Demonstrating the efficient and effective use of resources is a hallmark of sound publicly-funded programs. This can be accomplished through the development of well thought-out performance metrics and strategies for collecting meaningful data. Such data can provide confidence that expended resources are yielding maximum results, document that services are benefitting consumers, and make the case to funders, policy makers and other stakeholders that the initiative is worthy of ongoing support. Performance measurement can also help monitor and manage programs and inform budgetary and strategic planning.

The information on this page is meant to assist Lifespan Respite grantees and their partners engage in the development of well-thought out and useful performance measurement plans as they implement activities under their Lifespan Respite grants or work to sustain these activities once federal funds are expended. The information should prove useful to others providing respite services as well.

Performance Measurement/Evaluation Resources/Measurement Tools

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Health and Well-Being Index

Parent self-report The Health and Well-Being Index (HWI) was designed for parents raising a child with a developmental delay or disability. It is a brief (five-item) survey that provides a…

South Carolina Respite Coalition Caregiver Survey Findings

SOUTH CAROLINA RESPITE COALITION CAREGIVER SURVEY¬† –¬† KEY FINDINGS In August 2020, the South Carolina Respite Coalition sent a survey to family caregivers and organizations serving family caregivers to get…

Idaho Caregiver Alliance Lifespan Respite Logic Model

ID Family Caregiver Navitor Caregiver Retrospective Survey

Survey from Idaho Family Caregiver Alliance – Family Caregiver Navigator

Advancing Respite Research – Findings from the Respite Research Summit

On September 29 and 30, 2020, ARCH convened the¬†virtual Respite Research Summit¬†with more than 130 national and international participants. The Summit was a capstone event to an initiative by the…

Measuring Systems Change and Consumer Outcomes

Recommendations for Developing Performance Metrics for State Lifespan Respite Programs. The guide provides a roadmap with tools and step-by-step suggestions for developing a performance measurement plan that will reflect the…

Oklahoma Lifespan Respite Grant Program Pre and Post Respite Voucher Surveys

Developed by Sooner Success for the OK Lifespan Respite Care Grant Program These surveys administered before receiving respite through the voucher program and after receiving respite help assess the initial…

Measuring the Value of Respite

A White Paper by the ARCH Committee for Advancement of Respite Research (CARR) Purpose The purpose of this white paper is to provide an in-depth description of the current challenges…

Tools for evaluating state level strategic alliances

These tools were shared by the MA Lifespan Respite Coalition in a presentation at a meeting of the Lifespan Respite Grantee and Partner Performance Measurement Learning Collaborative and at the…

More Nationally Recognized Tools:

See these websites for validated measurement and assessment tools: 

 Measures for Assessing Caregiving Coping (APA):
 Care Receiver Assessment Tools (APA):
 Parent Caregiver Tools (APA):
References

American Psychological Association, Public Interest Directorate. Caregiver Assessment Tools. 

Family Caregiver Alliance and Benjamin Rose Institute on Aging (2012; 2nd Edition). Selected Caregiver Assessment Measures: A Resource Inventory for Practitioners 

Lund, D; Wright, SD; Caserta, M; Utz, R; Lindfelt, C; Montoro-Rodriguez, J; and Shon, H (2014). Time for Living and Caring, Making Respite Services Work for You.

US Administration on Aging. Performance Measurement Outcome Project (POMP).