Demonstrating the efficient and effective use of resources is a hallmark of sound publicly-funded programs. This can be accomplished through the development of well thought-out performance metrics and strategies for collecting meaningful data. Such data can provide confidence that expended resources are yielding maximum results, document that services are benefitting consumers, and make the case to funders, policy makers and other stakeholders that the initiative is worthy of ongoing support. Performance measurement can also help monitor and manage programs and inform budgetary and strategic planning.

The information on this page is meant to assist Lifespan Respite grantees and their partners engage in the development of well-thought out and useful performance measurement plans as they implement activities under their Lifespan Respite grants or work to sustain these activities once federal funds are expended. The information should prove useful to others providing respite services as well.

Performance Measurement/Evaluation Resources/Measurement Tools

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Successful State Approaches for Measuring Lifespan Respite Outcomes

2015 Lifespan Respite Grantee and Partner Learning Symposium, Washington, DC. Presented By: Emily Kearns, MA Lifespan Respite Coalition and Joyce Pohlman, TX Department of Aging and Disability Services

Health and Well-Being Index

Parent self-report The Health and Well-Being Index (HWI) was designed for parents raising a child with a developmental delay or disability. It is a brief (five-item) survey that provides a…

South Carolina Respite Coalition Caregiver Survey Findings

SOUTH CAROLINA RESPITE COALITION CAREGIVER SURVEY  –  KEY FINDINGS In August 2020, the South Carolina Respite Coalition sent a survey to family caregivers and organizations serving family caregivers to get…

Evaluating and Reporting Outcomes: A Guide for Respite and Crisis Care Program Managers

Authored by Dr. Ray Kirk and revised by Casandra Firman, MS, ARCH. Planned and crisis respite programs across the United States have field tested tools for measuring program outcomes. Under…

Outcomes vs. Outputs

Prepared by Casandra Firman, ARCH, for the Performance Measurement Learning Collaborative, June 3, 2021

Nevada Lifespan Respite Care Program Data on Caregivers 2012

Report by Cheryl Dinnell, Coordinator, Nevada Lifespan Respite Care Program Data on caregivers in this report came from applications, assessments, pre- and post-respite surveys, and voucher claim forms. This information…

Idaho Caregiver Alliance Lifespan Respite Logic Model

North Carolina Minigrant Sample Pre and Post Respite Caregiver Surveys

Developed by the North Carolina Lifespan Respite Project The NC Lifespan Respite Project implemented minigrants in 2013 to community and faith-based agencies across the state to provide respite services. These…

Measuring the Value of Respite

A White Paper by the ARCH Committee for Advancement of Respite Research (CARR) Purpose The purpose of this white paper is to provide an in-depth description of the current challenges…

More Nationally Recognized Tools:

See these websites for validated measurement and assessment tools: 

 Measures for Assessing Caregiving Coping (APA):
 Care Receiver Assessment Tools (APA):
 Parent Caregiver Tools (APA):

American Psychological Association, Public Interest Directorate. Caregiver Assessment Tools

Family Caregiver Alliance and Benjamin Rose Institute on Aging (2012; 2nd Edition). Selected Caregiver Assessment Measures: A Resource Inventory for Practitioners 

Lund, D; Wright, SD; Caserta, M; Utz, R; Lindfelt, C; Montoro-Rodriguez, J; and Shon, H (2014). Time for Living and Caring, Making Respite Services Work for You.

US Administration on Aging. Performance Measurement Outcome Project (POMP).