State Respite Coalitions

 

  

About State Respite Coalitions and State Lifespan Respite Programs 

  

State Respite Coalition Contacts 

State Lifespan Respite Grantees

Workbook: Building a Statewide Respite Coalition: Where Do We Begin?

State Respite Coalition Fact Sheets, 2017 Compendium  (for the most current contact information for State Coalitions, see contact list below)

  • To view and print out individual State Fact Sheets, scroll down to state information below.

  state respite coalitions listing


What are State Respite Coalitions and how do they differ from Lifespan Respite Programs?

Most State Respite Coalitions are grassroots membership organizations composed of state and local, public and private organizations, which represent individuals with disabilities or chronic conditions of all ages; family caregivers; community and faith-based organizations and respite, social service and health care providers. Most often their activities are focused on advocacy, networking, and public education. Some coalitions also provide training and respite vouchers. They may be run by volunteers or paid staff.

Most exist as informal structures, while others are formalized within or as 501(c)(3) nonprofit entities or are administered by a state agency. Contact information for each coalition is listed below.

State Lifespan Respite Grant Programs are run by a designated state government lead agency, which works in collaboration with a state respite coalition and an Aging and Disability Resource Center/No Wrong Door. Their purpose is to implement statewide systems of coordinated, community-based respite for family caregivers caring for individuals with special needs of all ages. State Lifespan Respite grantees may assign some Lifespan Respite activities to State Respite Coalitions for purposes of the grant or the State Respite Coalition may act in an advisory or advocacy capacity for the grantee.  For State Lifespan Respite grantee contacts, click here.

State Respite Coalition Contacts:

Alabama

Alabama Lifespan Respite
This email address is being protected from spambots. You need JavaScript enabled to view it.

Tracy Cieniewicz
Alabama Respite
Project of UCP of Huntsville and
Tennessee Valley
1856 Keats Drive
Huntsville, Alabama 35810
(256) 859-4900
(256) 859-4332 FAX
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Website

pdf_buttonAL Respite Coalition Fact Sheet

Arizona

Arizona Caregiver Coalition
P.O. Box 21623
Phoenix, AZ 85036
Arizona Caregiver 
Resource Line

1-888-737-7494
This email address is being protected from spambots. You need JavaScript enabled to view it.

Jutta Ulrich
Executive Director
Arizona Caregiver Coalition
P.O. Box 21623
Phoenix, AZ 85036
602-542-6593
This email address is being protected from spambots. You need JavaScript enabled to view it. 

Website

pdf_buttonAZ Respite Coalition Fact Sheet Fact Sheet 

Arkansas

Arkansas Lifespan Respite Coalition

Buster Lackey
This email address is being protected from spambots. You need JavaScript enabled to view it.

Advocacy Contact: This email address is being protected from spambots. You need JavaScript enabled to view it.

Website 

pdf button AR Lifespan Respite Coalition
Fact Sheet

California

California Respite Association

Geneva Ziaoure
Manos Home Care
4173 McCarthur Blvd Ste 15
Oakland, CA 94619
510-336-2900
This email address is being protected from spambots. You need JavaScript enabled to view it. 

Michael Foster
Shella Care Mgt Services
PO Box 263
Sun City, CA 92586
Phone: (951)229-2722
This email address is being protected from spambots. You need JavaScript enabled to view it. 

Website

pdf_buttonCA Respite Coalition
Fact Sheet 

Colorado

Colorado Respite Coalition

Lisa Doktor
Colorado Respite Care
Easterseals CO
303-233-1666
This email address is being protected from spambots. You need JavaScript enabled to view it. 

Website

pdf_buttonCO Respite Coalition
Fact Sheet

Colorado lifespan Respite Resource Network

Florida

Florida Lifespan Respite Alliance

This email address is being protected from spambots. You need JavaScript enabled to view it.

Website

pdf buttonFlorida Lifespan Respite Alliance Fact Sheet

Idaho

Idaho Caregiver Alliance

Marilyn Sword
Idaho Caregiver Alliance, Frontier Group, LLC
208-344-8585
This email address is being protected from spambots. You need JavaScript enabled to view it. 


Website

pdf buttonID Caregiver Alliance Fact Sheet

Illinois

Illinois Respite Coalition 

Tina Yurik
President, IRC Board
This email address is being protected from spambots. You need JavaScript enabled to view it.

Website

pdf_buttonIL Respite Coalition
Fact Sheet

 


Iowa lifespan Respite Resource Network

Kansas

Kansas Lifespan Respite Coalition

Gina Ervay
Coalition Founder and Chair
Andover, KS 67002
This email address is being protected from spambots. You need JavaScript enabled to view it. 


pdf_buttonKS Respite Coalition
Fact Sheet

Maryland

Maryland Respite Care Coalition

Christine Schoenberger, MHS
This email address is being protected from spambots. You need JavaScript enabled to view it. 

pdf button Maryland Respite Care Coalition Fact Sheet

Website

Massachusetts

 

Amy Nazaire
Director of Family Support/Lifespan Respite Grant Project Director
MA Department of
Developmental Services
Northeast Region
(978) 774-5000 x386
This email address is being protected from spambots. You need JavaScript enabled to view it.

pdf_buttonMA Lifespan Respite Coalition
Fact Sheet

Mississippi

Mississippi Family Caregiver Coalition

Spencer Blalock, DHA, LCSW
BCD Rush Health Systems
601-480-5683
This email address is being protected from spambots. You need JavaScript enabled to view it. 

pdf button MS Family Caregiver Coalition Fact Sheet

Montana

Montana Respite Coalition

Vicki Clear
Developmental Educational
Assistance Program
2200 Box Elder
Miles City, Montana 59301
1-800-234-6034
(406) 234-6034
This email address is being protected from spambots. You need JavaScript enabled to view it.

Website

pdf_buttonMT Lifespan Respite Coalition Fact Sheet

Nebraska

Looking for respite? Contact the NE Lifespan Respite Network.

Call 1-866-RESPITE or visit https://nrrs.ne.gov/respitesearch/

Nebraska Respite/Caregiver Coalition

Jinx Hackler, Cochair
Hastings Respite Care
PO Box 1217
Hastings, NE 68901
(402) 463-8124
This email address is being protected from spambots. You need JavaScript enabled to view it.

Suzy Campbell, Co-Chair
(402) 261-6488 
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pdf_buttonNE Respite Coalition Fact Sheet

Nevada

Nevada Lifespan Respite Care Coalition

Cheryl Dinnell
Executive Director

This email address is being protected from spambots. You need JavaScript enabled to view it. 

Website

pdf_buttonNV Respite Coalition 
Fact Sheet

New Hampshire lifespan Respite Resource Network

New Jersey

New Jersey Lifespan Respite Coalition

Adeola Sonaike, PhD, MPH, CHES
Family Resource Network of NJ
Senior Vice President, Health
50 Millstone Rd
Building 300, Suite 201
East Windsor, NJ 08520
609-392-4900
This email address is being protected from spambots. You need JavaScript enabled to view it. 

New York

New York State Caregiving and Respite Coalition

Doris Green, MPA
Director – NYS Caregiver and Respite Coalition
Lifespan of Greater Rochester
1900 S. Clinton Avenue
Rochester, NY 14620
585-287-6393
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Website


pdf_buttonNY State Caregiving and Respite Coalition
Fact Sheet

North Carolina lifespan Respite Resource Network

North Dakota

North Dakota Respite Coalition

Josh Askvig
AARP North Dakota
ASD- Advocacy
107 W Main Ave, Suite 125
Bismarck, ND 58501
701-355-3642
This email address is being protected from spambots. You need JavaScript enabled to view it. 

Oklahoma

Oklahoma Caregiver Coalition, Respite Task Force

Ronelle Baker
Lifespan Respite Grant Manager
DHS Aging Services
2401 NW 23rd Street, Suite 40
Oklahoma City, OK 73107
This email address is being protected from spambots. You need JavaScript enabled to view it. 

Website

Sooner Success Respite. By calling 1-877-441-0434 Sooner SUCCESS can help you find the respite option that best fits your needs. In Oklahoma City, please call 271-5700, X47801 for respite information and eligibility.

Pennsylvania

Alliance for Community Respite Care (ACRC) 

MaryJo Alimena Caruso
This email address is being protected from spambots. You need JavaScript enabled to view it.

Website 

 

Rhode Island

Family Caregiver Alliance of Rhode Island

Courtney Smith
Assistant Director
United Way 2-1-1 in Rhode Island
401-519-0366
Fax 401-444-0635
This email address is being protected from spambots. You need JavaScript enabled to view it. 

Website

pdf button  Caregiver Alliance of RI Fact Sheet

South Carolina

South Carolina Respite Coalition

Nicholas Julian
Executive Director
PO Box 493
Columbia, SC 29202
Toll free: (866) 345-6786
(803) 935-5027
Fax: (803) 935-5229
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Website

pdf_buttonSC Respite Coalition
Fact Sheet

Tennessee

Tennessee Respite Coalition

Megan Schwalm
Executive Director
2200 - 21st Avenue South, Suite 310
Nashville, TN 37212
(888) 579-3754 or
(615) 269-8687
Fax: (615) 469-7791
This email address is being protected from spambots. You need JavaScript enabled to view it. 

Jack Read
Respite Voucher Program Coordinator
This email address is being protected from spambots. You need JavaScript enabled to view it. 

Website 

pdf_buttonTN Respite Coalition
Fact Sheet

Texas

Texas Respite Advisory Committee
For more information

Looking for respite? Visit Take Time Texas 


Texas lifespan Respite Resource Network

Virginia

Virginia Caregiver Coalition

TBD

Website

pdf_buttonVA Caregiver Coalition Fact Sheet  

Washington

Lifespan Respite Washington

Lifespan Respite Project Coordinator
Toll-free: 1.800.572.7368
Email:   This email address is being protected from spambots. You need JavaScript enabled to view it.  

Website

pdf_button Lifespan Respite Washington Coalition Fact Sheet Fact Sheet

Wisconsin

Respite Care Association of Wisconsin

Lisa Schneider
1835 E. Edgewood Dr. Suite 105 - 436
Appleton, WI 54913
Phone: (608) 222-2033
Fax: (608) 222-2034
This email address is being protected from spambots. You need JavaScript enabled to view it. 

Website      

pdf_buttonRespite Care Association of WI Fact Sheet


Updated January 2021. For more information or to make corrections, please contact  This email address is being protected from spambots. You need JavaScript enabled to view it..