Lifespan Respite 101

Webinar and Toolkit



Webinar: Lifespan Respite "101"


This Webinar provides an introduction to Lifespan Respite, including Lifespan Respite legislation, best practices in State Lifespan Respite Programs, and information to help you plan for a Lifespan Respite System in your state. For more information about this webinar, the presenters, the agenda and other information, click here.

You can access the Webinar Power Point slides by clicking here.

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ACL/AoA Funding Opportunity Announcements

Eligible state entities include State agencies that administer the Older Americans Act, state agencies that administer Medicaid, or a state agency designated by the Governor. State agencies must work in partnership with Aging and Disability Resource Centers/No Wrong Door Systems and in mandated collaboration with a State Respite Coalition or other organization. With these funds, states must implement state and local Lifespan Respite programs, which are defined in the law as "Coordinated systems of accessible, community-based respite care services for family caregivers of children or adults with special needsĀ".  Grants may be available to states which have never received Lifespan Respite awards in the past and/or for current or former Lifespan Respite grantees. 

Archived Lifespan Respite Federal Funding Opportunity Announcements from Previous Years

  •  FY 2009, click here.  

  • FY 2010, click here.

  • FY 2011, New Grants, click here.

  • FY 2011, Expansion Grants, click here.

  • FY 2012, Integration and Sustainability Grants, click here.

  • FY 2012, Expansion Grants, click here.

  • FY 2013, New Grants, click here and Pre-Application Teleconference Transcript

  • FY 2013, Integration and Sustainability Grants, click here and Pre-Application Teleconference Transcript.

  • FY 2014, Building Long-Term Sustainability in State Lifespan Respite Programs, click here.

  • FY 2014, Lifespan Respite Care Program: Grants to New States, click here.

  • FY 2015, Lifespan Respite Care Program: Grants to New States, click here.

  • FY 2016, Lifespan Respite Care Program: Grants to New States, click here.

  • FY 2016, Lifespan Respite Care Program: Competing Program Expansion Supplements, click here.

  • FY 2017, Lifespan Respite Care Program, Grants to New States, click here

  • FY 2017, Lifespan Respite Care Program, Advancing State Lifespan Respite Systems (for current and former grantees), click here.

  • FY2020, Lifespan Respite Care Program: State Program Enhancement Grants, click here.

  • FY 2020,  Lifespan Respite Care Program: Grants to New States, click here.

  • FY 2021, Lifespan Respite Care program: State Enhancement Grants, click here.

  • FY 2021, LIfespan Respite Care Program: Enhancement Grants, Reposting Opportunity to Apply, click here.

  • FY 2021, LIfespan Respite Care Program: Grants to New States and States Re-Establishing Their Core Respite Infrastructures, click here. 

Toolkit: "Lifespan Respite 101"  

Lifespan Respite: Who, What, When, Where and How?  PPT Slide Presentation

See also Lifespan Respite "101" Webinar above

These PPT slides provide answers to the questions: what is respite, why is it important, how big is the problem of respite access, what is Lifespan Respite and why do we need it? Most importantly, the presentation lays out who needs to be involved, the state requirements for preparing for and implementing a state Lifespan Respite Program in collaboration with all the necessary stakeholders and partners, and where to find examples of innovation and best practices. Feel free to download these slides and adapt them for your own use -- with ARCH acknowledgment, of course!


ACL Lifespan Respite Fact Sheet, click here.

The US Administration for Community Living updated this fact sheet in 2018 to provide background on the implemented Lifespan Respite Program and to provide ACL's vision for the program.

Tools for Collaboration: Building and Sustaining Partnerships for Lifespan Respite Care Programs, click here.

This fact sheet provides definitions of different levels of collaboration and answers the questions: Why is collaboration a priority area for the Lifespan Respite Care Program? and What does collaboration in Lifespan Respite Care Programs mean? Also provided are state examples of effective collaborations and partnerships to advance Lifespan Respite systems, and links to valuable tools and resources to support Lifespan Respite Care Program Lead Agencies, State Respite Coalitions, ADRCs and their stakeholders in developing or maintaining collaborations.

Comparative Table of Original State Lifespan Respite Programs, click here.

The Lifespan Respite Care Act was modeled on state Lifespan Respite programs in OK. WI, NE and OR that were already up and running. Each program focuses on a coordinated method for respite service delivery and funding, yet each program has unique characteristics. This comparative table provides an easy look at the differences and similarities between these model state programs and allows other states to choose which characteristics they might want to incorporate into their own state Lifespan Respite Program as best practice.

Original State Lifespan Respite Programs, click here.

This fact sheet provides a summary of the original ARCH study, Statewide Lifespan Respite Programs: A Study of Four State Programs with updated information on the current status of and contact information for the original Lifespan Respite states.


Application as a Collaborative Tool, click here

For States to receive a federal grant to implement a Lifespan Respite Program, they must compete for funds by completing an application to be submitted to the Administration for Community Living. The Lifespan Respite law requires very specific information be included in the application. Compiling this information for the application will require research, documentation, and planning, which presents opportunities for state respite coalition, Aging and Disability Resource Center, and state agency collaboration early in the implementation process. This fact sheet provides details on what is required by the application as well as suggestions for how each partner could be most helpful with any or all of the application requirements.

Building Blocks for Respite: Federal Funding Opportunities, click here.

This issue brief summarizes and updates federal funding information from the comprehensive ARCH guide, Federal Funding and Support Opportunities for Respite, to provide brief descriptions of federal funding resources available, or potentially available, to states to support respite services for all ages and disabilities. This information is useful to state agencies and state respite coalitions trying to identify potential partners and respite resources at the state level, as well as important information for respite providers and others seeking funding for their own programs or for the family caregivers they serve. List is not all-inclusive.

Aging and Disability Resource Centers/No Wrong Door System
Along with State Respite Coalitions, Aging and Disability Resource Centers (ADRCS) play a key role in Lifespan Respite program implementation. The Lifespan Respite law requires their involvement and includes a definition for ADRCs. ADRCs are designed to streamline a broad array of long-term supports and services to assist older adults and people with disabilities of all ages in accessing these services.  To learn more about ADRCs, No Wrong Door Systems, and the collaboration with the Centers for Medicare and Medicaid Services and the Veterans Health Administration, please visit the ACL's No Wrong Door System 

Lifespan Respite Legislative History

Public Law PL109-442, Lifespan Respite Act of 2006, click here.

Section-by-Section Summary of the Act, click here.

Congressional Record of House and Senate Floor Statements on Passage of Lifespan Respite Care Act (December 2006), click here.
This document provides the actual transcribed Congressional Floor Statements of key Senators and House Members as they debated final passage of the Lifespan Respite Care Act in 2006. These floor statements, which carry the weight of law, provide critical information on Congressional intent for how the federal government, as well as states, are expected to implement Lifespan Respite programs.

House Energy and Commerce Committee Report on Lifespan Respite Care Act (September 2006), click here.

The House Committee report is the only Congressional Report in the legislative history of the Lifespan Respite Care Act. It carries the force of law and elaborates on Congressional intent, especially related to who is to be served by state lifespan respite programs and how the program is to be administered at the state and federal levels.

For additional legislative history, visit the National Respite Coalition.

Building Statewide Respite Coalitions

Building a Statewide Respite Coalition: Where Do We Begin?  Click here.
This guide is intended to assist those states or groups that are considering forming coalitions by providing the tools necessary to begin building a state respite coalition. Although the focus is on respite coalitions in particular, the material can be used for building any coalition. The workbook was updated in 2009 to include additional references, more state examples, and the latest information on the Lifespan Respite Care Act and implications for State Respite Coalitions.


Compendium of Fact Sheets related to State Coalitions.  Click here.
This compendium of fact sheets, updated in 2017, provides a state-by-state look at  state respite coalitions that are affiliated with the ARCH Network (See State Respite Coalitions).  Each fact sheet contains the following information on each state respite coalition: Start-Up Process and Coalition History; Structure; Staff; Funding; Membership; Meetings and Communication; Major Activities; Available Documents (Bylaws, Strategic Plans, Surveys, Brochures, etc.); and State Contact Information.

The compendium should be useful for state respite coalitions to educate their members and prospective members, family caregivers, funders, legislators and other policy makers about the resources they have available to provide assistance within their own states (each fact sheet has been formatted to stand alone as a separate document). The compendium provides meaningful guidance for new state respite coalitions or State Lifespan Respite Programs just getting started or to family caregivers , providers, state agencies or community-based organizations thinking about starting a new state respite coalition or looking for assistance.