Sleep is #2: How U.S. Children’s Hospice Homes are fulfilling the unmet need for overnight respite

September 1, 2021

ARCH cohosted this event with the BREAK Exchange. 

 

 

 

 

The #1 wish that all families with a child on a life-limited journey wants is a cure, next is some sleep. The U.K. Children’s Hospice Home model started almost 40 years ago with Helen House and has grown to over 54 homes today. A simple concept that focuses on family and caregiver support by providing overnight respite, and pediatric palliative and end-of-life hospice care throughout a child’s journey. Thankfully three communities have succeeded in opening this much needed care model in the U.S., and many more are in various stages of development. 

The presenter, Jonathan Cottor, will provide insights from his own family experience at Helen House and decades as a national advocate and champion for this model.

In this webinar, learn the status of the U.S. Children’s Hospice Home movement:

  • What services this model provides, and how it is an important part of the continuum of care to meet unmet needs for families whose children have chronic and complex medical conditions.

  • The inspiring overview of the 3 existing U.S. Children’s Hospice Homes, and how their team’s entrepreneurial grit and determination overcame challenges to rally each community to become operational.

  • Provide perspectives on U.S. health system barriers to address for sustaining and easing scalability and dissemination for other U.S. communities.

Presenter

Jonathan Cottor, MBA, MPH, Father, Advocate, Cofounder of Ryan House in Phoenix Arizona. 

Ryan House was recognized by ARCH as an Innovative and Exemplary Respite Service in 2020.