Key Accomplishments of Lifespan Respite Program Grantees

The Lifespan Respite Care Program was authorized by Congress in 2006 under Title XXIX of the Public Health Service Act (42 U.S.C 201). Lifespan Respite Care programs are coordinated systems of accessible, community-based respite care services for family caregivers of children and adults of all ages with disabilities and/or chronic conditions. Such programs reduce duplication of effort and assist in the development of respite care infrastructures at the state and local levels.

In the descriptions of State Lifespan Respite Grantee accomplishments captured in the pages of this report, knowledge, commitment, ingenuity, and skillful stewardship and administration of resources are evident. Because a research base to guide grantees in making strong, durable, and responsive state systems is relatively scant, the accomplishments of these state grantees are essential to improve the quality of respite services and to increase confidence among caregivers using respite services. Through their work, state Lifespan Respite grantees provide evidence of the merit of the Lifespan Respite Care Program, and they inform our path forward. Lifespan Respite grantee activities are grouped into eight key areas of accomplishment:

  1. Make leadership collaborative.
  2. Make respite accessible through No Wrong Door.
  3. Make services affordable.
  4. Collect and use data
  5. Grow a strong provider workforce
  6. Innovate programs and practices.
  7. Diversify resources.
  8. Educate and advocate

Select Lifespan Respite Grantee Best Practices

From time to time, Lifespan Respite grantees and their partners present on their state's best practices at National Lifespan Respite Conferences, in Learning Collaboratives, or in network-wide webinars and will be featured here. Best practices in respite voucher programs, volunteer and faith-based respite, respite provider training, caregiver mental health and wellbeing, coalition and systems building, and ADRC/No Wrong Door partnerships are just some of the best practices explored. 

Summaries of State Lifespan Respite Grant Activities

These individual state summaries found below are also included in the compendiums to the right if you are searching for specific grant activities across states. 

Search keywords across states in this new compendium of Summaries of Lifespan Respite Grantee Activities and Outcomes from Final Reports FY 2017-FY 2020 (AL, AZ, CO, ID, ND, NV, NY, OK, RI, SC, TN).

You can also view a full compendium of all state Lifespan Respite Grant Activities for FY 2013, FY 2014, FY 2016 grantees, and interim accomplishments for FY 2017 and FY 2018 grantees in the 2019 Interim Report.