Demonstrating the efficient and effective use of resources is a hallmark of sound publicly-funded programs. This can be accomplished through the development of well thought-out performance metrics and strategies for collecting meaningful data. Such data can provide confidence that expended resources are yielding maximum results, document that services are benefitting consumers, and make the case to funders, policy makers and other stakeholders that the initiative is worthy of ongoing support. Performance measurement can also help monitor and manage programs and inform budgetary and strategic planning.

The information on this page is meant to assist Lifespan Respite grantees and their partners engage in the development of well-thought out and useful performance measurement plans as they implement activities under their Lifespan Respite grants or work to sustain these activities once federal funds are expended. The information should prove useful to others providing respite services as well.

Performance Measurement/Evaluation Resources/Measurement Tools

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Evaluating Outcomes for Children and Families Receiving Crisis Nursery Services

The ARCH National Respite Network and Resource Center conducted the Crisis Nursery Program evaluation to examine relationships between crisis respite care and (1) incidents of reported child abuse and (2)…

Colorado Lifespan Respite Care Survey for Grants/Vouchers

Developed by Colorado Respite Coalition, a program of Easterseals Colorado.  This survey is given to the family caregivers served by the Colorado Respite Coalition’s respite grant or voucher funds.   It…

Watson Institute CareBreak – Impact of Respite Retrospective Outcome Survey

Developed by the Watson Institute CareBreak Volunteer Respite Program for children with disabilities A pre- and post retrospective survey for use with families matched with a volunteer for approximately 4-6…

New York Mini-grant Post Respite Survey

Developed by the New York State Caregiving and Respite Coalition The NY State Caregiving and Respite Coalition designed this survey for use by community and faith-based programs which had received…

South Carolina Caregiver Survey Key Findings

In August 2020, the South Carolina Respite Coalition sent a survey to family caregivers and organizations serving family caregivers to get an idea of who South Carolina caregivers are and…

Successful State Approaches for Measuring Lifespan Respite Outcomes

2015 Lifespan Respite Grantee and Partner Learning Symposium, Washington, DC. Presented By: Emily Kearns, MA Lifespan Respite Coalition and Joyce Pohlman, TX Department of Aging and Disability Services

Delaware Lifespan Respite Care Network RespiteOnline Referral Service Evaluation Form

Developed by the Delaware Lifespan Respite Care Network to evaluate satisfaction with the RespiteOnline Service. 

Nebraska Lifespan Respite Network’s eLifespan Respite System

The Nebraska Lifespan Respite Network demonstrates their eLifespan Respite System, an online information and referral, and secure online data and workspace system, designed to facilitate statewide access to coordinated respite…

Advancing Respite Research – Findings from the Respite Research Summit

On September 29 and 30, 2020, ARCH convened the virtual Respite Research Summit with more than 130 national and international participants. The Summit was a capstone event to an initiative by the…

More Nationally Recognized Tools:

See these websites for validated measurement and assessment tools: 

 Measures for Assessing Caregiving Coping (APA):
 Care Receiver Assessment Tools (APA):
 Parent Caregiver Tools (APA):

American Psychological Association, Public Interest Directorate. Caregiver Assessment Tools

Family Caregiver Alliance and Benjamin Rose Institute on Aging (2012; 2nd Edition). Selected Caregiver Assessment Measures: A Resource Inventory for Practitioners 

Lund, D; Wright, SD; Caserta, M; Utz, R; Lindfelt, C; Montoro-Rodriguez, J; and Shon, H (2014). Time for Living and Caring, Making Respite Services Work for You.

US Administration on Aging. Performance Measurement Outcome Project (POMP).