ARCH is currently facilitating five Learning Collaboratives that are open to Lifespan Respite Grantees, State Respite Coalition members, and other Partners. Click on each collaborative below to learn about the purpose of the Collaborative, and to access recordings of meetings, agendas, and other resources.

Learning Collaborative on Implementing Respite Actions in the National Strategy

The fifth Learning Collaborative is focused on implementing the respite recommendations in the 2022 National Strategy to Support Family Caregivers from the Administration for Community Living.  Learn more about the launch of the Learning Collaborative. 

To provide context for this collaborative, ARCH released The Role of Respite in the National Strategy to Support Family Caregivers: An ARCH Policy to Practice Brief.

Read the Brief

The purpose of the learning collaborative is to provide a platform for the exchange of ideas related to performance measurement. The collaborative meets at least quarterly to discuss topics related to planning, implementing, and reporting on the outcomes of Lifespan Respite grant activities. Based on the interest and proprieties of the group, guest speakers may join to share their expertise on topics such as: identifying and accessing data sources, practical strategies for tracking progress on goals and objectives and methods, and best practices for reporting on data to stakeholders.

The collaborative explores ways to measure performance related to the stated purposes of the Lifespan Respite Care Program; specifically, strategies for measuring the degree to which programs expand and enhance respite care services to family members; improve statewide dissemination and coordination of respite care; and provide, supplement, or improve access and quality of respite care services to family caregivers. The collaborative will identify and seek solutions to challenges of measuring system’s change outcomes as well as the outcomes of caregivers and their families.

Lifespan Respite grantees and partners are welcome to join the collaborative whether you have a well-established system for measuring and reporting on your performance targets, are just starting to plan a performance measurement strategy, or are somewhere in-between.

 

Meetings

Select a meeting below to see recordings, agenda, and presentations.

December 15, 2022 – States Share Measurement Tools

September 8, 2022 – States Share Measurement Tools

June 23, 2022 – ACL Data Elements for Lifespan Respite Program Grants

March 17, 2022 – A Conversation with Dr. Rebecca Utz, Respite Researcher and Professor of Sociology, University of Utah

Dec. 16, 2021 – Working with an External Evaluator: Moving from a logic model to a full report

Sep. 30, 2021 – Pinpointing Outcomes and Performance Targets for Measurement, Selecting Measurement Tools

June 3, 2021 – Outcomes vs Outputs and Measuring Collaboration

March 4, 2021 – Caregiver Navigator Tools, Measuring Outcomes, Statewide Family Caregiver Survey

Dec. 10, 2020 – Logic Models

Respite Voucher Resources

The Respite Voucher Learning Collaborative (LC) provides peer leadership and networking to explore the many issues to be considered in respite voucher program design and implementation.  In implementing a respite voucher program, States use a variety of delivery and reimbursement systems, target different populations, and define provider eligibility differently. These and other issues are addressed.  You are welcome to join the LC if you are in the planning stages for your program or if you are a seasoned administrator.

The LC is facilitated by LC leaders, Nadine Walter, Talena Ford and Aietah Stephens, partners in the OK Lifespan Respite grant and Tracy Kahlo with Lifespan Respite Washington. The LC meets 4 times a year, and is open to Lifespan Respite grantees and their partners.

Voucher Tools and Resources from the Resource Library

Results of Respite Voucher Survey, 2021

Results of Respite Voucher Survey, Fall 2018

Practical Considerations for Respite Voucher Programs

Feel free to browse workshop presentations from past National Lifespan Respite Conferences for presentations on voucher respite initiatives from Lifespan Respite grantees and partners.

Meetings

Select a meeting below to see recordings, agenda, and presentations.

January 19, 2023 – A Readiness Assessment Tool for Self-Directed Respite Voucher Programs

October 20, 2022 – Topical Issues in Self-Directed Respite Voucher Programs

July 14, 2022 – Vouchers for Emergency Respite

April 21, 2022 – Exploring Administrative and Outreach Issues in Respite Voucher Programs

January 20, 2022 – Overview of Self-Direction and Update of Participant-Directed Respite Guidebook

October 6, 2021 – 2021 Respite Voucher Survey Results

February 10, 2021 – Voucher Survey and Revisiting Respite During the Pandemic

October 27, 2020 – Respite Rx: What Caregivers Need Now

July 24, 2020 – State Check Ins

The group meets on the fourth Friday of every month at 12:00 PM Eastern for one hour to share progress made in sustainability planning.

Discussions focus on engaging in self-assessment to determine readiness for sustainability planning, including identification of what needs to be sustained; challenges encountered by group members in developing long-term sustainability strategies; strategies used to overcome barriers; successful collaboration building techniques, financing strategies, data collection and more. Participants actively seek guidance and suggestions from each other about the sustainability planning process, and share their own progress in real time.

Lifespan Respite grantees and their partners are welcome to participate in the group, which is facilitated by ARCH consultant, Susan Janko Summers, PhD.

For more information and resources, see Sustainability Tools.

 

Meetings

Select a meeting below to see recordings, agenda, and presentations.

February 24, 2023 – Sustainability Planning vs. Business Planning and State Check-In

January 27, 2023 – Coalitions as a Tool for Advocacy

December 9, 2022 – Forming, Building and Maintaining Coalitions

October 28, 2022 – States Check In

September 23, 2022 – Creating, Repairing, Reviving, and Sustaining Lifespan Respite Systems – A Sustainability Planning Framework

August 26, 2022 – States Check In

June 24, 2022 – New York State Lifespan Respite Final Sustainability Plan Report

May 27, 2022 – Sharing our Space

March 25, 2022 – Strategic and Sustainability Planning

The ARCH Volunteer and Faith-based Respite Learning Collaborative (LC) was launched in October 2021. The purpose of the LC is to serve as a community of practice for the respite network in informal respite opportunities for family caregivers caring for someone of any age or condition.

Participants in the LC who have been engaged in supporting or providing volunteer or faith-based respite through their Lifespan Respite grants or state respite coalitions, or from the broader respite network, are invited to share their experiences, collective wisdom, challenges and successes with others who wish to develop or enhance such respite options in their states or communities. The Learning Collaborative provides a forum for peer learning and networking as well as opportunities to learn more about ARCH resources on volunteer and faith-based respite, and model volunteer and faith-based respite services from around the country. Outside experts in the field on a variety of topics identified by the group will also be invited to participate and contribute to the knowledge base of the LC.

Search for more Volunteer and Faith-Based Respite Resources in the Resource Library.

Meetings

Select a meeting below to see recordings, agenda, and presentations.

February 9, 2023 – Students as Respite Volunteers: A Creative Approach to Supporting Family Caregivers

November 10, 2022 – Step-by-Step Guide to Mini grants for Volunteer and Faith-based Respite

August 11, 2022 – Community Care Corps

May 12, 2022 – Collaborative Members Share Best Practices in Volunteer and Faith-based Respite

February 10, 2022 – Respite in the Faith-Community

October 12, 2021 – Launch of the Learning Collaborative

National Strategy to Support Family Caregivers

The 2022 National Strategy to Support Family Caregivers from the Administration for Community Living was created to support family caregivers of all ages, from youth to grandparents, and regardless of where they live or what caregiving looks like for them and their loved ones.

Components of the National Strategy

2022 National Strategy to Support Family Caregivers - An overview and description of the strategy's goals and intended outcomes

First Principles: Cross-Cutting Considerations for Family Caregiver Support - Describes the four key principles that must be reflected in all efforts to improve support to family caregivers

Federal Actions - Nearly 350 actions that 15 federal agencies will take in the near term to begin to implement the strategy.

Actions for States, Communities, and Others - More than 150 actions others can take.

Infographic summarizing the National Strategy

Purpose of the Learning Collaborative

The Learning Collaborative is focused on helping Lifespan Respite grantees and state respite coalitions assume leadership roles in their respective states to help implement the respite recommendations in the National Strategy. The Learning Collaborative provides opportunities for peer-to-peer learning and support, and training and technical assistance from ARCH.

To provide context for this collaborative, ARCH released The Role of Respite in the National Strategy to Support Family Caregivers: An ARCH Policy to Practice Brief.

Read the Brief

The matrix, State Lifespan Respite Grant Activities Aligned with the National Strategy's Goals and Outcomes, is a working document for the Collaborative. The document catalogues the possible strategies that state Lifespan Respite grantees and their partners may use to explore how they will work to help implement respite actions that will advance the National Strategy to Support Family Caregivers within each of their states.

View the Matrix

 

Meetings

Select a meeting below to see recordings, agenda, and presentations.

March 16, 2023 – Aligning Grantee Activities with National Strategy Goals

February 16, 2023 – Launch of the Collaborative