARCH Research Consortium, members of the Expert Panel on Respite Research, international and U.S. researchers, funders, respite providers and services, advocates and others who are interested in helping to advance a respite research agenda and strengthen respite services.Read more about the Expert Panel and the Respite Research Consortium.The objectives of the Summit are to: |
|
ARCH wishes to thank The John A. Hartford Foundation and the Wareheim Foundation for their generous support.This project is supported, in part by grant number 90LT0002, from the U.S. Administration for Community Living, Department of Health and Human Services, Washington, D.C. 20201. Grantees undertaking projects with government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official Administration for Community Living policy. |
Summit Agenda |
Download Agenda (pdf)
DAY 1 - September 29 |
||
1:00 - 1:30 PM ET |
Welcome |
Jill Kagan, ARCH National Respite Network and Resource CenterWelcome slidesRani E Snyder, MPA, Vice President, Program, The John A. Hartford FoundationPPT PresentationLori Stalbaum, Adminstration for Community Living, Administration of Aging, U.S. Department of Health and Human Services |
1:30 - 1:45 |
Background on the ARCH Expert Panel on Respite Research and the Final Report, Research Agenda for Respite Care: Deliberations of an Expert Panel of Researchers, Advocates and Funders |
Ray Kirk, PhD, ARCH National Respite Network and Resource CenterPPT Presentation |
1:45 - 2:00 |
Focus on Equity and Diversity in Respite Research |
Kim Whitmore, PhD, RN, University of Wisconsin - Madison, School of NursingPPT Presentation |
2:00 - 2:45 |
Aligning Research Agendas with Research Recommendations |
Moderated by Jill Kagan, ARCH |
|
Bill Zagorski, Chair and Research Committee Chair, National Adult Day Services AssociationPPT PresentationNADSA Research Positioning Statement and 5 Year Plan: August 2019
|
|
|
Emma Miller, PhD, Senior Research Fellow, School of Social Work and Social Policy, University of Strathclyde, Glasgow, ScotlandPPT PresentationShort Breaks for Carers: A scoping review, September 2019 |
|
|
Kim Whitmore, PhD, RN, University of WI - Madison, School of Nursing and ISBA Confernce ChairPPT Presentation |
|
3:00 - 4:15 |
Research on Respite Outcomes and AccessModerated by Casandra Firman, MS, ARCH National Respite Network and Resource Center |
Rebecca Utz, PhD, Associate Professor, Director of Graduate Studies, Department of Sociology, Director, Health Society & Policy program, Co-Director, Consortium for Families & Health Research, University of UtahPPT PresentationFlyer seeking study participants and sample email.Joseph E. Gaugler, PhD, Robert L. Kane Endowed Chair in Long-Term Care (LTC) and Aging & Professor, Director, School of Public Health Center on Aging, Division of Health Policy and Management, University of MinnesotaPPT PresentationSarah A. Sobotka, MD MSCP, Assistant Professor of Pediatrics, Section of Developmental and Behavioral Pediatrics, Associate Program Director of Developmental and Behavioral Pediatrics Fellowship Training Program, Medical Director of Comer Outpatient Developmental and Behavioral Pediatric Programs, The University of ChicagoPPT PresentationUnmet Respite Needs of Children with Medical Technology Dependence
|
4:15 - 5:00 |
Reactor Panel and Group DiscussionFacilitated by Kim Whitmore, PhD, RN |
Joseph Caldwell, PhD, Senior Scientist and Director, Community Living Policy Center, Lurie Institute for Disability Policy, Brandeis UniversitySusan Peschin, MHS, President and CEO, Alliance for Aging ResearchCordelia Robinson Rosenberg, PhD, RN, Professor Pediatrics and Psychiatry, University of Colorado School of Medicine |
DAY 2 - September 30 |
||
1:00 - 1:15 |
Welcome, Recap and Agenda for the Day |
Kim Whitmore, PhD, RN, University of Wisconsin - Madison, School of Nursing |
1:15 - 2:00 |
Using the Expert Panel FrameworkIntroduction by Ray Kirk, PhD, ARCH |
Tiffany Washington, PhD, John A. Hartford Geriatric Social Work Scholar, Associate Professor, University of Georgia School of Social WorkPPT Presentation |
2:00 - 3:00 |
Practice Research and EvaluationModerated by Casandra Firman, MS, ARCH |
Thomas V. Caprio, MD, Professor of Medicine/Geriatrics, Psychiatry, Dentistry, Clinical Nursing, and Public Health Sciences, University of Rochester Medical CenterPPT PresentationSarah Swanson, MPH, Assistant Professor, Community and Family Resource Specialist, Munroe-Meyer Institute, University of Nebraska Medical CenterPPT PresentationNebraska Lifespan Respite Network: Producing Positive Outcomes for Families 2015-2017Susan Jenkins, PhD, Director, Office of Performance and Evaluation, Center for Policy and Evaluation, Administration for Community Living, U.S. Department of Health and Human ServicesPPT Presentation |
3:15 - 4:15 |
Roundtable DiscussionsSummit participants will break into groups to address Expert Panel Recommendations: 1) Individual, family and societal outcomes research; 2) cost-benefits and cost-effectiveness research; 3) systems change research to improve access; and 4) competency and training needs of providers.Read more about Expert Panel Key Recommendations |
Facilitated by Kim Whitmore, University of WI - Madison, School of Nursing; Casandra Firman, MS, Susan Janko Summers, PhD, and Ray Kirk, PhD, ARCH |
4:15 - 4:45 |
Roundtable Reports and Recommendations for Future ResearchFacilitated by Kim Whitmore, PhD, RN |
Joseph Caldwell, PhD, Senior Scientist and Director, Community Living Policy Center, Lurie Institute for Disability Policy, Brandeis UniversityRay Kirk, PhD, ARCH National Respite Network and Resource CenterSusan Peschin, MHS, President and CEO, Alliance for Aging ResearchCordelia Robinson Rosenberg, PhD, RN, Professor Pediatrics and Psychiatry, University of Colorado School of Medicine |
4:45 - 5:00 |
Wrap-Up and Next Steps |
Ray Kirk, PhD |
Questions? |
||
Contact This email address is being protected from spambots. You need JavaScript enabled to view it.
Back to the top |