Performance Measurement
Demonstrating the efficient and effective use of resources is a hallmark of sound publicly-funded programs. This can be accomplished through the development of well thought-out performance metrics and strategies for collecting meaningful data. Such data can provide confidence that expended resources are yielding maximum results, document that services are benefitting consumers, and make the case to funders, policy makers and other stakeholders that the initiative is worthy of ongoing support. Performance measurement can also help monitor and manage programs and inform budgetary and strategic planning.
The information on this page is meant to assist Lifespan Respite grantees and their partners engage in the development of well-thought out and useful performance measurement plans as they implement activities under their Lifespan Respite grants or work to sustain these activities once federal funds are expended. The information should prove useful to others providing respite services as well.
Also included on this page is the Lifespan Respite Care Program Information and Data Collection Tool for Lifespan Respite Grantees.
Recommendations for Developing Performance Metrics for State Lifespan Respite Programs
The guide provides a roadmap with tools and step-by-step suggestions for developing a performance measurement plan that will reflect the unique goals, activities and approaches undertaken by State Lifespan Respite grantees and their partners. It defines and provides examples of performance targets and suggestions for measuring them. Finally, it offers examples of how grantees can plan and document their individual program’s performance targets and collect appropriate data for measurement and reporting purposes. Although all grantees are held accountable for the goals and objectives identified in their grant proposals, there is no requirement for grantees...
Performance Measurement/Evaluation Resources/Measurement Tools
Measuring Systems Change and Consumer Outcomes
Recommendations for Developing Performance Metrics for State Lifespan Respite Programs. The guide provides a roadmap with tools and step-by-step suggestions for developing a performance measurement plan that will reflect the…
Alabama Retrospective Pre and Post Test Survey Form
Developed by Alabama Lifespan Respite and UCP of Huntsville and the Tennessee Valley HEARTS (Health, Emergency, And Respite Treatment Service) provides home-based respite to caregivers of children birth to 19…
Idaho Family Caregiver Navigator (FCN) – Pilot Year 1 Evaluation Report
The Family Caregiver Navigation (FCN) Pilot Project, an initiative of the ID Caregiver Alliance , was initiated to extend and sustain the impact of the Money Follows the Person (MFP)…
Performance Measurement Learning Collaborative: Massachusetts Levels of Organizational Integration
Presentation of Leanne Winchester, MA Lifespan Respite Coalition
Measuring Systems Change: A Brief Guide
Prepared by Administration for Community Living, Office of Performance and Evaluation, ACL Data Council, 2021 This brief provides an introduction to measuring systems change, including how systems and systems change…
Health and Well-Being Index
Parent self-report The Health and Well-Being Index (HWI) was designed for parents raising a child with a developmental delay or disability. It is a brief (five-item) survey that provides a…
Montana Voucher Respite Satisfaction Survey Results
Prepared by the Montana Lifespan Respite Program The report represents results of ongoing data collection in 2019 of users of Montana’s Lifespan Respite Voucher Program to assess how well the…
ARCH Evaluation Form for Planned Respite
From Evaluating and Reporting Outcomes: a Guide for Respite and Crisis Care Program Managers, ARCH National Respite Network and Resource Center Pre-Post Retrospective Survey for assessing the outcomes of planned…
FAMILY CRISIS ORIENTED PERSONAL SCALES, F-COPES
Self-administered survey To identify problem solving and behavioral strategies used by families when faced with problems or crises. Can be used to as a pre-post test to measure change over…
More Nationally Recognized Tools:
See these websites for validated measurement and assessment tools:
Compendium of Annotated Tools, FRIENDS National Resource Center for Community-based Child Abuse Prevention.
Time for Living and Caring: Making Respite Services Work for You! from researchers at the University of Utah includes assessment tools and scales for Satisfaction with Caregiving (p 6), Positive Aspects of Caregiving (p 6), and Modified Caregiver Burden Inventory (p 4).
Assessing Caregiver Stress, Burden and Coping (APA)- overview
Brown University Toolkit of Instruments to Measure End-of-Life Care
- Screening and Assessment Tools for Child Welfare
- Coping Health Inventory For Parents
- Perceived benefits of caregiving
- Perceived Support Scale
- Picot Caregiver Rewards Scale
- Revised Scale for Caregiving Self-Efficacy
- Assessing Behavior, Observation and Functioning in Care Recipients
- Assessing Health Problems
- Cognitive Problem Assessment Tools
- Quality of Care Measures
- Evaluating Care Recipient Mental Health
- Impact on Family Scale
- The Psychosocial Assessment Tool
- Parenting Stress Index
- Family Burden of Injury Interview
References
American Psychological Association, Public Interest Directorate. Caregiver Assessment Tools.
Family Caregiver Alliance and Benjamin Rose Institute on Aging (2012; 2nd Edition). Selected Caregiver Assessment Measures: A Resource Inventory for Practitioners
Lund, D; Wright, SD; Caserta, M; Utz, R; Lindfelt, C; Montoro-Rodriguez, J; and Shon, H (2014). Time for Living and Caring, Making Respite Services Work for You.
US Administration on Aging. Performance Measurement Outcome Project (POMP).
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