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Demonstrating the efficient and effective use of resources is a hallmark of sound publicly-funded programs. This can be accomplished through the development of well thought-out performance metrics and strategies for collecting meaningful data. Such data can provide confidence that expended resources are yielding maximum results, document that services are benefitting consumers, and make the case to funders, policy makers and other stakeholders that the initiative is worthy of ongoing support. Performance measurement can also help monitor and manage programs and inform budgetary and strategic planning.

The information on this page is meant to assist Lifespan Respite grantees and their partners engage in the development of well-thought out and useful performance measurement plans as they implement activities under their Lifespan Respite grants or work to sustain these activities once federal funds are expended. The information should prove useful to others providing respite services as well.


Also included on this page is the Lifespan Respite Care Program Information and Data Collection Tool for Lifespan Respite Grantees.

Performance Measurement/Evaluation Resources/Measurement Tools

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Increase in Caregiver Access to Respite

Prepared by ARCH as a sample measurement tool for Lifespan Respite grantees/partners.  In an interview or focus group format, ask each key leader or stakeholder, “Have you documented an increase…

Watson Institute CareBreak – Impact of Respite Retrospective Outcome Survey

Developed by the Watson Institute CareBreak Volunteer Respite Program for children with disabilities A pre- and post retrospective survey for use with families matched with a volunteer for approximately 4-6…

VA Respite Voucher Reimbursement Packet with Surveys

This DARS Virginia Lifespan Respite Voucher Program packet includes: Voucher Form, Reimbursement Form, Satisfaction Survey, Training Survey, W-9 Form, Valid Proof of Payment.  Forms must be completed by the family…

ARCH Annotated Bibliography of Respite and Crisis Care Studies, 6th Edition, 2022

The literature review for this updated bibliography adds summaries of 19 peer-reviewed journal articles. Articles were included from the time period 2020, where the 5th edition left off, through 2022.…

South Carolina Data Elements for Lifespan Respite Reporting

Developed by the South Carolina Lifespan Respite Project A list of data elements for measuring demographic, process data (unduplicated counts of caregivers and care receivers receiving respite by age, gender…

Oklahoma Lifespan Respite Grant Program Pre and Post Respite Voucher Surveys

Developed by Sooner Success for the OK Lifespan Respite Care Grant Program These surveys administered before receiving respite through the voucher program and after receiving respite help assess the initial…

Collaborators/Partners Fulfillment of Agreement Matrix

Prepared by ARCH as a sample measurement tool for Lifespan Respite grantees/partners. In the far left hand column, list each agency the Lifespan Respite program collaborates with and has an…

The Modified Caregiver Strain Index (MCSI)

The Modified Caregiver Strain Index (MCSI) is a tool that can be used to quickly screen for caregiver strain with long-term family caregivers. It is a 13-question tool that measures…

Health Benefits of Senior Corps

Issue Brief Developed by the Corporation for National and Community Service Senior Companion Caregiver Study The Corporation for National and Community Service conducted the Senior Companion caregiver study to establish…

More Nationally Recognized Tools:

See these websites for validated measurement and assessment tools: 

 Measures for Assessing Caregiving Coping (APA):
 Care Receiver Assessment Tools (APA):
 Parent Caregiver Tools (APA):
References

American Psychological Association, Public Interest Directorate. Caregiver Assessment Tools

Family Caregiver Alliance and Benjamin Rose Institute on Aging (2012; 2nd Edition). Selected Caregiver Assessment Measures: A Resource Inventory for Practitioners 

Lund, D; Wright, SD; Caserta, M; Utz, R; Lindfelt, C; Montoro-Rodriguez, J; and Shon, H (2014). Time for Living and Caring, Making Respite Services Work for You.

US Administration on Aging. Performance Measurement Outcome Project (POMP).