Demonstrating the efficient and effective use of resources is a hallmark of sound publicly-funded programs. This can be accomplished through the development of well thought-out performance metrics and strategies for collecting meaningful data. Such data can provide confidence that expended resources are yielding maximum results, document that services are benefitting consumers, and make the case to funders, policy makers and other stakeholders that the initiative is worthy of ongoing support. Performance measurement can also help monitor and manage programs and inform budgetary and strategic planning.

The information on this page is meant to assist Lifespan Respite grantees and their partners engage in the development of well-thought out and useful performance measurement plans as they implement activities under their Lifespan Respite grants or work to sustain these activities once federal funds are expended. The information should prove useful to others providing respite services as well.

Performance Measurement/Evaluation Resources/Measurement Tools

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Nebraska Lifespan Respite Caregiver Survey

Developed by the University of Nebraska Medical Center for the NE Lifespan Respite Care Network The survey was designed for caregivers receiving NE Lifespan Respite Subsidy funds; with Supplemental Questions.…

Benefits and Cost Savings Due to Respite

Fact Sheet Developed by the National Respite Coalition

Short breaks for carers: a scoping review

Short breaks for carers: a scoping review Prepared by Diane Seddon and Louise Prendergast, Wales Centre for Ageing and Dementia Research, School of Health Sciences, Bangor University and funded by…

Final Report – NV Caregiver Respite Self-Directed Pilot

State of Nevada Aging and Disability Services Division Authored By: Cheryl Dinnell, Autumn Blattman, Jamie Ahumada, and Cheyenne Pasquale

Evaluating and Reporting Outcomes: A Guide for Respite and Crisis Care Program Managers

Authored by Dr. Ray Kirk and revised by Casandra Firman, MS, ARCH. Planned and crisis respite programs across the United States have field tested tools for measuring program outcomes. Under…

A Research Agenda for Respite Care

Deliberations of an Expert Panel of Researchers, Advocates and Funders To understand the existing research base, and to make recommendations for how to structure and organize future research in ways…

Health and Well-Being Index

Parent self-report The Health and Well-Being Index (HWI) was designed for parents raising a child with a developmental delay or disability. It is a brief (five-item) survey that provides a…

Montana Voucher Respite Satisfaction Survey Results

Prepared by the Montana Lifespan Respite Program The report represents results of ongoing data collection in 2019 of users of Montana’s Lifespan Respite Voucher Program to ¬†assess how well the…

Using Data to Successfully Drive Your Program: Program Evaluation and Evidence-Informed Respite Programs

From the 2011 National Respite Conference, Glendale, AZ. Presented By: MaryJo Alimena Caruso, CareBreak and the Pennsylvania Respite Coalition and Jennifer Abernathy, Tennessee Respite Coalition

More Nationally Recognized Tools:

See these websites for validated measurement and assessment tools: 

 Measures for Assessing Caregiving Coping (APA):
 Care Receiver Assessment Tools (APA):
 Parent Caregiver Tools (APA):

American Psychological Association, Public Interest Directorate. Caregiver Assessment Tools. 

Family Caregiver Alliance and Benjamin Rose Institute on Aging (2012; 2nd Edition). Selected Caregiver Assessment Measures: A Resource Inventory for Practitioners 

Lund, D; Wright, SD; Caserta, M; Utz, R; Lindfelt, C; Montoro-Rodriguez, J; and Shon, H (2014). Time for Living and Caring, Making Respite Services Work for You.

US Administration on Aging. Performance Measurement Outcome Project (POMP).