Demonstrating the efficient and effective use of resources is a hallmark of sound publicly-funded programs. This can be accomplished through the development of well thought-out performance metrics and strategies for collecting meaningful data. Such data can provide confidence that expended resources are yielding maximum results, document that services are benefitting consumers, and make the case to funders, policy makers and other stakeholders that the initiative is worthy of ongoing support. Performance measurement can also help monitor and manage programs and inform budgetary and strategic planning.
The information on this page is meant to assist Lifespan Respite grantees and their partners engage in the development of well-thought out and useful performance measurement plans as they implement activities under their Lifespan Respite grants or work to sustain these activities once federal funds are expended. The information should prove useful to others providing respite services as well.
Recommendations for Developing Performance Metrics for State Lifespan Respite Programs. The guide provides a roadmap with tools and step-by-step suggestions for developing a performance measurement plan that will reflect the unique goals, activities and approaches undertaken by State Lifespan Respite grantees and their partners. It defines and provides examples of performance targets and suggestions for measuring them. Finally, it offers examples of how grantees can plan and document their individual program’s performance targets and collect appropriate data for measurement and reporting purposes. Although all grantees are held accountable for the goals and objectives identified in their grant proposals, there is no requirement for grantees...
Performance Measurement/Evaluation Resources/Measurement Tools
Evaluating Outcomes for Children and Families Receiving Crisis Nursery Services
The ARCH National Respite Network and Resource Center conducted the Crisis Nursery Program evaluation to examine relationships between crisis respite care and (1) incidents of reported child abuse and (2)…
Colorado Lifespan Respite Care Survey for Grants/Vouchers
Developed by Colorado Respite Coalition, a program of Easterseals Colorado. This survey is given to the family caregivers served by the Colorado Respite Coalition’s respite grant or voucher funds. It…
Watson Institute CareBreak – Impact of Respite Retrospective Outcome Survey
Developed by the Watson Institute CareBreak Volunteer Respite Program for children with disabilities A pre- and post retrospective survey for use with families matched with a volunteer for approximately 4-6…
New York Mini-grant Post Respite Survey
Developed by the New York State Caregiving and Respite Coalition The NY State Caregiving and Respite Coalition designed this survey for use by community and faith-based programs which had received…
South Carolina Caregiver Survey Key Findings
In August 2020, the South Carolina Respite Coalition sent a survey to family caregivers and organizations serving family caregivers to get an idea of who South Carolina caregivers are and…
Successful State Approaches for Measuring Lifespan Respite Outcomes
2015 Lifespan Respite Grantee and Partner Learning Symposium, Washington, DC. Presented By: Emily Kearns, MA Lifespan Respite Coalition and Joyce Pohlman, TX Department of Aging and Disability Services
Delaware Lifespan Respite Care Network RespiteOnline Referral Service Evaluation Form
Developed by the Delaware Lifespan Respite Care Network to evaluate satisfaction with the RespiteOnline Service.
Nebraska Lifespan Respite Network’s eLifespan Respite System
The Nebraska Lifespan Respite Network demonstrates their eLifespan Respite System, an online information and referral, and secure online data and workspace system, designed to facilitate statewide access to coordinated respite…
Advancing Respite Research – Findings from the Respite Research Summit
On September 29 and 30, 2020, ARCH convened the virtual Respite Research Summit with more than 130 national and international participants. The Summit was a capstone event to an initiative by the…
More Nationally Recognized Tools:
See these websites for validated measurement and assessment tools:
Compendium of Annotated Tools, FRIENDS National Resource Center for Community-based Child Abuse Prevention.
Time for Living and Caring: Making Respite Services Work for You! from researchers at the University of Utah includes assessment tools and scales for Satisfaction with Caregiving (p 6), Positive Aspects of Caregiving (p 6), and Modified Caregiver Burden Inventory (p 4).
Assessing Caregiver Stress, Burden and Coping (APA)- overview
Brown University Toolkit of Instruments to Measure End-of-Life Care
- Screening and Assessment Tools for Child Welfare
- Coping Health Inventory For Parents
- Perceived benefits of caregiving
- Perceived Support Scale
- Picot Caregiver Rewards Scale
- Revised Scale for Caregiving Self-Efficacy
- Assessing Behavior, Observation and Functioning in Care Recipients
- Assessing Health Problems
- Cognitive Problem Assessment Tools
- Quality of Care Measures
- Evaluating Care Recipient Mental Health
- Impact on Family Scale
- The Psychosocial Assessment Tool
- Parenting Stress Index
- Family Burden of Injury Interview
American Psychological Association, Public Interest Directorate. Caregiver Assessment Tools.
Family Caregiver Alliance and Benjamin Rose Institute on Aging (2012; 2nd Edition). Selected Caregiver Assessment Measures: A Resource Inventory for Practitioners
Lund, D; Wright, SD; Caserta, M; Utz, R; Lindfelt, C; Montoro-Rodriguez, J; and Shon, H (2014). Time for Living and Caring, Making Respite Services Work for You.
US Administration on Aging. Performance Measurement Outcome Project (POMP).
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