Demonstrating the efficient and effective use of resources is a hallmark of sound publicly-funded programs. This can be accomplished through the development of well thought-out performance metrics and strategies for collecting meaningful data. Such data can provide confidence that expended resources are yielding maximum results, document that services are benefitting consumers, and make the case to funders, policy makers and other stakeholders that the initiative is worthy of ongoing support. Performance measurement can also help monitor and manage programs and inform budgetary and strategic planning.

The information on this page is meant to assist Lifespan Respite grantees and their partners engage in the development of well-thought out and useful performance measurement plans as they implement activities under their Lifespan Respite grants or work to sustain these activities once federal funds are expended. The information should prove useful to others providing respite services as well.


Also included on this page is the Lifespan Respite Care Program Information and Data Collection Tool for Lifespan Respite Grantees.

Performance Measurement/Evaluation Resources/Measurement Tools

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Measuring Systems Change and Consumer Outcomes

Recommendations for Developing Performance Metrics for State Lifespan Respite Programs. The guide provides a roadmap with tools and step-by-step suggestions for developing a performance measurement plan that will reflect the…

Alabama Retrospective Pre and Post Test Survey Form

Developed by Alabama Lifespan Respite and UCP of Huntsville and the Tennessee Valley HEARTS (Health, Emergency, And Respite Treatment Service) provides home-based respite to caregivers of children birth to 19…

Idaho Family Caregiver Navigator (FCN) – Pilot Year 1 Evaluation Report

The Family Caregiver Navigation (FCN) Pilot Project, an initiative of the ID Caregiver Alliance , was initiated to extend and sustain the impact of the Money Follows the Person (MFP)…

Performance Measurement Learning Collaborative: Massachusetts Levels of Organizational Integration

Presentation of Leanne Winchester, MA Lifespan Respite Coalition

Measuring Systems Change: A Brief Guide

Prepared by Administration for Community Living, Office of Performance and Evaluation, ACL Data Council, 2021 This brief provides an introduction to measuring systems change, including how systems and systems change…

Health and Well-Being Index

Parent self-report The Health and Well-Being Index (HWI) was designed for parents raising a child with a developmental delay or disability. It is a brief (five-item) survey that provides a…

Montana Voucher Respite Satisfaction Survey Results

Prepared by the Montana Lifespan Respite Program The report represents results of ongoing data collection in 2019 of users of Montana’s Lifespan Respite Voucher Program to  assess how well the…

ARCH Evaluation Form for Planned Respite

From Evaluating and Reporting Outcomes: a Guide for Respite and Crisis Care Program Managers, ARCH National Respite Network and Resource Center Pre-Post Retrospective Survey for assessing the outcomes of planned…

FAMILY CRISIS ORIENTED PERSONAL SCALES, F-COPES

Self-administered survey To identify problem solving and behavioral strategies used by families when faced with problems or crises. Can be used to as a pre-post test to measure change over…

More Nationally Recognized Tools:

See these websites for validated measurement and assessment tools: 

 Measures for Assessing Caregiving Coping (APA):
 Care Receiver Assessment Tools (APA):
 Parent Caregiver Tools (APA):
References

American Psychological Association, Public Interest Directorate. Caregiver Assessment Tools

Family Caregiver Alliance and Benjamin Rose Institute on Aging (2012; 2nd Edition). Selected Caregiver Assessment Measures: A Resource Inventory for Practitioners 

Lund, D; Wright, SD; Caserta, M; Utz, R; Lindfelt, C; Montoro-Rodriguez, J; and Shon, H (2014). Time for Living and Caring, Making Respite Services Work for You.

US Administration on Aging. Performance Measurement Outcome Project (POMP).