ARCH is currently facilitating five Learning Collaboratives that are open to Lifespan Respite Grantees, State Respite Coalition members, and other Partners. The topics for these Learning Collaboratives are: Performance Measurment (no longer meeting regularly, but coaching is available), Respite Vouchers, Sustainability Planning, Volunteer and Faith-based Respite Services, and Implementing the National Strategy to Support Family Caregivers.  Click on each collaborative tab below to learn about the purpose of the Collaborative, and to access recordings of meetings, agendas, and other resources.

ARCH is also pleased to support the Student Respite Program Collaborative led by the BREAK Exchange in partnership with the Respite Care Association of Wisconsin. The purpose of the Student Respite Collaborative is to connect academic partners and program staff involved in respite programs that use students as respite providers to share ideas, best practices, and identify potential collaborative opportunities. The group meets the first  Monday of every month at 1 PM ET. Register to get the meeting link.

The Performance Measurement Learning Collaborative is no longer meeting formally, but the resources are retained here for reference.  If you need individual training, technical assistance, or coaching, related to performance measurement, please contact ARCH.

The purpose of the Performance Measurement Learning Collaborative was to provide a platform for the exchange of ideas related to performance measurement. The collaborative  discussed topics related to planning, implementing, and reporting on the outcomes of Lifespan Respite grant activities. Guest speakers joined from time to time to share their expertise on topics such as: identifying and accessing data sources, practical strategies for tracking progress on goals and objectives and methods, and best practices for reporting on data to stakeholders.

The collaborative explored ways to measure performance related to the stated purposes of the Lifespan Respite Care Program; specifically, strategies for measuring the degree to which programs expand and enhance respite care services to family members; improve statewide dissemination and coordination of respite care; and provide, supplement, or improve access and quality of respite care services to family caregivers.

Meetings

Select a meeting below to see recordings, agenda, and presentations.

April 6, 2023 – The Business of Respite: Key Performance Indicators for Program Sustainability and Accountability

December 15, 2022 – States Share Measurement Tools

September 8, 2022 – States Share Measurement Tools

June 23, 2022 – ACL Data Elements for Lifespan Respite Program Grants

March 17, 2022 – A Conversation with Dr. Rebecca Utz, Respite Researcher and Professor of Sociology, University of Utah

Dec. 16, 2021 – Working with an External Evaluator: Moving from a logic model to a full report

Sep. 30, 2021 – Pinpointing Outcomes and Performance Targets for Measurement, Selecting Measurement Tools

June 3, 2021 – Outcomes vs Outputs and Measuring Collaboration

March 4, 2021 – Caregiver Navigator Tools, Measuring Outcomes, Statewide Family Caregiver Survey

The Respite Voucher Learning Collaborative (LC) provides peer leadership and networking to explore the many issues to be considered in respite voucher program design and implementation.  In implementing a respite voucher program, States use a variety of delivery and reimbursement systems, target different populations, and define provider eligibility differently. These and other issues are addressed.  You are welcome to join the LC if you are in the planning stages for your program or if you are a seasoned administrator.

The LC is guided by LC leaders, Talena Ford and Aietah Stephens, partners in the OK Lifespan Respite grant and Tracy Kahlo with Lifespan Respite Washington, and facilitated by Jennifer Abernathy, ARCH consultant. The LC meets 4 times a year, and is open to Lifespan Respite grantees and their partners who automatically receive a calendar invitation to participate - no need to sign up.

Respite Voucher Resources

Voucher  Resources from the Resource Library

State Respite Voucher Tools

State Respite Voucher Guidance

Results of Respite Voucher Survey, 2021

Results of Respite Voucher Survey, Fall 2018

Practical Considerations for Respite Voucher Programs

Feel free to browse workshop presentations from past National Lifespan Respite Conferences for presentations on voucher respite initiatives from Lifespan Respite grantees and partners.

Meetings

Select a meeting below to see recordings, agenda, and presentations.

January 18, 2024 – Stretching Your Voucher Dollars to Serve More Caregivers: Cost-Sharing and other Strategies

September 14. 2023 – Scaling Up: Caregiver-Directed Respite Care in New York State

June 8, 2023 – Centering Equity in Access to Services: Lessons from the Field

January 19, 2023 – A Readiness Assessment Tool for Self-Directed Respite Voucher Programs

October 20, 2022 – Topical Issues in Self-Directed Respite Voucher Programs

July 14, 2022 – Vouchers for Emergency Respite

April 21, 2022 – Exploring Administrative and Outreach Issues in Respite Voucher Programs

January 20, 2022 – Overview of Self-Direction and Update of Participant-Directed Respite Guidebook

October 6, 2021 – 2021 Respite Voucher Survey Results

 

Discussions in the Sustainability Planning Learning Collaborative focus on engaging in self-assessment to determine readiness for sustainability planning, including identification of what needs to be sustained; challenges encountered by group members in developing long-term sustainability strategies; strategies used to overcome barriers; successful collaboration building techniques, financing strategies, data collection and more. Participants actively seek guidance and suggestions from each other about the sustainability planning process, and share their own progress in real time.

Lifespan Respite grantees and their partners are welcome to participate in the group, which is facilitated by ARCH consultant, Susan Janko Summers, PhD.  if you would like to learn more about or participate in the learning collaborative, please contact ARCH.

The group meets on the fourth Friday of every month at 12:00 PM Eastern for one hour to share progress made in sustainability planning.

For more information and resources, see Sustainability Tools.  You can find a list of Learning Collaborative discussion guides, presentations and resource lists here.

 

Meetings

Select a meeting below to see recordings, agenda, and presentations.

November 20, 2020 – States Share Sustainability Plans and Processes

October 23, 2020 – Implications of COVID-19 on Sustainability Planning

September 25, 2020 – COVID-19 Effects on Services and Sustainability

July 24, 2020 – Checking in to Sustain our Work

June 26, 2020 – Coping with COVID and Changes in Leadership

May 22, 2020 – Continuing Sustainability Planning Virtually

April 24, 2020 – States Check In

March 27, 2020 – States Check In

February 28, 2020 – The Easy, Peasy Sustainability Planner

The ARCH Volunteer and Faith-based Respite Learning Collaborative (LC) was launched in October 2021. The purpose of the LC is to serve as a community of practice for the respite network in informal respite opportunities for family caregivers caring for someone of any age or condition.

Participants in the LC who have been engaged in supporting or providing volunteer or faith-based respite through their Lifespan Respite grants or state respite coalitions, or from the broader respite network, are invited to share their experiences, collective wisdom, challenges and successes with others who wish to develop or enhance such respite options in their states or communities. The Learning Collaborative provides a forum for peer learning and networking as well as opportunities to learn more about ARCH resources on volunteer and faith-based respite, and model volunteer and faith-based respite services from around the country. Outside experts in the field on a variety of topics identified by the group will also be invited to participate and contribute to the knowledge base of the LC.

The Learning Collaborative meets four times a year and is facilitated by Jennifer Abernathy, ARCH Consultant. All Lifespan Respite grantees, partners and ARCH members are automatically sent a calendar invitation - no need to sign up!

Volunteer and Faith-based Respite Resources

Search for more Volunteer and Faith-Based Respite Resources in the Resource Library.

Meetings

Select a meeting below to see recordings, agenda, and presentations.

November 9, 2023 – The National Volunteer Caregiving Network: Celebrating 40 Years of Volunteer Service to the Nation’s Caregivers

August 10, 2023 – Youth Volunteers Providing Respite for Children and Young Adults with Disabilities

May 11, 2023 – Partnering with AmeriCorps Seniors to Support Respite and Workforce Development

February 9, 2023 – Students as Respite Volunteers: A Creative Approach to Supporting Family Caregivers

November 10, 2022 – Step-by-Step Guide to Mini grants for Volunteer and Faith-based Respite

August 11, 2022 – Community Care Corps

May 12, 2022 – Collaborative Members Share Best Practices in Volunteer and Faith-based Respite

February 10, 2022 – Respite in the Faith-Community

October 12, 2021 – Launch of the Learning Collaborative

Scroll down to see Meeting Recordings and Resources

Learning Collaborative on Implementing Respite Actions in the National Strategy

The Learning Collaborative is focused on helping Lifespan Respite grantees and state respite coalitions assume leadership roles in their respective states to facilitate implementation of the respite recommendations in the 2022 National Strategy to Support Family Caregivers from the Administration for Community Living.  Learn more about the launch of the Learning Collaborative.

The Learning Collaborative provides opportunities for peer-to-peer learning and support, and training and technical assistance from ARCH.

To provide context for this collaborative, ARCH released The Role of Respite in the National Strategy to Support Family Caregivers: An ARCH Policy to Practice Brief.

Read the Brief


State Lifespan Respite Grant Activities Aligned with the National Strategy's Goals and Outcomes

The matrix, State Lifespan Respite Grant Activities Aligned with the National Strategy's Goals and Outcomes, is a working document for the Collaborative. The document catalogues the possible strategies that state Lifespan Respite grantees and their partners may use to explore how they will work to help implement respite actions that will advance the National Strategy to Support Family Caregivers within each of their states.  It documents the actions that states have already taken or plan to take and will be updated regularly.

View the Matrix


Building Leadership Skills to Implement the National Strategy

Beginning in October 2023, the Learning Collaborative refocused its purpose to better assist Lifespan Respite Grantees and Partners in implementing identified respite and caregiver support actions at the State Level.

At the October 2023 meeting, Cheryl Dinnell, the new Learning Collaborative facilitator, outlined the new framework for the Learning Collaborative that focuses on leadership skill development that will guide the group going forward. The learning collaborative will work on developing leadership and assist in identifying the skills needed to be successful. Each week, through guest presentations, we also expect to highlight a member of the learning collaborative or an outside expert who can be a mentor for carrying out the leadership skill or strategy being discussed.  The framework includes a schedule of meetings and topics.

Learning Collaborative Framework  (revised January 2024)


National Strategy to Support Family Caregivers

The 2022 National Strategy to Support Family Caregivers from the Administration for Community Living was created to support family caregivers of all ages, from youth to grandparents, and regardless of where they live or what caregiving looks like for them and their loved ones.

Components of the National Strategy


Support Caregiving

A coalition of groups including the National Academy for State Health Policy (NASHP), the National Alliance for Caregiving, and The John A. Hartford Foundation launched SupportCaregiving.org, a new website that supports the implementation of the National Strategy to Support Family Caregivers. You can find resource guides with strategies to support family caregivers, including resources for caregivers, employers, funders, managed care plans, and state officials. These resource guides help support the dissemination and implementation of the National Strategy to Support Family Caregivers.

Take special note of the Respite Guide that was prepared in consultation with ARCH, with input from Learning Collaborative participants.


 

Meetings

Select a meeting below to see recordings, agenda, and presentations.

The Learning Collaborative meets monthly and is facilitated by Cheryl Dinnell, ARCH Consultant. All Lifespan Respite grantees and partners automatically receive a calendar invitation - no need to sign up!

February 1, 2024 – Leadership Principle: Challenge the Process

January 4, 2024 – Leadership Principle: Enabling Others to Act

November 2, 2023 – Leadership Principle: Inspire a Shared Vision

October 5, 2023 – Purpose: Foundation of Leadership

July 13, 2023 – Strengthening the Direct Care Workforce

June 15, 2023 – State Respite Action Next Steps

April 20, 2023 – Approaches to State Policymaking and Diversified Funding

March 16, 2023 – Aligning Grantee Activities with National Strategy Goals

February 16, 2023 – Launch of the Collaborative